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OCT 12 - A LIVE CHAT Q&A with DR. DANIEL J. CLAUW, MD, to be held in the chat room from 12 noon to 1 pm PST (3-4 EST)

  [ 636 votes ]   [ 4 Comments ] • September 28, 2007

Dr. Daniel J. Clauw, MD, is one of the world's leading authorites on the mechanisms and most effective treatments of Fibromyalgia, ME/CFS, Gulf War Illness, and other 'overlapping illnesses'.

If you have questions and want advice about ME/CFS and FM symptoms, treatments, or new studies, you can ask Dr. Clauw TODAY, Friday, October 12, from 12 noon to 1 pm Pacific Time (3-4 Eastern) in the Chat Room. If you're not yet registered to chat you can do so now - it takes but a moment. Or you can log in as a guest 10 minutes before the chat at

Dr. Clauw is Professor of Medicine in the Division of Rheumatology at the University of Michigan, where he directs the Chronic Pain and Fatigue Research Center and the Michigan Institute for Clinical and Health Research, which creates University/community partnerships for clinical research and education, and will administer a new $55 million grant from the NIH. On a national level, Dr. Clauw leads a multidisciplinary team of researchers dedicated to studying chronic pain and fatigue syndromes at academic and government medical centers across the U.S. All of this work is focused on translating positive findings to effective interventions and physician education as fast as possible.

Read About Dr. Clauw's Advice to Patients and Doctors, His Treatment Protocol,
and Some of His Latest Research

n "Golden Rules for Chronic Fatigue Syndrome and Fibromyalgia Patients" – simple but profound guidelines for patient self-management that Dr. Clauw has distilled from years of clinical experience.

n “Daniel J. Clauw, MD, on the Effective Treatment of Fibromyalgia” – Dr. Clauw outlines his FM treatment protocol and vision of the future.

n “Dr. Clauw’s Grand Rounds Update on Fibromyalgia Science & Theory” – a summary of new Fibromyalgia research-based findings, theories, and treatments that Dr. Clauw published recently in the Journal of Clinical Rheumatology to help bring physicians up to speed. Concepts include:

  • FM as part of a continuum of pain and somatic syndromes;

  • The misdiagnosis of many male patients;

  • The pain sensitivity “bell curve”;

  • The “underpublicized” evidence of strong genetic underpinnings;

  • Profiles of three notable FM patient “subgroups” likely to represent different therapeutic needs; and more.

  • The Co-Cure Listserv library offers a pdf file of the full text article, titled – “Fibromyalgia: Update on Mechanisms and Management.”

    n “How do we know that the pain in Fibromyalgia is ‘real’?” – a widely publicized article by Dr. Clauw and his colleague Richard E. Harris, PhD, citing more than 44 studies demonstrating genetic markers associated with increased risk of pain disorders, imaging studies of abnormal pain-related brain activation, and more - to document the reality of Fibromyalgia pain. See a summary at

    n "Why don't painkillers work for people with Fibromyalgia? Research may explain why common drugs don't help." - A PET scan study by Dr. Clauw and colleagues, just published in The Journal of Neuroscience, reports they found lower levels of natural mu-opioids ('mu' stands for morphine) in the brains of FM patients, which were associated with heightened pain perception, compared with healthy controls. The reason appears to be reduced opioid receptor availability, and may explain why opiate-based pain drugs are less effective in Fibromyalgia patients. See an abstract of the article, "Decreased central mu-opiod receptor availability in Fibromyalgia," at

    n "Characteristic electron microsopic findings in the skin of patients with Fibromyalgia - Preliminary study" - An electro microscopic study of FM patients' skin identified unusual patterns in nerve fibers and insulating cells vs. controls that might contribute to or result from FM patients' lower pain threshold.

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    Article Comments Post a Comment

    Dr Clauw
    Posted by: slowdreamer
    Oct 3, 2007
    I am wondering if Dr Clauw has differentiated significantly between CFIDS and Fibro in his treatments... I find the blanket recommendation for CBT and GET troubling!
    Reply Reply

    Alternative treatments
    Posted by: birdlady8080
    Oct 10, 2007
    I have read about the many vitamins that are identified to treat the fibro symptoms. I have bought them all and I am going to many doctors weekly, all for different things. Has anyone addressed simplifying the treatments so we can get back to our life?
    Reply Reply

    chat insanity
    Posted by: birdlady8080
    Oct 10, 2007
    How can we follow the chat trail on the chat room when there is so much activity? How can we manage getting our question down and locate our answer? That is a very busy place to try to get real help. Do you have any advise?
    Reply Reply

    United WE Stand Divided WE Fall/ lets BOND FINALLY
    Posted by: KerryMyGirl
    Oct 12, 2007
    This is just wrong name for neuro-endocrine D. The picture is much bigger. Most people test positive for EBV & mycoplasma I feel the mycoplasma root of tree FM/ME/Cfids/MS/ALS/RA(recently found HIV meds work for it)/ Parkinson's, many of immune illnesses all start out with flu like & continue on like that. Timing all these really grew 10=20 yrs. ago. Now some out control This is No diff. than cancer 100 diff names for. Why we all respond diff. to treatment/ depending on what turn our branch of tree was. Good clue is GulF War Syndrome/men who never touched their ground. Became ill & took home to fam. & new babies Look at this way not that many diff illness. Most come under Bacterial or Viral Branch out from their We all carry staph/strep/cancer cells/ just depends if trigger comes along. Same with us anyone bit by anything, by now carries. Or why do we test pos. for EBV/CMV/etc. Just goes to your weak area after major stress,illness,accident,etc. When immune weakened finally can get in. Well, documented left out many yrs. ago/Now become stealth Anything bites me with as sick as I am all co-infect./including last mosquito bite/got encephalitis/ then never ending nausea, prob. turned erichliosis. Mine started after many bites/meningitis/or lyme never well again. DXed with every immune illness/WHY???Hmmmm Severe FM+++++ every co-infect. left go way tooo long. Also many of us have RLS/ now lining to another form Parkinson's which we all know we have dopamine problem.I have won scholarship for my work,15 yrs. research worked with the Lyme Guru/ & another 3 yrs. at FM pain clinic. Saw 100`s pts. Till too sick. Was too meet & dine with all top Drs. around world too ill to make. Know bit of what I say is truth. They say will be another 17yrs. though. So I fight for all who have died of, with no voice & our kids,grandkids with little en-gerny & sense humor all is about left of a vibrant person without treatment. Take Care My Fellow Friends..... Wait for response
    Reply Reply

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