Activate Now
ProHealth fibromyalgia Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

Chronic Fatigue Syndrome, Fibromyalgia and Mitchondrial Disorders: A Comparison Plus the MitoQ Trial...

Aromatherapy Diffusers For Fibromyalgia Support

Dr. Teitelbaum's 3 Steps to Fibromyalgia Pain Relief - Part 1: Understanding Fibromyalgia Pain

Fibromyalgia and Food: Things You Need to Know This Holiday Season

Are All the "Feel-Good" Pathways Blocked in Fibromyalgia and Chronic Fatigue Syndrome?

An Interview with Ken McKim: Educating the public about chronic illness

5 Things I've Learned About Chronic Illness Through Mindfulness

Solving the mysteries of fibromyalgia could help patients break free

Amazing Fibromyalgia Health Benefits from a Tiny Superfood - Including Recipe Ideas!

Cellular Havoc: Zeroing In On The Sleep Problems in Fibromyalgia?

Print Page
Email Article

ME/CFS Patients: Your email by Dec 6 can convince FDA we need real treatments

  [ 11 votes ]   [ Discuss This Article ] • November 30, 2012

Note: Midnight Dec 6 was the deadline for patient comments to be considered in the FDA's Dec 20 public review of Ampligen as a treatment for ME/CFS. Now, patients & advocates are invited to view the live webcast of this public review on Dec 20, 8 am to 5 pm Eastern Time. Oral presentations are scheduled for 1:00 pm to 2:30 pm Eastern Time. The FDA indicates it will post details, including the web address for the webcast and background material for the meeting, on Dec 18 at this FDA site: The FDA also plans to archive the webcast for later public viewing.


Following is a call to action from a team of ME/CFS patient activists, led by Robert Miller.

URGENT: ME/CFS patient "ACTION" needed by December 6
(A Call To Impact Our (ME/CFS) Nation)

For All ME/CFS Patients, Families and Friends:

On December 20, 2012, ME/CFS patients have the chance to be involved with approving a treatment specifically for CFS/ME. Ampligen patients will testify to an FDA Advisory Committee.

Whether you’ve been on Ampligen or not, or you wish to try it or not - does not matter; the fact is that once one drug gets approved, other drugs will come along and so will research dollars.

Ampligen approval will also legitimize CFS/ME in the minds of the Medical Community. This potential approval is a Game Changer for our Patients, Family & Friends.

Be a part of history with your "A C T I O N". Send in your email by December 6, to let the FDA Advisory Committee know what it’s like to live with ME/CFS daily and that real treatment is needed.

Send To: Email address:
Subject line: Treatment for Chronic Fatigue Syndrome - Ampligen

To the Advisory Committee Reviewing Ampligen:

(Please Cc: emails to Robert Miller at:


Why is this about Ampligen?
This FDA meeting is part of the process to approve a drug developed by Hemispherx, which has remained committed to the ME/CFS community for more than 2 decades and has invested more than 500 million dollars. Our advocacy community will update you when other significant meetings are coming up, including FDA, CDC and NIH…

Right Now - We Need You to tell the Advisory Committee it’s “your choice” to access Ampligen or not! If denied, it could be years for other treatments to get to this stage. Ampligen is to our community what AZT was for AIDS. It’s just the start of treatments to come. Your Support = Power. (Also note the FDA's Public Ampligen review will be webcast live on Dec 20, 8 am to 5 pm Eastern Time. Details will be posted on Dec 18 at this FDA site:



(Please Cc: emails to Robert Miller at:

Send To: Email address:
Subject line:  Treatment for Chronic Fatigue Syndrome - Ampligen

To the Advisory Committee Reviewing Ampligen:

My name is _____________, I have had CFS for more than ___ years. Before I became ill I had a life that was__ your story here__. My life since having CFS has been __your story here_.

After 3 decades, we need treatment. We deserve treatment and the ability to access it. Just like AZT for AIDS or Chemo for Cancer or Tysarbri for MS or Benlysta for Lupus. We are not second class patients.

The Reality of CFS: It is Serious and Life Threatening. According to CDC studies, CFS is comparable to MS, AIDS, Lupus, Rheumatoid Arthritis, Heart Disease, Renal Failure, COPD and Chemotherapy. CFS/ME affects every moment of my life. We’ve seen and heard of patients responding to Ampligen. Give patients hope by approving Ampligen. We want our lives back.

Thank you,
Your full name
Your address

Post a Comment

Featured Products From the ProHealth Store
B-12 Extreme™ Fibro Freedom™ Energy NADH™ 12.5mg

Looking for Vitamins, Herbs and Supplements?
Search the ProHealth Store for Hundreds of Natural Health Products

Article Comments

Be the first to comment on this article!

Post a Comment

Free Chronic Fatigue Syndrome and Fibromyalgia Newsletters
Subscribe to
Subscribe Now!
Receive up-to-date ME/CFS, Fibromyalgia & Lyme Disease treatment and research news
 Privacy Guaranteed  |  View Archives

Repair Damaged Mitochondria and Reduce Fatigue Up to 45%

Featured Products

Fibro Freedom™ Fibro Freedom™
Soothes, strengthens & revitalizes
B-12 Extreme™ B-12 Extreme™
The Most Potent Vitamin B-12 on Earth
FibroSleep™ FibroSleep™
The All-in-One Natural Sleep Aid
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
Guaifenesin FA™ Guaifenesin FA™
Helps the Body Eliminate Excess Calcium and Phosphates

Natural Remedies

The Brain Boosting and Fatigue Fighting B-12 The Brain Boosting and Fatigue Fighting B-12
Coconut Oil - Healthy Gifts from the 'Tree of Life' Coconut Oil - Healthy Gifts from the 'Tree of Life'
Herbal Inflammation Management for Whole Body Health Herbal Inflammation Management for Whole Body Health
Soothe, Heal and Regulate Your Digestive System with Nutrient-Rich Aloe Vera Soothe, Heal and Regulate Your Digestive System with Nutrient-Rich Aloe Vera
Aches and Pains? A Simple Solution You'll Love Aches and Pains? A Simple Solution You'll Love

What is Fibromyalgia?
Fibromyalgia Diagnosis
Fibromyalgia Symptoms
Fibromyalgia Causes
Fibromyalgia Treatments
Fibromyalgia Diet
Fibromyalgia Medications
M.E. & CFS
What is M.E./CFS?
M.E./CFS Diagnosis
M.E./CFS Symptoms
M.E./CFS Causes
M.E./CFS Treatments
M.E./CFS Diet
M.E./CFS Medications
What is Lyme Disease?
Lyme Disease Diagnosis
Lyme Disease Symptoms
Lyme Disease Causes
Lyme Disease Treatments
Lyme Disease Diet
Lyme Disease Medications
M.E. & CFS
Lyme Disease
General Health
ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus
Credit Card Processing