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Find help through organizations involved in research, education, support and patient advocacy. We've provided information here for you to learn more and get involved.
Action for ME
Action for ME is a UK-based organization supported by its membership, which includes people with ME, supporters of those with the disease, local ME support groups, businesses and trusts.
Bio-Physical Therapy Centre
Located in London, England, the Bio-Physical Therapy Centre specializes in treatment for Chronic Fatigue Syndrome (ME), Arthritis, Fibromyalgia, Viral and other conditions.
The Bio-Physical Therapy Centre utilizes the Bio-Ionic System (BIS). This treatment is continuously monitored and altered through a biofeedback circuit, which responds to cellular electron saturation. A truly holistic device, the BIS treats the entire body as well as the specific problem area with no undesirable side effects.
CFIDS Association of America
The CFIDS Association of America is the nation's leading charitable organization dedicated to conquering chronic fatigue and immune dysfunction syndrome (CFIDS), also known as chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (M.E.) The Association plays a principal role in accelerating the pace of CFIDS research, achieving public policy victories for people with CFIDS and focusing mainstream attention on this serious public health concern.
Since 1987, The CFIDS Association of America has invested approximately $25 million in CFIDS education, public policy and research programs in its effort to bring an end to the suffering caused by CFIDS.
Fibrohugs Fibromyalgia Support
The Mission of FibroHugs is to offer a place where persons with Fibromyalgia can find understanding, knowledge, and support in their daily battle with this painful disease. To offer support, not only for the patient but also to their loved ones, in an attempt to help all understand the effects of this illness. It is also our hope to bring awareness of this disease that a cure will be found.
National Fibromyalgia Association (NFA)
The NFA is a nonprofit organization whose mission is to develop and execute programs dedicated to improving the quality of life for people with fibromyalgia (FM). The NFA concentrates on patient services, awareness outreach, continuing medical education and research. Extensive information is available to the public through the NFA's web site (www.FMaware.org), educational packets/brochures, conferences and the first and only national magazine, Fibromyalgia AWARE.
National Fibromyalgia Partnership, Inc. (NFP)
Our Mission is to make medically-accurate, quality resource information on fibromyalgia (FM) available to our membership, health care professionals, and the community-at-large.
RedLabs USA, Inc.
RedLabs is a licensed clinical and research laboratory located in Reno, Nevada. We are a specialty laboratory with a focus on the diagnosis and treatment of chronic immune disorders such as chronic fatigue syndrome, fibromiagia and multiple sclerosis. Although we offer many diagnostic tests our primary diagnostic tools are formed around the RNAse L antiviral pathway. Fragmentation of native RNAse L yields a 37 kilo dalton fragment, which is typically found in chronic fatigue syndrome patients but not healthy individuals.
Getting Involved
The key to successfully changing government policies and funding is grassroots advocacy. Grassroots advocacy involves individuals committed to influencing positive changes in their lives, their communities and in their elected governments by making their personal stories and opinions known. Getting involved means calling, writing a letter, sending an email, or even visiting your elected representatives who serve you in Washington, DC, and in your state. You CAN make changes happen.
Chronic Fatigue Syndrome/CFIDS Advocacy
To learn more about what you can do to become a CFS advocate and how to do it in an effective and professional manner, visit the website of The CFIDS Association of America (www.cfids.org). They will provide you with guidelines for becoming an advocate along with numerous names and addresses to send your correspondence to, other websites you can visit for more information and important contacts. They also provide excellent sample letters that you can easily use to make your voice heard. To get started, click on the following link:
http://www.cfids.org/advocacy/cfids-activists.asp
Fibromyalgia Advocacy
To learn more about how you can become an effective advocate for fibromyalgia and make your voice heard by government officials, click on the following link to visit an excellent website that includes contact information and sample letters you can submit. Once you get to the link, you may have to scroll down to the section on "Becoming Politically Active":
http://members.aol.com/fibroworld/advocacy.htm#Becoming
Remember: Every voice counts!
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