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Organizations for Fibromyalgia


UNITED STATES


National Fibromyalgia & Chronic Pain Association (NFMCPA)
31 Federal Avenue
Logan, UT 84321
United States
Phone: 801-200-3627
Email:

The National Fibromyalgia & Chronic Pain Association (NFMCPA) is a 501(c)3 nonprofit patient support and advocacy organization. They support people with chronic pain illnesses and their families and friends by contributing to caring, professional, and community relationships. Through continuing education, networking with support groups and advocates, and affiliation with professional organizations, the members of the NFMCPA have a place to be informed, get involved, and recognize achievements.

NFMCPA Mission Statement: The National Fibromyalgia & Chronic Pain Association unites patients, policy makers, and healthcare, medical and scientific communities to transform lives through visionary support, advocacy, research and education of fibromyalgia and chronic pain illnesses.

The NFMCPA publishes the magazine Fibromyalgia & Chronic Pain LIFE, which is available in print and digital formats.



National Fibromyalgia Partnership, Inc. (NFP)
140 Zinn Way
Linden, VA 22642-5609
Phone: 866-725-4404

The National Fibromyalgia Partnership (NFP) is a 501(c)(3) nonprofit, educational organization. Founded in 1992, its membership includes patients and their families as well as medical professionals (both research and clinical) from across North America and around the world. With assistance from medical experts and organizations like the National Institutes of Health, the NFP offers quality educational materials and speaker presentations on fibromyalgia and related conditions to its membership and the general public.

NFP Mission Statement: Our Mission is to make medically-accurate, quality resource information on fibromyalgia (FM) available to our membership, health care professionals, and the community-at-large.

The NFP publishes a quarterly journal, Fibromyalgia Frontiers, which offers articles and information on diagnosis, treatment, research, and coping.



Fibromyalgia Coalition International (FCI)
5201 Johnson Dr., Ste. 210
Mission, KS 66305-2920
Phone: 913-384-4673
Fax: 913-384-8998
Email:

Fibromyalgia Coalition International (FCI), a 501(c)(3) nonprofit organization. Founded in 2000, their goal is to develop and execute programs dedicated to addressing the root causes of Fibromyalgia and Chronic Fatigue Syndrome through support groups, awareness outreach, annual conferences, continuing education for healthcare professionals and research efforts.

FCI Mission Statement: FCI's mission is to give hope to everyone suffering with Fibromyalgia and Chronic Fatigue Syndrome through extensive research and reporting of natural, proven and effective therapies that focus on the root causes.

The FCI publishes Fibromyalgia Solutions, a quarterly magazine that provides objective alternative health information and addresses underlying causes of FM and CFS.



PANDORA Org (Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy)
PANDORA Org, Inc.
3209 Charlesgate Ave. S.W.
Wyoming, MI 49509
Phone: 231-360-6830

PANDORA Org is a grassroots advocacy organization that promotes awareness of Fibromyalgia, ME/CFS, Gulf War illnesses (GWI), multiple chemical sensitivities (MCS) and chronic Lyme disease. PANDORA cooperates with other patient organizations to advocate for physician education, increased government-funded research and government policies that make advancement in improving patients' quality of life.


AFFTER (Advocates for Fibromyalgia Funding, Treatment, Education and Research)
P.O. Box 768
Libertyville, IL 60048-0768
Phone: 847-362-7807
Fax: 847-680-3922
Email:

AFFTER (Advocates for Fibromyalgia Funding, Treatment, Education and Research) is a 501(c)(3) nonprofit organization. Founded in 1999, their mission is to participate in activities that increase awareness and understanding of fibromyalgia in the public, medical community and patient population; and to organize charitable activities to specifically fund research and education that could lead to finding a cure or more effective treatments for fibromyalgia.


UNITED STATES - RESEARCH


National Fibromyalgia Research Association (NFRA)
P O Box 500
Salem, OR 97308
Phone: 503-315-7257
Fax: 503-315-7205
Email:

The National Fibromyalgia Research Association (NFRA) is a fibromyalgia activist organization. Founded in 1992, they are "dedicated to education, treatment and finding a cure for fibromyalgia." Much of their research focuses on Chiari malformation and cervical spinal cord stenosis.
 

American Fibromyalgia Syndrome Association, Inc. (AFSA)
7371 E Tanque Verde Rd
Tucson, AZ 85715
Phone: 520-733-1570
Fax: 520-290-5550
Email:

The American Fibromyalgia Syndrome Association's (AFSA) is a 501(c)(3) nonprofit charity. Formed in 1994, the AFSA's primary mission is "to fund superior quality, scientific studies on fibromyalgia." According to their website, over 90% of contributions to AFSA go directly to research.


INTERNATIONAL


International Myopain Society (IMS)
23607 Highway 99, Suite 2-C
Edmonds, WA 98026
Phone: 426-778-6162
Fax: 425-717-9588
Email:

The International MYOPAIN Society (IMS) is a nonprofit, international, interdisciplinary medical organization for research scientists, physicians, other health care professionals, individuals in training toward a health-related career, institutions, foundations, and commercial companies interested in exchanging ideas, conducting research, or learning more about soft tissue pain syndromes like myofascial pain syndrome and fibromyalgia syndrome.


CANADA


FM-CFS Canada
310-1500 Bank Street
Ottawa, Ontario K1H 1B8
Phone: 877-437-4673
Email:

FM-CFS Canada is a registered charity that focuses on educating the public, supporting patients and conducting research related to fibromyalgia and chronic fatigue syndrome.


AUSTRALIA


ME/CFS/FM Support Association Qld Inc.
St. Vincents Hospital
27 Scott Street
Toowoomba Qld 4350,
Australia
Phone: (07) 4632 8173 or (07) 4659 5239
Fax: (07) 4632 8173
Email:


EUROPE


European Network of Fibromyalgia Associations (ENFA)
Email:

The mission of ENFA is to promote fibromyalgia awareness to politicians, physicians, scientists and the general public on a European level.

Information and links to European Fibromyalgia Organizations can be found on the ENFA website for the following countries:

Belgium Focus asbl, Belgium VLFP vzw, Germany, The Netherlands, Spain, Greece / Crete, Norway, Sweden, Cyprus, Israel, Portugal, Sweden SRA, Denmark, Italy, Slovenia, United Kingdom



FRANCE


Association Française du Syndrome de Fatigue Chronique et de Fibromyalgie
Maison des Associations
72 rue Royale - 59000
LillePhone : 06 45 21 33 88
Email:


SPAIN


Fundación para la Fibromialgia y el Síndrome de Fatiga Crónica
Passeig Manuel Girona
3 33- BARCELONA (Spain)
Tel: +34-93- 280 46 26/605 85 25 91
Email:

AFIBROM
C / Clara del Rey, 4, 1 ° A - Esc CW28002
Madrid
Spain
Tel: +34 913567145


UNITED KINGDOM


Fibromyalgia Association UK (FMA UK)
Studio 3007
MileEnd Mill 12 Seedhill Road
Paisley PA1 1JS United Kingdom
Phone: 0844 826 9022 (Not for Support Calls)
National Helpline: 0844 887 2444
Fax: 0844 826 9033

The Fibromyalgia Association UK is a registered charity. It was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.
 

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