ME/CFS and Fibromyalgia
Message Board

Hi all, I just got done reading hannahfeid's post in regards to the "good Dr list" being so outdated......

Let's do something about this and start a list of our own here to help each other out......... which is what this board is all about ;)....

I will start with my pain management Dr...I actually found his name from the cfids foundation.....they email me a letter every so often and they had a list of Dr's that treat dd............

The pain Dr I now see is :

Dr. Forest Tennant 1195 S Sunset Ave West Covina, CA 626-

He does NOT take ins......but if you google his name you will find that he has done extensive work in the field of intractable pain (which is what most of us have ) on his website it clearly explains what intractable pain is....

He currently hosts seminars to educate other physicians on the necessity of pain medications and pain management for patients with intractable pain.......

Once Dr Tennant establishes you as a patient he works very hard to find the exact combination of medications necessary to control your pain!

He is definatly a genius at knowing and prescribing narcotic medications to help his patients control their pain so they can better function in life.

In fact he has taught me how BAD it is to NOT keep your pain under control!

If you have any questions please feel free to ask me ;)

Hugs Doxy

EDIT FROM PROHEALTH: Please indicate the state or city in the title when you post about your doctor, so others can search more easily. <br>[<i>This Message was Edited on 04/14/2008</i>]

I'm probably just going to rant and rave, but have to get this off my chest.

I'm so tired of having to go to these DRs that don't take any insurance!!

My husband and I are only 57. I'm on SSDI and Medicare with his retiree ins. as backup. He retired early to help care for me.

I just spent thousands of dollars at the Holtorf center for almost a year and just got more sick.

Now my GP wants me to go to the MCS center in Dallas for 6 wks outpatient testing which could cost up to $25,000.

I finally said No, I'm done. I can't see bankrupting us after 37 yrs of marriage and great credit.

Lucky for me, my GP does give me pain,sleep,antidep., muscle relaxers and hormone meds, but not all of them are covered by ins.

Somedays I don't think it's worth it anymore to keep giving these DRs money, money, money. And for what???

For what it's worth, my GP is a wonderful alternative, holistice MD, in Fresno, CA, Sue Stone. She's tried everything with me and no improvement.

Again, sorry for the ranting. Hope someone out there is getting better.

Gentle hugs...Kathie

I hear you !!and you have to vent to someone. Holding anger and resentment inside ourselves is what helped to get us here in the first place. Hope you find help. Just keep praying that God will lead us, and try to forgive the rest--Lest it make us worse. Hugs grace

I don't have a good doctor, I have a wonderful doctor. However, I live in such a small town that I don't know if it will do any good to post his address but I will anyway.

Stephen C. Seltzer Albemarle Medical Services 105 Yadkin St # 301 Albemarle, NC 28001 (704) 982-9144

I have been going to him since I was 13 or 14 and he had just started private practice. I moved away for 8 years but I am back now.

When I lived in Greenville, NC I had two good doctors (not as good as Dr. Seltzer but to me , no one is!). I will list them as well:

Dr Mark Cervi Carolina Internal Medicine 2460-a Emerald Place Greenville, NC 27834 Couldn't find his phone number on the Internet

Dr. Kirk Philpot PHYSICIANS EAST : QUADRANGLE MEDICAL 1850 West Arlington Blvd. Greenville, NC 27834 (252) 752-6101 Maybe this will help someone!


[This Message was Edited on 08/05/2007]
[This Message was Edited on 08/06/2007]

I do not blame you one bit!

Sadly.....i agree with you "money, money, money"!!!!!!

Unfortunately the Drs that I "can" go to through my ins do NOT do a thing for me!

All my pcp does is prescribe medications "BUT" never pain meds that are effective.....I have discussed with my pcp so many times how my meds are not effective and I need a change.......

Always he would write an rx for the same med and the same dose!!!!!!!!!!!!

Once I was in a terrible and lingering flare.........I called my Dr after about a week of this and told him I needed something stronger as I was crying in so much pain.......

his secretary took the info, discussed this with him...called me back and told me to take my med every six hours ( the same med )

"DUH" I was already rx'd by him to take one every six hours I was so frustrated I just said "ok" and hung up!

That is why I now pay out of my own pocket to see a pain specialist......at "least" he is really trying hard to find just the right combination of pain meds that work for me!

Other Dr's just don't want to bother......and this one does for me!

As far as the prescriptions go........I have spent over 200.00 just this month alone for medications that my medical ins will not pay for!!!!!!!!!!

I do not want to pay for medical ins any more what is the use when nothing is covered we are double paying in my opinion.....we pay our med ins premium and then when we go to a Dr or a pharmacy we pay for everything there too!

Who is making out here? hmmmmmm?

Thanks for the posts Doxy

Dr. Joseph Nolan Phx AZ he is a rheummy and is compassionate about FM/CFS, and prescribes the meds you need. just gets scared about upping the dose of meds, thats why I am seeing Dr. Steve Fanto on the 20th of this month. ill let ya'll know how it goes. blessings, Iggy PS. For a pain doctor I now see Dr. Steve Fantos in Scottsdale, AZ. he understands how to treat pain , and does not belittle our illness. very compassionate. Iggy
[This Message was Edited on 11/02/2007]

My doctor does take insurance. He is director of pain management for Little Company of Mary in Torrance.

Dr. Rick Chavez Phone number (310) 798-1633

510 N Prospect Ave Redondo Beach, CA 90277-3028, US

See info below from his website..

The P.A.I.N.Institute is dedicated to the compassionate treatment of patients suffering from some form of unrelenting pain. Designed to provide in-patient and outpatient services under the leadership of Medical Director Dr. Rick Chavez, our multidisciplinary pain management program includes the essential components necessary for stabilization and recovery.

The specialty of Pain Medicine is concerned with the study of pain, prevention of pain, and the evaluation, treatment, and rehabilitation of persons in pain. Some conditions may have pain and associated symptoms arising from postoperative pain or pain associated with a malignancy, or may be conditions in which pain constitutes the primary problem, such as neuropathic pains or headaches.

The evaluation of painful syndromes includes interpretation of historical data; review of previous laboratory, imaging, and electrodiagnostic studies; assessment of behavioral, social, and occupational issues; and interview and examination of the patient by Dr Chavez.

It may require specialized diagnostic procedures, including central and peripheral neural blockade or monitored drug infusions. The special needs of geriatric populations, and patients' cultural contexts, are considered when formulating a comprehensive treatment plan at The P.A.I.N. Institute.

As the “hub of the wheel” Dr Chavez serves as a consultant to other physicians but is the principal treating physician and may provide care at various levels, such as direct treatment, prescribing medication, prescribing rehabilitation services, performing pain relieving procedures, counseling patients and families, directing a multidisciplinary team, coordinating care with other health care providers and providing consultative services to public and private agencies pursuant to optimal health care delivery to the patient suffering from pain and/or addiction.

Pain Management and Addiction Medicine are two specialized fields of medical practice that share a strong common interest in the mechanisms, clinical use, risks and benefits associated with opioid drugs and other therapies involving potentially abusable medications.

In addition to these pharmacological issues, there are profound clinical interactions between the potential of addictive disorders and the occurrence of unrelieved pain that influence both the management of substance use disorders and the care of pain patients.


[This Message was Edited on 08/05/2007]

Dr Bahadori Woodbridge Va

Hope I spelled his name correctly.

Mark Pellegrino

North Canton, Ohio

Hi,

My FM Dr is Dr Daniel Dantini in Ormond Beach, FL. He has a website and does phone consultations for patients who do not live close by.

He also has FM and is very open minded. He believes that antivirals and delayed food allergy testing followed by an elimination diet, and correcting our circadian rhythm to create restorative sleep, are key to feeling better. I have found him to be right...along with other healthy lifestyle factors such as regular exercise.

When he first mentioned how sensitive foods can really contribute to our symptoms, I thought "maybe in your case, but I don't think I have that problem"...well, was I wrong!!! I am feeling better thanks to him.

The phone consults are not covered by insurance, but my testing was, minus my deductible and copay.

I would be happy to share........her address is Cheryl Laskowski 62 Tilly Drive South Burlington Vermont 05403 802-847-3737

Until I found her, I lived in hell day after day. My gp would do nothing to help. She is the one that saved me . And I bless her every day I am alive! Thats how much I adore this woman!

is there any good doctor's in Indiana??

Laura

Hi, I don't live in Indiana but I have read of this Dr in Evansville: Dr David Johnson. He is a pain specialist who is/was doing a clinical trial using antivirals on fibromyalgia patients. He may have more knowledge of this illness than most Dr's.

Hi Folks!:)

I'm new to the site, I've had FMS for over 8 years but had a pretty good pain mgmt. system. But my reum Doc just screwed me over big time and I feel assaulted and hurt and came looking again for fellow supporters.

So glad to have found you folks, I remember now that I'm not crazy or alone and that the good Doc's are hard to come by.

I had a dispute over a bill and they brought me in under false pretenses to get a refill on pain meds. But what actually happened was a bullying by the secretary and even the Doc. himself to get me to sign an agreement to pay the bill. They bullied me for over 40 min.; I had a panic attack and now question the whole medical Doc's in this field. He dropped me as a patient, (I wouldn't go back there anyway) so I need a new Doc. I've reported him to the proper authorities. Now the pain and mental anguish are even worse.

I live near that Doc in North Canton Ohio...maybe I'll try him?

Nice to meet you all, thanks for listening.

Sincerely, Liz

Great idea, Doxy! These are California Doctors and Therapists.....

I will start with my Massage Therapist....he does CranioSacral, Lymph Drainage, Deep Tissue Therapy. (Wonderful)

High Desert Therapeutic Massage Steven L. Ferraro MT 16085 Tuscola RD. Apple Valley, CA. 92307 (760) 242-1551

Next, my Chiropractor....he has done magic on my neck and spine.....keeps my head on straight........He! He!

Bear Valley Chiropractic Ernest Rubio JR., D.C. 14960 Bear Valley Rd. STE C Victorville, CA. 92392 (760) 241-0018

Neurologist, had NCS and study with the needles...very gentle and concerned, able to joke with him...overall nice young man.

Victor Valley Neurology, Inc. Noel C. Bernales 15995 Tuscola Rd. Suite 203 Apple Valley, CA. 92307-2159 (760) 946-4004

Dentist.....removed all of old nasty fillings and replaced them..got insurance to pay for it. He is gentle and gives good numbing injections...very little pain. Great staff, wife works front desk, she has FM.

Hudson Family Dentistry Scott Hudson, D.D.S. 12120 Ridgecrest Road Suite 203 Victorville, CA. 92395 (760) 951-1007

Pain Management.....great specialist, has worked with me to get pain under control....with TP injection (MPS) medications to help with sleep....(FM)...nerve meds (not good for me)for pain........epidural injections....and pain medication for Degenerative Disc Disease...............a very knowledgable man with great bedside manners, kind, gentle an overall great person that truly cares about his patients...very easy going and calm..... :) Great staff!

J.P. Advanced Pain Management, Inc. Joe Park, M.D. Board Certified Anesthesiologist Pain Management Specialist 17260 Bear Valley Rd. Ste 109 Victorville, CA. 92395 (760) 843-9679

All take insurance except Massage Therapist. Cindy

Good idea you have here. Here are my picks I live in South Florida:

Dr.Steinberg,Neurologist Sunrise Medical Group 4925 Sheridan street suite #200,Hollywood Florida 954-981-3850

Dr. Keith Buchhalter Chiropractor Dania Florida,Sheridan street 954-929-1888
[This Message was Edited on 11/26/2007]

After year one..so far I am very happy with my doctor...

Dr Kenneth Oder Taylorsville Road Taylorsville KY 40071

He is patient, understanding..and willing to work with me to alleviate the pain. He suggests...and knows I research...and is willing to let me try or not try as I am comfortable.

Has anybody told u how wonderful u are for this board. What u have done here is a great ideal for all of us.Thank you for careing to do this.Im sure the doctors list will keep growing your the best. you are inspiring to me i was starting to lose hope and i dont think i have anymore tears to spare.Im hoping to get good results from on of the doctors that was posted.Thank you.

I am looking for a doctor. I live in Central MS and work full time at a very high stress job that I love. Although I love my GP, he doesn't really acknowledge FM--I didn't want to believe I had it for years. Now I am accepting it and ready to tackle this thing.

Any suggestions? I am broke and it would have to be someone who takes insurance.

Thanks in advance.

Bumping for more Docs.................BUMP