Find help through organizations involved in research, education, support and patient advocacy. We've provided information here for you to learn more and get involved.
Action for ME is a UK-based organization supported by its membership, which includes people with ME, supporters of those with the disease, local ME support groups, businesses and trusts.
The CFIDS Association of America is the nation's leading charitable organization dedicated to conquering chronic fatigue and immune dysfunction syndrome (CFIDS), also known as chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (M.E.) The Association plays a principal role in accelerating the pace of CFIDS research, achieving public policy victories for people with CFIDS and focusing mainstream attention on this serious public health concern.
Since 1987, The CFIDS Association of America has invested approximately $25 million in CFIDS education, public policy and research programs in its effort to bring an end to the suffering caused by CFIDS.
The Mission of FibroHugs is to offer a place where persons with Fibromyalgia can find understanding, knowledge, and support in their daily battle with this painful disease. To offer support, not only for the patient but also to their loved ones, in an attempt to help all understand the effects of this illness. It is also our hope to bring awareness of this disease that a cure will be found.
FCI's mission is to give hope to everyone suffering with fibromyalgia and chronic fatigue syndrome through extensive research and reporting of natural, proven and effective therapies that focus on root causes. Through our support group network, awareness outreach, annual conferences, continuing education for healthcare professionals, research efforts, and publishing the nation’s top fibromyalgia/CFS alternative magazine, we have seen numerous lives changed for the better.
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Fibromyalgia Coalition International
6220 Antioch Road Suite 212
Merriam KS 66202-5107
913-384-HOPE (4673)
The National Fibromyalgia Association is a 501(c) 3 nonprofit organization whose mission is: To develop and execute programs dedicated to improving the quality of life for people with fibromyalgia.
Our Mission is to make medically-accurate, quality resource information on fibromyalgia (FM) available to our membership, health care professionals, and the community-at-large.
Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy.
Our mission is to address and alleviate many of the issues that affect the quality of life of persons who are diagnosed with chronic fatigue syndrome (CFS), (also known as chronic fatigue immune deficiency syndrome (CFIDS) in the U.S., and abroad also known as M.E. or ME; fibromyalgia syndrome (FMS), Gulf War illnesses (GWI), multiple chemical sensitivities (MCS) or environmental illnesses (EI) and chronic Lyme disease.
As part of our outreach program in the community we also embrace individuals who have been diagnosed with multiple sclerosis (MS) and other related illnesses as these illnesses considerably overlap with CFS and with FM.
The key to successfully changing government policies and funding is grassroots advocacy. Grassroots advocacy involves individuals committed to influencing positive changes in their lives, their communities and in their elected governments by making their personal stories and opinions known. Getting involved means calling, writing a letter, sending an email, or even visiting your elected representatives who serve you in Washington, DC, and in your state. You CAN make changes happen.
To learn more about what you can do to become a CFS advocate and how to do it in an effective and professional manner, visit the website of The CFIDS Association of America (www.cfids.org). They will provide you with guidelines for becoming an advocate along with numerous names and addresses to send your correspondence to, other websites you can visit for more information and important contacts. They also provide excellent sample letters that you can easily use to make your voice heard. To get started, click on the following link:
http://www.cfids.org/advocacy/cfids-activists.asp
Remember: Every voice counts!
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