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Fibromyalgia Advocacy


Fibromyalgia Advocacy Advocacy plays an important role in any illness, but for illnesses that are not well accepted in the medical community, advocates are crucial.

Advocates are responsible for lobbying representatives to help increase research funding. They sponsor conferences, which allow researchers to share their findings and provide an avenue for physicians to stay up to date on the latest developments.

Advocates organize fund-raising campaigns for research, and increase public awareness of the illness and how it affects patients. They initiate petition drives, start support groups, and post commentary on their blogs about events that directly affect the welfare of patients.

On a personal level, advocates are responsible for making sure ill children and their families are protected, and their civil rights upheld.

Many people are too ill to do advocacy work, but anyone can participate by signing a petition, or sending an email, or a posting a tweet when events that affect our community arise.

The cumulative effect of advocacy efforts, from organizing major fund-raising drives to simply signing a petition, is that all of our lives are made easier.


Advocacy Sites for Fibromyalgia:


National Fibromyalgia & Chronic Pain Association (NFMCPA)
http://www.fmcpaware.org

National Fibromyalgia Partnership, Inc. (NFP)
http://www.fmpartnership.org

Fibromyalgia Association UK (FMA UK)
http://www.fmauk.org

Fibromyalgia Coalition International (FCI)
http://www.fibrocoalition.org
National Fibromyalgia Research Association (NFRA)
http://www.nfra.net

American Fibromyalgia Syndrome Association, Inc. (AFSA)
http://www.afsafund.org

H.O.P.E. (Helping Our Pain & Exhaustion)
http://www.hffcf.org

AFFTER (Advocates for Fibromyalgia Funding, Treatment, Education and Research)
http://www.affter.org


Fibromyalgia Advocacy News:


VIDEO: Things People With Chronic Pain Want You to Learn
This video offers good suggestions on what people living with chronic pain wish others knew.
VIDEO: "In Their Own Words" -- 2015 INvisible Project video
The INvisible Project is unveiling the truth about what it means to live with pain. By informing the public about different rare conditions and pain diseases, it engages them to take action and stand with us. This project removes barriers to pain care and empowers us all to be proactive.
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