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Medication and the Fibromyalgia Patient-Doctor Relationship

  [ 5 votes ]   [ 1 Comment ] • July 7, 2014

Medication and the patient-doctor relationship: a qualitative study with patients suffering from fibromyalgia.

By C. Durif-Bruckert, P. Roux and H. Rousset


BACKGROUND: Fibromyalgia is characterized by a diffuse and predominantly axial and chronic pain, for which there is no explicit rationale for treatment options.

OBJECTIVE: This qualitative study aims to understand the medication experience of patients with fibromyalgia and their relationship with the doctors derived from treatment negotiation.

DESIGN: A qualitative approach was used, based on interviews with patients.

SETTING AND PARTICIPANTS: Semi-structured interviews were held in a public hospital, with 35 patients diagnosed with fibromyalgia. Qualitative content analysis was performed.

RESULTS: The first axis is centred on the unsuccessful quest for an effective treatment for pain and the feeling of dismissal of patients, who are in search of validation and recognition. The second part of the accounts explains the medication adjustments and the search for collaboration. Developing a model of partnership with the doctor enables the patients to shape their own illness, through the medication.

DISCUSSION: It is by mediating their relationship with medication that patients gain access to this state of co-expertise and that they put sense into the collaboration they develop with their doctors. Through this collaboration, useful drugs are identified and adjusted to treat the pain.

© 2014 John Wiley & Sons Ltd.

Source: Health Expectations, July 3, 2014. By C. Durif-Bruckert, P. Roux and H. Rousset. Social Psychology Research Group, EA 4163, Psychology Department, University of Lyon (Lyon 2), Bron, France.

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The Write up on Fibromyalgia
Posted by: Majinja
Jul 17, 2014
I was looking for much more than just the general speel on Fibro. I've had Fibro for 25 years. I'm tired of the 'generalaties' given to me by my doctors. No one, NO ONE, has any answers. I'm sick and tired of being sick and tired. I'm 62 and I want to enjoy what life I've got left. At the rate I'm going, there is not one thing in my life left for me to enjoy.

All activities cease during a Fibro flare. The only thing I've refused to give up is my one class at the University I'm taking right now. I'm going even though it takes me two days to get over a two hour class. I've even managed to do the required research and homework. I'm very proud of this small accomplishment, but it is a major struggle. I've got 3 classes left. I'm determined to finish this class. It is crucial for the future of my being able to turn out writing that will sell. At least this is one thing I can do, even in the middle of a Fibro flare. I can think up story lines and type in story line notes. Not easy, but easier than writing. Later, I go to these notes, and I'm always pleasantly surprised at the good ideas I come up with when all I've got time to do IS think. And, I THINK to try too get my mind off the pain and tiredness. At times I go to sleep thinking of story lines and plots and my dreams finish the plot! Not kidding!

I just want to be able to wear clothes again. It hurts too much to wear anything other than my silky PJ's.

I am seeing a Pain Management Doctor. What a joke. He shoves Hydrocodone and Robaxine at me an makes an appointment for the next month. When I complain about a painful area, he takes an X-ray. I do have arthritis, but X-rays don't help Fibro. Actually, the most times the hydrocodone doesn't always help either. I take B-12 injections, but doc will only let me take one a month. I want to take 2 a month, but he's resistant to let me do that and will not explain why.

I would like to know if a B-12 shot every 2nd week would be harmful. But, I can't find anyone who will comment one way or another!
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