ProHealth fibromyalgia Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help

|
|
|

Trending News

Piriformis Syndrome in Fibromyalgia

Sensory Distress: The Other Side of Fibromyalgia

Patient Harm: The Facts and the Effects of Fibromyalgia Diagnostic Criteria

Small Fiber Neuropathy Fibromyalgia Studies Mount: But Does SFN Cause Pain in FM?

The Functional Capacity Evaluation (FCE) and Your Disability Insurance Benefits

Study Finds Serotonin Decreases Sensitivity to Pain

SURVEY RESULTS: Cognitive Impairment

Novel Fibromyalgia Treatment Shows Promise in Study

Connectivity Between Brain Regions May Predict Fibromyalgia Drug Treatment Response

Fibromyalgia-Friendly Turkey Day Recipe Tips and Swaps

 
Print Page
Email Article

CFS Solutions of West Michigan Brings PANDORA on Board; Takes Its Name

  [ 6 votes ]   [ Discuss This Article ]
www.ProHealth.com • September 6, 2012


CFS Solutions of West Michigan has brought the formerly Florida-based NeuroEndocrineImmune patient advocacy organization, PANDORA,* on board in Michigan and has adopted the PANDORA name and its broader disease focus.

As of September 1, the new PANDORA entity had settled into headquarters outside Grand Rapids (Wyoming, MI).

Regional Activity Plus a Broader Agenda

The new melded nonprofit organization will include a “CFS Solutions” program of regional patient group classes, meetings, and social events, according to President & Director Lori Chapo-Kroger, who has taken the reins from retiring PANDORA Founder Marly Silverman. News about these west Michigan area activities & events for those with chronic illness can be found at http://www.CFSsolutions.org. Or phone 231-360-6830.

The new PANDORA site (http://p-a-n-d-o-r-a.org) as before features information about NeuroEndocrineImmune disorders (aka NEIDs) and the organization’s continuing NEID patient advocacy, education and support projects.

NEIDs are debilitating diseases that include chronic fatigue syndrome (also referred to as myalgic encephalomyelitis or ME/CFS), but also fibromyalgia, chronic Lyme disease, Gulf War illness and multiple chemical sensitivities. All are underserved locally, nationally and globally in terms of research funding and access to knowledgeable medical care.

“PANDORA’s name is well-known for improving patient quality of life through advocacy, education and direct assistance,” says Lori Chapo-Kroger. “I plan to continue that tradition.”

Combined Leadership, Grassroots Support & Agendas

PANDORA now has a new set of officers, directors and volunteers, which are a combination of former PANDORA and CFS Solutions of West Michigan (now CFS Solutions) personnel.

For years, both of the merging organizations have sent representatives to the congressionally mandated CFS Advisory Committee in Washington D.C.

And both organizations envision creating centers for specialized care for NEIDs patients, because these conditions overlap, have similar symptoms and involve similar pathophysiologies.

Work on these newly unified goals will continue, says Lori.

Marly’s Blessing

“As I say my final good-byes to PANDORA, I am excited that a new, young and vibrant team is in place, ready to address the issues affecting the quality of life of individuals with NEI diseases,” says PANDORA founder Marly Silverman.

“I believe our organization will fill a need in Michigan and will continue to fill its niche nationally, by creating awareness and promoting change that leads to permanent and viable solutions and restoring quality of life to those stricken with NEI diseases.

“I congratulate Lori Chapo-Kroger as the new president of PANDORA, and I wish her continued success.”

__

* P.A.N.D.O.R.A. stands for Patient Alliance for NeuroEndocrineImmune Disorders Organization for Research and Advocacy Inc.

Source: Based on PANDORA press release, Sep 6, 2012



Please Discuss This Article:   Post a Comment 



[ Be the first to comment on this article ]




 
Free Chronic Fatigue Syndrome and Fibromyalgia Newsletters
Subscribe to
Our FREE
Newsletter
Subscribe Now!
Receive up-to-date ME/CFS & Fibromyalgia treatment and research news
 Privacy Guaranteed  |  View Archives

Save on Immune Support Supplements

Featured Products

FibroSleep™ by ProHealth FibroSleep™ by ProHealth
The All-in-One Natural Sleep Aid
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
Optimized Curcumin Longvida® by ProHealth Optimized Curcumin Longvida® by ProHealth
Supports Cognition, Memory & Overall Health
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
B-12 Extreme™ B-12 Extreme™
The Most Potent Vitamin B-12 on Earth

Natural Remedies

Three-Step Strategy to Reverse Mitochondrial Aging Three-Step Strategy to Reverse Mitochondrial Aging
A Breakthrough for Mitochondrial Dysfunction A Breakthrough for Mitochondrial Dysfunction
Repair Damaged Mitochondria and Reduce Fatigue Up to 45% Repair Damaged Mitochondria and Reduce Fatigue Up to 45%
The Revolutionary 'Good Fat' That Promotes Heart, Brain, Bone and Joint Health The Revolutionary 'Good Fat' That Promotes Heart, Brain, Bone and Joint Health
Shoo Pain, Don't Bother Me - Top 10 Nutrients to Take Back Your Life Shoo Pain, Don't Bother Me - Top 10 Nutrients to Take Back Your Life

FIBROMYALGIA RESOURCES
What is Fibromyalgia?
Fibromyalgia 101
Fibromyalgia Symptoms
Fibromyalgia Treatments
| CFS RESOURCES
What is CFS?
ME/CFS 101
ME/CFS Symptoms
ME/CFS Treatments
| FORUMS
Fibromyalgia
ME/CFS
ADVANCED MEDICAL LABS
WHOLESALE  |  AFFILIATES
GUARANTEE
CONTACT US
PRIVACY
RSS
SITE MAP
ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus
Credit Card Processing