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Find help through organizations involved in research, education, support and patient advocacy. We've provided information here for you to learn more and get involved.

Getting Involved
The key to successfully changing government policies and funding is grassroots advocacy. Grassroots advocacy involves individuals committed to influencing positive changes in their lives, their communities and in their elected governments by making their personal stories and opinions known. Getting involved means calling, writing a letter, sending an email, or even visiting your elected representatives who serve you in Washington, DC, and in your state. You CAN make changes happen.

Remember: Every voice counts!
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