HI friends and God bless, Do any of you battle with EBV. I would like to know what your doctor is doing to help you with that. Although I do not have aids. I have Chronic EBV which I have had for 20 years now. I have been able to hold it by the little toe but at any time it could take me alive. It is in a battle to take over. I do have CFIDS as well as Fybromyaligia and enviromental illness as well as thyroid disease, but the EBV is the one that keeps them all going. I will be interested to get your imput.

Thanks GigglePoet

I too dont have Aids I do have Lyme disease and EBV along with HHV6 I went to see DR Montoya in stanford hospital california he's doing a great thing which gets rid of EBV completley it's called Valcyte and cures this thing it's very expensive I'm going on it as soon as I stop Abx for lymes..hope this helps..did you ever get tested for lymes my lyme doctor said most people with EBV have lymes as the lymes supresses the immune system activating all other viruses which we all have in small forms in our bodies..

Sharon

I to have had ebv,chronic fatigue,hypothyroidism,fibromyalgia,and pernicious anemia,and lymes for almost 20 years. My dr told me all was cause from lymes. EBV is a sympton from Lymes he said and rest was all I could do and cut back on what I try to do in a days time. Sometimes when I am on antibiotics it don't seem as bad. But I to am looking for help with the fatigue. If I here anything I will let you know. Good Luck,

carol

The other replies are just like mine!

I suffered from all of the above for 10 years- only to find out Lyme was behind it all.

Find a competant Lyme Dr.

My best,
Bunny

[This Message was Edited on 11/03/2008]

Yes I do battle with high levels of EBV. On my test I was told normal was below 90 and my level was 8,000! For many years I was really down but after taking care of another problem (gallstones) I was able to get going again. It is always there in the background just in case I forget to get enough rest. I am not sure if treatments help - it seems some members are usuing anti-virals. It seems with EBV if you have any other medical problems they are much worse.

This is Jackie from DFW. I have a question, would you see Dr M first or would I need to see Dr R before going to another Doc?

Have not had the testing done, but my doctor doesn't treat Lyme. Says it is too complicated for her to treat. Suggested there was a Dr in the Hurst area, but heard he gave a lot of supplements and was very expensive.

Thanks

[This Message was Edited on 11/12/2008]

hello. i got EBV 17 yrs ago and am taking valtrex under dr. a. martin lerner. i am also on valcyte for HHV6.

i am curious as to why you are posting on the AIDS message board? there is a CFS/FM message board where you will find a lot of info!

good luck
sue