Has anyone out there heard of this protocol, or perhaps undergone the treatment it discusses?

I think there's a Marshall Protocol clinical trial, also. I'm curious and excited...SOOOO tired of, well, BEING TIRED! And then there's the FMS grind...you all know already!

Happy Thanksgiving, everyone! Hope you have a warm and happy family day.

Barbara

I'm really tired right now as I started making things for tomorrow...

but yes, it has helped me, and others ... if you do a 'search' in the box up above with 'marshall protocol' you'll see a lot of posts about it pro and con over the past 2 years. Also, if you go to the Marshall Protocol site itself, you will also see information there...

all the best, Victoria

Thanks so much for the info!

Did your MD work with you, or are you in a clinical trial? We're going away for a week, but I wrote a quick note to my MD - a WONDERFUL CFS/FMS doc who reseaches, teaches, publishes - to ask him to consider if it's right for me.

Someday, there WILL BE diagnostic tests and definitive treatments - we gotta believe!

Take care, Barbara

I am doing great on the protocol. Never have felt this good in ages. Still have a way to go but I am loving the health that I currently have and realize it will only get better.

One of my docs have 200-250 patients on the protocol with cfs/fm diagnosis. She recovered on the protocol and is great success with her patients.

The best tip that I learned from her was to add glyconutrients starting out with just a tiny bit and work your way up.

It speeds up the whole healing process.

I found a doctor, he's very well qualified, works at one of Emory University's clinics and open to new things happily... he has more than a few doing it the last I asked.

If you go to the MP site, they do have a doctor referral site.

And again, to reiterate, I have yet to see any protocol that works for every one... we seems to be split into subpopulations when it comes down to finding out 'what works'...

For an example, I'm guessing you could also find a site where people talk about the bad side effects of SSRIs, I could be one in that group, as it caused a very bad side effect it me that could have been devastating. . . caused me to think thoughts I've never thought before or since, after only 2 doses.

All the best, Victoria


[This Message was Edited on 11/24/2006]

Whats keeping us all ill is Cell Wall defecient bacteria. Doctor Sujay who use to post here frequently when she was ill says she realizes that the about all of her 200+ cfs/fm patients would test positive for lyme if she sent their bloodwork to one of the best lyme labs. Most all are responding great to the MP.

So be it mycoplasma or lyme or whatever when the hidden bacteria starts dying off you start feeling better.

The MP is being reviewed currently by the FDA for a CFS treatment.

Go read the success stories at marshallprotocol.com. Its not a quick fix but nice steady improvement. You will see many cfs/fm postings.

My doctor does not let any of his patients try the MP because of the issues with vitamin D and sunlight. I have pulmonary sarcoidosis, FM and CF. I feel much better on sunny days so I could not imagine blocking out all sunlight in my home and covering up with zinc oxide oinment as required by the MP.

In order for me to commit to that protocol I'd have to give away all of my houseplants. If there is enough light to grow a plant then the windows need to be covered. Wearing special sunglasses 24/7 is too crazy for me. I did try the Road Back long term ABX protocol instead and started taking 2,000 IU of vitamin D per my doctor's instructions. This is a complete opposite of the MP.

The marshall protocol has evolved over time. It is so new they are learning as they go along.

More emphasis is being placed on avoiding foods with D then light.

I wear sunglasses outside but just keep the home dim. Also keep t.v. and computer dim. But no glasses in the house.

Also wear zinc oxide sunscreen which is invisible thanks to new micro products. Also wear a hat.

It is all worth it to me as I have improved so much.

...ONE person who has "recovered", and by that I mean has STOPPED taking the drugs suggested by the MP?

The last I read, even Marshall and his fellow patients with sarcoidosis have yet to stop taking the drugs -- so how can anyone, especially Dr. Marshall use the word "cure" in his discussion of the protocol?

It should be noted that nearly all negative stories related to the MP have been removed from the official Marshall Protocol site. Over the past few years even several people who worked as volunteers with the site have quit or been forced to quit dare they question any aspect of the MP.

I know at least four people in my area who started the MP and had to quit within six months or less. One woman nearly developed kidney failure. Of course I don't know if this was due to the MP, but she did finally recover after several months off the MP-suggested drugs. Her doctor has gradually begun to take more and more of her patients off the MP because of these so-called "Herxheimer" reactions.

I mean no disrespect towards anyone who may be on the protocol, nor towards Marshall himself -- I'm sincerely glad that JarJar is improving -- but in the tradition of free speech, it should be noted as Skeeix mentioned above, that there are many, including volunteers who worked w/Marshall, who did not fare well at all -- some with very serious heart issues and drops in blood pressure.

And even Dr. Paul Cheney has expressed concern regarding the MP.

I'm blabbing on and on, forgive me. My original question still stands? Has anyone stopped taking the MP drugs and remained recovered?

Sincerely,

Dan

Munch

At the root of Dr Marshall's discovery is the role of Vit D in people with Th1 diseases - without trying to explain the science (the MP website is the place for that), it acts as a secosteroid dampening down symptoms, which is why some people feel better in sunlight and supplementing with D. However behind the scenes the intracellular bacteria continue to multiply and do their damage unabated.

In very simple terms, the foundation medication on the MP lowers the Vit D and restores the body's hormonal imbalances. You often feel worse at first because it removes the palliative effects of the excess D and exposes the real symptoms of your condition and allows your immune system to detect and kill the bacteria. The abx stop the bacteria replicating and are used to control the severity of the immune reaction as the body rids itself of the intracellular bacteria.

So contrary to popular medical thinking, supplementing with Vit D will exacerbate the underlying condition while offering what seems like improvements. Dr Marshall has proved this. Yes avoiding sunlight and ingesting Vit D is difficult but what price is your health. Light sensitivity is a very individual thing and many people still work while on the MP. The easist thing to do is test your Vit D metabolites as the relationship between these 2 will tell you if you have Th1 inflammation that can be successfully treated using the MP.

With chronic illnesses such as CFS/Lyme/Lupus/Sarcoidosis/RA etc doctors at best treat the symptoms only with immunosuppressive drugs such as prednisolone, while the MP treats the source of the problem. Doctors, in good faith, think they are doing the right thing supplementing with Vit D, but they are sill really in the dark as to how to cure them so for patients with these illnesses, it pays to do your own research and take charge of your own health.

Regards Gill