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Hope for Karina Hansen With Help From Save4Children

  [ 8 votes ]   [ 1 Comment ]
By Save4Children • www.ProHealth.com • August 26, 2015


Hope for Karina Hansen With Help From Save4Children
Editor's Comment: Karina Hansen, a severe ME patient, was forcibly removed from her home in 2013 and placed in a psychiatric ward - much like the case of Justina Pelletier. Her condition has been steadily deteriorating. 

You can watch two videos about Karina made in 2013:

Karina Hansen and ME 

Karina Hansen Update June 2013 (Myalgic Encephalomyelitis)

Reprinted with the kind permission of ME Global Chronicle
.
 
Save4Children is a charity created by the editors of the ME Global Chronicle to help the parents of children who have been forced into psychiatric wards by authorities.
 
The charity works within the legal system to try to get the children released and gives financial aid to parents who are unable to pay for legal assistance. They helped in Joanne’s [a German girl with severe ME ] case and Joanne has been allowed to go home. Now they would like to help Karina Hansen
 
Karina is a severely-ill ME patient who has been held in a hospital against her will for 2 ½ years. Her parents are still not allowed to see her. Her condition is worse now than when she was forcibly removed in 2013.
 
She can no longer speak in full sentences. She sits in a wheelchair and mumbles to herself. She is allowed to wear her earplugs as she becomes very distressed when the nurses try to take them from her.
 
When she was first taken, she actively resisted treatment and was therefore given the diagnosis of Pervasive Refusal Syndrome. This is the same diagnosis as Joanne was given. Now Karina no longer resists treatment and the psychiatrists claim that this is improvement.
 
Karina has never resisted eating, which is a core symptom of PRS, so of course this diagnosis is completely ridiculous. Also, Karina is a young adult and PRS is exclusively a pediatric diagnosis.
 
Although it does not look good for Karina at the moment, the fact that “Joanne” has been released gives us hope. If you would like to help, please donate to Save4Children at: http://bit.ly/1NAgGFF and click on “Doneer nu”
 
The money that is donated will be given to a volunteer non-profit civil rights group called The Citizen’s Rights Movement (Borgeretsbevægelse) that has taken up Karina’s case. CRM fights for cases that are examples of principle human rights violations and they are finding many violations in Karina’s case.
 
Donations you transfer specifically for Karina’s case will be solely spent on her case.
 
The CRM documented that many laws have been broken and are preparing cases in several branches of the Danish court system. Lawyer, Jakob Skjoldan, is a founding member of CRM and has already written two  letters to the Minister of Health asking that the violations be looked into. The ME Association of Denmark and Karina’s parents are co-signers of these letters.
 
The CRM is also investigating whether Karina’s state-appointed guardian, Kaj Stendorf, has a conflict of interest and should be declared ineligible to be her guardian. Kaj Stendorf was the chief of police in the city where Karina lived (Holstebro) when she was forcibly removed on Feb 12, 2013.
 
He retired shortly afterwards and on May 29, 2013, he was appointed as her guardian. He therefore has a personal interest in the case as it would be very bad for him if the actions of the Holstebro police are found to be illegal. And the CRM believes that many laws were broken that day.
 
The CRM is also investigating whether Karina’s state-appointed lawyer, Anne Grete Kampmann worked for Holstebro county before she was appointed as Karina’s lawyer. This would also constitute a conflict of interest.
 
A court date has been set for Aug. 31, 2015 to decide if Stendorf should be appointed as Karina’s permanent guardian. Lawyer Keld Parsberg is representing the family for this court date, but the CRM hopes to get this delayed until the question of eligibility can be investigated.
 
The court in Holstebro has refused to discuss any other questions about the case at the upcoming August hearing. They will not discuss if it was legal to remove her or to hold and treat her against her will. However, these issues are being investigated by the CRM.
 
This case is important to all ME patients. If the Danish state is allowed to forcibly remove an ME patient, take away her ME diagnosis, replace it with a psychiatric one and then experiment on her with unproven research methods, it leaves the door wide open for it to happen to other ME patients worldwide.
 
Until now, the CRM has been run on volunteer help, but the volunteers tell me that there is a great need to hire a lawyer that will examine all the paperwork they have collected and help them focus future work. All donations will go directly to Karina’s case. So please donate to Save4children to help us get Karina released and to make sure that this horrible injustice will not happen to other patients.
 
Donations will be collected at the S4C site here.

Danes can donate directly to Karina’s case here.
 
Please write Karina on the donation
 
Information about Karina and the case can be found in this and future issues of the ME Global Chronicle and at these sites:

- In English: Justice for Karina Hansen - find info under notes.

- The Citizen’s Rights Movement – documents in Danish
 
New documents will be added as they become available.
 
Submitted by Rebecca Hansen



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Children in the US are misdiagnosed too
Posted by: akr500
Sep 16, 2015
When I read about Karina, it bought back so many bad memories and heartache that I cried. It is stupidifying to go to so many doctors who simply don't know anything about CFS or fibro, yet, be wholly dependent on them.

It is criminal for parents to have their sick children taken from them due to the doctors ignorance! No family should ever experience that. My experience was harrowing even with legal and medical defense.

Our story:

My daughter, who recently enrolled in college (huge milestone!), was sick for 8 years until the right combination of doctors got her on a treatment path that helps her function.

At 10 years old (2008), she was diagnosed with re-occuring repsiratory infections and juvenile idiopathic pain and told to exercise. She was having muscle spasms so severe that she could would double over in pain, unable to move. She had many other symptoms, as well, including intolerable fatigue. With fatigue and pain she could not participate in school, climb stairs much less exercise! She tried and got sicker every time. I got a 504 accommodation plan in place with the school and kept it updated through the years.

As a divorced, single mother with very little support, I studied and sought out doctors who could help. When none did, I took her to Dr. Charles Jones in Connecticut (we lived in KY) who treated her for lyme disease. My daughter had removed a tick embeded in her scalp about a month before the symptoms started. However, her condition didn't resolve completely. Back in Kentucky, we went to so many doctors, specialists and integrative medicine experts, I've lost count. Medicial bills were staggering.

Finally, in Decemeber, 2012, she broke out in a red rash that everyone could see was REAL. At that time, she met the pediatrician who helped change her life. I'd taken her to her regular pediatrician the day before who dismissed the rash as something that would go away -- despite, her red, swollen throat.

I called the new pediatrician the next morning and asked the nurse if he believed in lyme disase. She was seen that day. At that time, even the infectious disease doctors would not entertain lyme disease as a factor because it didn't "exist in Kentucky".

The new peditrician diagnosed my daughter as having acute strep and mononucleous. He continued to treat chronic mono after the acute phase due to very high Epstein Barr titers. He put her on antibiotics as well as anti-virals. She began to improve some.

By February of 2014 this pediatrician had collected blood-work/documented treatment for nearly two years. She also remained a patient of Dr. Jones. The peditrician insisted that I take her back to Dr. Jones for follow-up. Dr. Jones looked at the new chart and made a call to an immunologist while we sat with him in his office and sent us there immediately.

Her records showed that her B-cells were consistently low.

I brought her home to find an immunologist as the one that Dr. Jones referred to only took cash and I couldn't afford to even have her seen.

However, I knew what kind of doctor she had to see and her pediatrican sent her to an immunologist whom he'd studied with at University of Kentucky. This doctor did extensive tests and diagnosed her with Common Variable Immune Deficiency (CVID). Now, she self-infuses immunoglobins once a week. Her health improved dramatically although she still suffers from pain, fatigue and frequent infections -- she can function, with accommodations, well enough to attend college.

In 8 years of searching, we lived less than 5 miles away from the immunologist, yet wasted so much time and money to get there!

Blaming Parents:

From the beginning, her father did not believe she was sick and refused to help pay medical bills. He was an alcoholic so we were in court several times regarding visitation and other issues, including medical payments. At one point, a court-ordered psychiaist kept her in "CBT treatment" for 18 months. This woman suggested to the judge that since my daughter had not responded to "treatment" then it must be Munchausen by Proxy. I was incredibly frightened and angry. The judge replied that it was highly unlikely to be Munchausen by Proxy but allowed the psychiaist to have access to all of my medical records!

About me:

After my daughter was diagnosed with primary immune deficiency (CVID), the immunologist tested me. I had been increasingly sick. Since I was teenager I had constant strep throat as well as hypothyroid. I had been diagnosed with fibromyalia, CFS (ME), migraine, at various times in my life. I saw my physicians for those conditions but because I was sick so often, I'd go to a walk-in clinic that I could afford to treat re-occuring infections. I couldn't afford any more medical and legal bills.

However, the immunologist diagnosed me with low T and B cells, the immune system's natural killer cells. He said, "Mom, you're twice as sick."

I was started on immunogloblin infusions, self-infusing twice a week. It helps but I only have so many "spoons of energy" each day, if I push too hard, I wind up in pain and exhaustion that takes days to recover. It is much better than weeks to recover! The immunologist theorizes that my daughter inherited the dyfunctional B-cell deficiency from me.

I don't think infusions are the final answer. But, we've both improved so greatly that I firmly believe that the immune system and B-cells are involved in treating CFS/ME as well as fibromyalgia.

I'm thankful I had the resources I did.

I'm not wealthy. Getting as far as I did finding medical answeres took all I had, financially. I don't regret it.

Currently:

Today, my daughter has a chance of a healthier future. At 18, She has learned to be a vocal advocate for herself. I could not be more grateful in every way.

She chose to attend college in a different state. The doctor-go-round has begun again. But, she has medical evidence and is finding the right physicians.

I'm watchful for developing medicines. And continue to be vigilant as treatments are found.

None of us should have to settle to live diminished lives because we have diagnoses without cures.

Children should never have to suffer due to idiots with physican's licenses and power that make their lives worse.

I want Karina to get all she needs to get the correct medical care and recover from her doctors' abuse.

It is intolerable that children in the US and other countries are mis-diangnosed and are made to blame! It is nightmar-ish.
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