ProHealth health Vitamin and Natural Supplement Store and Health
Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help

|
|
|
|

Trending News

Missing protein explains link between obesity, diabetes

Single tick bite can pack double pathogen punch

Fish oil use associated with brain volume preservation

The Brain Boosting and Fatigue Fighting B-12

Genetic basis for distinct type of autism uncovered

Higher vitamin D levels associated with better cancer prognosis

Genetic study suggests causal link between vitamin D deficiency and hypertension

Unsuspected aspect of immune regulation revealed: Role of B cells

Explaining 'Healthy' Obesity

IBS, Crohn’s Disease, Colitis, and Other Digestive Disorders

 
Print Page
Email Article

Rivka’s Red Cross XMRV e-Mail & Video Campaign Scores a Win!

  [ 14 votes ]   [ 1 Comment ]
www.ProHealth.com • December 5, 2010


Like a bullfighter 'playfully' flourishing red posters and a sharp message, ME/CFS patient Rivka (remember her "One Woman Protest" at Red Cross & NIH Headquarters in September?) has gained attention in Washington once more. On Dec 3, just four days after Rivka's Protecting the Nation’s Blood Supply. NOT! video and patient email campaign launched, the American Red Cross announced its decision to ban ME/CFS patient blood donations. At the least, the campaign may have been the cherry on top of a series of events that spelled media attention.

BELOW, see the immediate Wall Street Journal and Washington Post coverage of the Red Cross action (also read the comments & note hundreds of 'thumbs up'); the next-morning coverage on finance/business news site Bloomberg.com; and Rivka's press release with a link to the Red Cross announcement.

Wall Street Journal, Dec 3, 9:28 pm ET - "XMRV: Red Cross Now Barring Blood Donors Who Have CFS," by Amy Dockser Marcus.

Washington Post, Dec 3, 4:23 pm ET - "Red Cross bars chronic fatigue [syndrome] patients from donating blood," by Rob Stein. The story hit page 2 of the next day's hard copy edition.

Bloomberg.com, Dec 4, 8:44 am PT - "Red Cross Bans Chronic Fatigue [Syndrome] Patients from Giving Blood Amid Virus Study," by Michelle Cortez and Dan Hart.

Rivka's Dec 3 news release on the "Protecting...NOT" campaign aftermath:

“Today, in a Friday afternoon under-the-radar "news dump" (that they hope no one in the press corps will notice), the Red Cross National Headquarters issued a press release:

They have "deferred" (that means banned) people with ME/CFS/XMRV from *ever* donating blood. Today's press release, including their phone number, is found here. ["American Red Cross Statement on XMRV and Chronic Fatigue Syndrome," Dec 3, 2010]

I called the Red Cross media office to ask when this policy was put in place. I was told that the woman who wrote the new policy has "left early today" (how surprising!), but I was told it was some time in October. (But then they forgot to tell the world about this ban until today?)

Yes, this press release is the first time most of the public will be hearing about this ground-breaking ban.

The video and email campaign - Protecting the Nation’s Blood Supply. NOT! - that we started only 4 days ago on Nov 29 (found here: http://www.youtube.com/watch?v=1DSzTCYPAvs&feature=mfu_in_order&list=UL) may have contributed to this success, but there were simultaneous campaigns and also earlier advocacy efforts, too, including a Facebook campaign.

So this was likely a group effort and success - as it should be!

A big fat CONGRATULATIONS TO ALL WHO WROTE THE RED CROSS."

Rivka
Rivka@ThatTakesOvaries.org 





Join the Discussion Post a Comment 


Ain't she grand?
Posted by: skeptik2
Dec 4, 2010
Rivka has riveted us all! She and her family are my nomination for ME/CFS Family of the Year! Kudos to Keith Baker, one of the advocates extraordinare, who also was instrumental in this coup! Be proud, fellow patients, the CDC-sey, cheesy, world is coming to an end... skeptik2
Reply Reply
 
Free Chronic Fatigue Syndrome and Fibromyalgia Newsletters
Subscribe to
Our FREE
Newsletter
Subscribe Now!
Receive up-to-date ME/CFS & Fibromyalgia treatment and research news
 Privacy Guaranteed  |  View Archives

Save on Your Next Order

Featured Products

FibroSleep™ by ProHealth FibroSleep™ by ProHealth
The All-in-One Natural Sleep Aid
Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
Vitamin D3 Extreme™ by ProHealth Vitamin D3 Extreme™ by ProHealth
50,000 IU Vitamin D3 - Prescription Strength
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils

Natural Remedies

A Breakthrough for Mitochondrial Dysfunction A Breakthrough for Mitochondrial Dysfunction
The Remarkable Benefits of Reishi Medicinal Mushrooms The Remarkable Benefits of Reishi Medicinal Mushrooms
Magnesium + Malic Acid: One-Two Punch for Pain & Fatigue Magnesium + Malic Acid: One-Two Punch for Pain & Fatigue
IBS, Crohn’s Disease, Colitis, and Other Digestive Disorders IBS, Crohn’s Disease, Colitis, and Other Digestive Disorders
The Curcumin Revolution: The Curcumin Revolution: "Golden" Ticket to Better Health

FIBROMYALGIA RESOURCES
What is Fibromyalgia?
Fibromyalgia 101
Fibromyalgia Symptoms
Fibromyalgia Treatments
| CFS RESOURCES
What is CFS?
ME/CFS 101
ME/CFS Symptoms
ME/CFS Treatments
| FORUMS
Fibromyalgia
ME/CFS
ADVANCED MEDICAL LABS
WHOLESALE  |  AFFILIATES
GUARANTEE
CONTACT US
PRIVACY
RSS
SITE MAP
ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus
Credit Card Processing