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The B-12/Folate ME/CFS/FM Crowdfund Trial Begins

  [ 11 votes ]   [ 2 Comments ]
By Cort Johnson • • December 11, 2013

The B-12/Folate ME/CFS/FM Crowdfund Trial Begins

Reprinted with kind permission of Cort Johnson, Health Rising, December 5, 2013

By Cort Johnson

Opportunities abound to make a difference in ME/CFS, but the Open Medicine Institute  (OMI) may have hit on the quickest way to do that for the most people.  

Could a simple, inexpensive treatment provide more energy for many?

What if an effective, relatively inexpensive and readily available treatment was available right now? What if all that was standing between you and others receiving that treatment was your doctors lack of knowledge? What if that could be remedied?

On her recent trip to Sweden with Dr. Peterson, doctors at the Gothries clinic excitedly told OMI executive director Linda Tannenbaum about some successes they were having in this difficult to treat disease. An inexpensive treatment featuring B-12 and folate was  helping 20-50% of  ME/CFS/FM patients with the MTHFR mutation. They were more energized. Their brain fog was clearing. They weren’t well, but their quality of life was much improved.

That got Linda to thinking … inexpensive, readily available treatment that most doctors don’t know about; that’s the kind of opportunity the OMI and its slate of ME/CFS doctors exists for.

A check with some US practitioners indicated they were having similar results. Dr. Peterson, Dr. Kogelnik and the Gottfries clinic signed up and a trial was born to (hopefully) validate a low-cost way to help many people with ME/CFS have more energy and mental clarity. Primary care doctors have no clue about B12 and even your ME/CFS expert may not know about the MTHFR mutation (which affects methylation). An early study found low B12 levels in ME/CFS and doctors have talked it up, but no one has assessed its effectiveness in ME/CFS – until now.

This hundred person, placebo-controlled, double-blinded, international trial will determine how  how effective B-12/Folate is.  It begins in March, 2014. Drug companies won’t fund a B-12 study. This is going to take help from the ME/CFS community. Let’s get more options out to people with chronic fatigue syndrome everywhere.

Let’s get them a study they can print out and say to their doctor “Get me tested and if positive, get me help."

Click HERE to Support This Project

About the Author: Cort Johnson has had ME/CFS for over 30 years. The founder of Phoenix Rising and Health Rising, Cort has contributed hundreds of blogs on chronic fatigue syndrome, fibromyalgia and their allied disorders over the past 10 years. Find more of Cort's and other bloggers' work at Health Rising.


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Article Comments Post a Comment

B-12 advocate
Posted by: rock311
Dec 31, 2013
I've suffered with chronic fatigue for years. The only thing that truly helps me is B-12 shots. I started off getting them once a month but by the fourth week, I still found myself spending weekends in bed, too exhausted and foggy to function. My doctor said I can go every three weeks or even every week if I need to. I go every three weeks now and my energy has improved greatly. I still have to moderate my physical activity and limit how much I do in one day, but I feel SO MUCH better with my B-12 shots. I recommend them to anyone managing Epstein Barr/ Chronic Fatigue.
Reply Reply

Posted by: Kittyno
Jan 3, 2014
I think this is great. I get b12 shot weekly and it really helps.
I would not take the cyanocobalimine though-use methylcobalimine.
Reply Reply
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