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From Our Readers: Comments & Suggestions – 7/30/2014

  [ 1 vote ]   [ Discuss This Article ] • July 30, 2014

From Our Readers: Comments & Suggestions – 7/30/2014
Great Video!

Re: VIDEO: What It Feels Like to Live with Fibro

What a great video. It nailed what we all go through. The guilt and depression are sometimes harder for me than the pain. I always feel like I need to describe the pain so everyone will understand and my having to lay down so often during a day is validated. On my "good" days I tend to overdo because I get so excited that I feel like doing anything. I can't explain how great sites like this one give me encouragement that I'm not in this alone. Thank you fibro family! – jonesgirl_33

That was great to see. I had forgotten all the horrid things we suffer from with f.m.s. I was feeling like I was going mad but after watching this I can focus again. There were symptoms that go with fibro I never realised did. So thanks for that. We can feel we are lazy and its not true. Blaming fibro is not a cop out – its fibromyalgia. – Irene


Cymbalta Withdrawal

Re: Cymbalta Warning: Discontinuing May Result in Severe Withdrawal Symptoms

I went to my rheumatologist today to discuss the next steps as in the past 4 months I have weaned off of 100mg Pristiq and was switched to 60 of Cymbalta for my fibromyalgia. After two weeks on Cymbalta I did not like the side effects and she had me wean off by taking every other day then every two days then three days then none. In speaking with her of the terrible side effects, suicidal thoughts, extreme anger and stomach issues, etc., she told me I needed a psychologist as I have severe mental issues and NEVER had she EVER heard anyone have these symptoms and that I was probably Bi-Polar and should switch from my therapist to a psychologist immediately. She suggested I find a psychologist immediately as must have a severe imbalance in my brain that would cause these side effects and there was no way these drugs caused me to feel that way. Needless to say, I am not going back there. So happy I found this page as I know I am not bi-polar or insane and think my doctor was way out of line. Thoughts? – Drifter110

Editor's comment: Although Cymbalta has been on the market for 10 years, I'm finding many doctors are just beginning to learn that it can have such severe withdrawal symptoms. However, that is no excuse for the way your doctor treated you. All she would have had to do is Google 'Cymbalta withdrawal' to discover your experience is not that unusual. In fact, one of the top links that shows up is a document issued by the FDA because of all the complaints they received. They even gave what you experienced an official name – Cymbalta Discontinuation Syndrome. You can read and download a copy of the FDA document at I hope you're able to find a more understanding doctor.


Abuse a Factor in Fibromyalgia?

Re: Fibromyalgia “Is All in Your Head” and Other Abusive Nonesense

I'm not even sure my son believes. Pretty sure my daughter does but both kids ignore it like it isn't really a problem. I finally just un-friended my late husbands brother because he not only didn't believe but made disparaging remarks at every opportunity. I also quit telling anyone who didn't have a "need to know" because I kept getting "remarks" that indicated skepticism at the very least. And don't get me started on the doctors who can't even bring themselves to say fibromyalgia. As to the history of abuse, I've had them all but never even thought that the abuse was a factor. I'd be interested in learning why that happens. Fibromyalgia is very here and now and real but the abuse happened in the past and, at least in my case, had very little physical effect. – hamhock62

Editor's comment: I'm not an expert on abuse issues but I do know that any kind of abuse causes stress and prolonged stress can have a serious impact on our health, even though we may not realize it at the time. In the case of fibromyalgia, it can trigger FM and/or make your symptoms worse. I also think that abuse – whether it's physical or emotional – leaves emotional scars that we may not even be aware of. I know personally, if I'm under a lot of stress for any period of time, it will almost always result in a flare. Often I don't connect the two things right away, but when I look back, I can see the cause and effect. I hope that helps explain a little more about how and why abuse can affect FM.


Misdiagnosis or Additional Diagnosis?

Re: Is Hyperparathyroidism Sometimes Misdiagnosed as Fibromyalgia?

While this is a good discovery and a wise recommendation, the idea that the FM is a wrong diagnosis does not add up.

If the general population incidence of hyperParathyroidism is less the 0.1 percent, then why is it 10% in the FM population? Are they just being wrongly diagnosed or is the immune system disease from which they are suffering causing a higher incidence of hyperParathyroidism?

It was recently discovered that a significant proportion of people with ME have a high incidence of low GFR, does this mean these people are being wrongly diagnosed with ME but should be diagnosed with CKD?

While hyperParathyroidism must be diagnosed and treated, it does not mean that the FM is not present or is independent of the hyperParathyroidism.

We see this error time and time again in ME/CFS/FM. If a known pathology is found then the conclusion is that there has been a "wrong diagnosis" and the ME/CFS/FM is not real or present.

Those people with ME/CFS/FM have a chronic disease and that disease may render those people more likely to get other diseases. What is needed is to be on guard for those diseases occurring not just dismiss all symptoms as just a part of the ME/CFS/FM - this could be a fatal error. – IanH

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