http://www.nightingale.ca/documents/GoteborgConference.pdf

"At the very least, this retrovirus discovery is great free advertising for the Whittemore
Peterson Institute. It will possibly bring them in many millions of dollars from, patients
willing to be separated from their assets, generous charities and governments before the
retrovirus theory is once again thrown into the garbage bin. I should add that incubation
period of XMRV is up to 21 days which makes it impossible to cause an epidemic illness.
One theory to explain this “new” finding is that XMRV is a mouse virus and since many
research institutes have tens of thousands of mice, cross contamination of specimens are
inevitable."

I really expected the snakeoil purveyors to have a go at attacking WPI. I never in a million years saw it coming from Byron Hyde. The churlishness is just astounding.

would Dr. Hyde,of all people, be saying this?

I know he is elderly, but this is so opposite his usual way of
thinking that I am very confused about it.

His book, The Clinical and Scientific Basis of Chronic Fatigue
Syndrome/Myalgic Encephalitis", was the first one I learned from;
the XMRV findings would seem to be in concurrence with many
topics there.

skeptik2

I think Canadians might want to start with asking why neither CFS and FM are listed in Health Canada's (Federal site) database as either a condition or disease.

My nephew is in Rachael Harper's class at school in Ottawa --is there any particular message you would like me to pass on to PM Harper. (LOL).

Kina.

Maybe there isn't even a separate financial code? Messages to send? Maybe others can advise. here is something i read tonight on the Phoenix site. two postings below.

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I think we should tell them that we want our tax money for medical research into CFS spent looking at the possibilities of the XMRV retrovirus by WPI.

I think we should tell them that our government (CDC) has stolen 20 years of our lives by misusing the funds allocated for research on CFS, and that we want them to stop doing this and fund research on XMRV.

I think we should tell them that we are MAD AS HELL and we are no longer going to sit quietly and be told to go away and suffer and die.


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#23 Today, 08:58 PM
teejkay
Member Join Date: Oct 2009
Posts: 61

Right On!

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I got so fired up just now after finally being able to watch the Senior Advisor for Blood Policy address the CFSAC that I just wrote both of my Senators and my Congressman and I covered all of the topics you mentioned and I told them all that the WPI is on Capitol Hill right now until Oct. 9.

I just started a thread about the Blood Supply and Organ Donations in the General CFS section too. I am wound up Baby!!

Thanks so much glen, will try to read very soon! *hugs*

aside from the argument made by Dr. Peterson that the DNA sequence of the XMRV they found was different from what would be a lab contaminant, if it is a lab contaminant, wouldn't the samples from the healthy folks have an equally likely chance of contamination during the testing process?

I'm not a lab person.



And why is the incubation period (time from exposure to signs of disease) deterrent to an epidemic? If I recall right, Incline Village happened over a period of several weeks.

Where is the evidence of the incubation period? We don't even know how it's transmitted, whether it's the cause, etc. I doubt ANYONE knows the incubation period in humans, maybe this is derived from lab data in which case it might be wrong.

Oh...aside from the science and money, let's not forget about people's egos driving their statements. My feeling is Dr. Peterson can be trusted.

[This Message was Edited on 11/06/2009]

I asked the same thing about the statement of incubation period. What study is the basis for that statement?

From what Coffin said, retroviruses are very different from each other: HIV starts attack right away, causing illness in 99+% of cases, HTLV makes some sick withe leukemia and others never get sick. And many retroviruses are benign. And the mouse virus is even slightly different froom the XMRV. So we don't know the habits of this virus, except in some men with an immune system problem, it lives in prostate cancer tumors.

Now, Mikovitz said that her study shows it is "turned on" by cortisol, androgens, and theoretically other viruses and vaccines.

Wouldn't this explain why it doesn't act like a regular epidemic, making some of us very sick while others, even marriage mates, don't get sick.

Tina

Ok, I think you guys are missing the big story here. This guy said ROCHE paid for his and ten other researchers for the trip to this symposium.

Now this was before the XMRV announcement. It was in June 2008. He says he thinks they were offering $30 million to the ten if they would treat with Herpes Virus anti-viral meds.

Now think of this. A big drug company is willing to pay these researchers to take a trip and they want to give $30 million to research for anti-virals for us, that's you and me.

Considering this level of interest and investment, can you imagine what is going on now, after XMRV?

Folks, we don't need no CDC or NIH any more. The avalanche has started and it can't be stopped now.

Tina

And something else. (Forgive me folks, I used my brain a whole lot today.) But posting messages on news websites about the illness is very good idea. Someone there likely reads them. And the more buzz on their Web site, the more likely they will do a story.

Tina

tina I couldnt follow the beginning of your post--who is "this guy" that roche offered money to and how does it tie into hyde?

I agree with you about the avalanche, if I am reading you right, I think its sort of like my thread the other day about what motivation was there to suppress cfs info--I speculated that perhaps now there is some reason things are being allowed to finally move forward, if they continue to, because corps finally figured out they could really $ benefit from this, although I am not sure why they didnt see that before, I mean if you like at HIV, no one's more discriminated against than gay population and they were redeemed with treatment, there was money in it.

This is quote from Hyde's speech:

Also, Roche Pharmaceuticals, who paid my way along with 10 of the other researchers, one from the Whittemore Peterson Institute, were offering a carrot of 30 million dollars in research grants to the ten researchers and myself who would treat CFS patients with their new Herpes Virus anti-viral.

tina

I didn't go over the presentations at that conference but if I recall correctly, only one group presented that 60-70% of CFS subjects had HHV-6/ HHV-7 and that was a Latvian group which did not overstate their conclusions and also had less than 50 people in their study.

So I'm not sure where all of this Dr. Hyde is talking about comes from.

The U.S. lab most likely to benefit was Focus Diagnostics as they were the one used in the Stanford Valcyte trials but they were not a sponsor of the Conference.