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Fibromyalgia & Family Impact Survey: Last Call to Reach 6,000 Responses!

  [ 61 votes ]   [ 4 Comments ] • May 29, 2012

[June 6 note: The survey is now closed and the final tally will be announced soon. Sincere thanks to all who contributed.]

If you have been diagnosed with fibromyalgia, and you haven't contributed to this survey yet, please help break the 6,000-response barrier! So far, 5,850 people have helped build a blockbuster database that the world's doctors won't be able to ignore. But it would be great to make one last push and put it over the top.

The deadline is Tuesday, June 5, and the data, plus selected personal comments, will be used to construct a journal article on fibromyalgia's true impact.

Just complete this confidential online survey - the Fibromyalgia and Family Impact Survey - at It was created by HealthCentral FM & ME/CFS Health Guide Karen Lee Richards and Dawn Marcus, MD, a leading US fibromyalgia specialist, and responses are completely anonymous.

About the Fibromyalgia and Family Impact Survey

Anyone who lives with fibromyalgia knows only too well that it invades every part of your life, including the most personal areas – your relationships with your family and friends.

In an effort to better understand the impact fibromyalgia has on personal relationships, Dawn Marcus, M.D., Professor in the Department of Anesthesiology at the University of Pittsburgh and author of the new book The Woman's Fibromyalgia Toolkit, is conducting a research study with individuals who have been diagnosed with fibromyalgia.

We want to learn more about your fibromyalgia. By spending a few minutes on our survey, you will help us learn more information about fibromyalgia that can benefit people with fibromyalgia and healthcare professionals.

This survey is completely anonymous. Your responses cannot be matched to any personal information or identifiers. The survey consists of up to 40 multiple-choice questions and should take approximately 25 minutes to complete. Thank you for your participation!

Simply click on the link below, or cut and paste the entire URL into your browser to access the survey:

- Karen Lee Richards

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Article Comments Post a Comment

Fibromyalgia from my own experience
Posted by: kewlmo-D
Apr 5, 2012
Hi I am a licensed massage therapist , have been for nine years . One commonality that I know of is that people with fibromyalgia are usually people who have to take care of other people , like there dad , mom , son etc .
One other commonality I found was not only did they have to take care of other people but at some point in there life they had to suppress a sickness in their body to take care of the particular person . For example they were working two jobs to survive so they could take care of there kid . They felt sick but didn't let it process in their body . Years later they ended up with fibromyalgia .
Just my experience and wanted to share .
Thank You
Justin A. Meyer
Reply Reply

Posting This On Our Support Community
Posted by: armando_abrero
Apr 13, 2012
This looks great Karen. I'm posting the link to the survey on our Living with Fibromyalgia support network for our members to participate. (

For those with FM, you may want to check out the site. It is one of 30+ patient support communities powered by our group, Ben's Friends (
Reply Reply

Posted by: IanH
May 29, 2012
Doesn't help when making these spurious psycho-social connections.
As a researcher in this field I know of no research making this correlation. I have 14 cases of ME with FM and FM and none of these people fit that bill.

However the stress of psycho-social interactions will logically make the symptoms worse.
Reply Reply

Caregiving and FM
Posted by: mybest
May 30, 2012

I agree. Caregiving and FM sometimes overlap, but this is because many people are caregivers. Because caregivers generally struggle to also care for themselves, it is important to look at how caregiving can impact people with FM, too.
Reply Reply

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