ProHealth health Vitamin and Natural Supplement Store and Health
Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help

|
|
|
|

Trending News

Diet Affects Men’s and Women’s Gut Microbes Differently

New Lyme guidelines promote options and informed choice

Phases of clinical depression could affect treatment

“Worm pill” could ease autoimmune disease symptoms

Eating Baked or Broiled Fish Weekly Boosts Brain Health, Pitt Study Says

Scientists Look for Biomarkers to Improve Treatment of Painful Bladder Condition

Preserving Cognitive Function with Aging

New culprit identified in metabolic syndrome

Low vitamin D levels linked to increased risks after noncardiac surgery

VIDEO: Nina Teicholz at TEDxEast: The Big Fat Surprise

 
Print Page
Email Article

VIDEO: National Press Club Conference on MECFS

  [ 7 votes ]   [ Discuss This Article ]
www.ProHealth.com • February 11, 2014


On January 24, 2014 Llewellyn King held a National Press Club conference in Washington, D.C. Speakers included Dr. Andreas Kogelnik, of the Open Medicine Institute, and Ryan Prior, who is making a documentary about the illness, The Blue Ribbon: ME/CFS and the Future of Medicine.

Llewellyn King, whose political commentaries can be found on the White House Chronicle, hosts interviews with prominent figures in the ME/CFS community through his YouTube video series, the ME/CFS Alert. He is a veteran journalist, and he has applied his years of experience to help disseminate information about ME/CFS. 

In his brief introduction, Llewellyn King presented an overview of the disease. He stressed the seriousness of the illness and how little attention had been paid to it by media and by the government. "What is needed," said Mr. King, "is to comfort the patients, educate the doctors, and, because of its lack of funding, shame the government."

Dr. Andreas Kogelnik was the first speaker. He explained that his initial involvement with ME/CFS stemmed from his experience as a clinician, in which he saw several patients with the illness, but had no way to treat them. His clinic discouraged treatment of CFS because it wasn't a "real disease," but this was not enough to discourage him. Over the course of seven years, his knowledge of the illness grew, as did his experience treating it.

Dr. Kogelnik described how the current practice of medicine cannot deal with complex multi-system illnesses, such as ME/CFS. (Throughout the talk, Dr. Kogelnik referred to the illness as "chronic fatigue.") "The breadth of the disease is tremendous," he said. "But the understanding of physicians is appalling." 

For the journalists present, he had three take home messages:
  1. We need a tremendous re-engagement and re-education of physicians
  2. We need more funding for research
  3. We need a lot more support for patients
The second speaker was Ryan Prior, who contracted acute onset ME/CFS as a high school student. Ryan echoed Dr. Kogelnik's sentiment that "ME/CFS is the poster child for the kind of research we finally have the technology to sort through." His plans for his film, The Blue Ribbon, include using it to attract medical students, and train them as interns. "Patients have to wait two or three years," he explained," to see a specialist." If more doctors can be educated about the disease, while they are still medical students, then Ryan hopes this will take some of the burden off ME/CFS specialists, and help invigorate the field.

The remaining time was spent answering questions. Dr. Kogelnik specifically addressed how patients are diagnosed and treated. He also raised a very important point, which is that data about how the illness presents, the course it takes, and which treatments are effective already exists, but physicians are not keeping track.





Please Discuss This Article:   Post a Comment 



[ Be the first to comment on this article ]




 
Free Chronic Fatigue Syndrome and Fibromyalgia Newsletters
Subscribe to
Our FREE
Newsletter
Subscribe Now!
Receive up-to-date ME/CFS & Fibromyalgia treatment and research news
 Privacy Guaranteed  |  View Archives

Save on Your Next Order

Featured Products

Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
Optimized Curcumin Longvida® by ProHealth Optimized Curcumin Longvida® by ProHealth
Supports Cognition, Memory & Overall Health
FibroSleep™ by ProHealth FibroSleep™ by ProHealth
The All-in-One Natural Sleep Aid
Vitamin D3 Extreme™ by ProHealth Vitamin D3 Extreme™ by ProHealth
50,000 IU Vitamin D3 - Prescription Strength
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function

Natural Remedies

Reversing Neurodegeneration with a New Magnesium Compound Reversing Neurodegeneration with a New Magnesium Compound
Itching to Find Dry Skin Relief? Itching to Find Dry Skin Relief?
The Remarkable Benefits of Reishi Medicinal Mushrooms The Remarkable Benefits of Reishi Medicinal Mushrooms
Research Links Green Tea to Weight Loss Research Links Green Tea to Weight Loss
Rejuvenating the Brain - How PQQ Helps Power Up Mental Processing Rejuvenating the Brain - How PQQ Helps Power Up Mental Processing

FIBROMYALGIA RESOURCES
What is Fibromyalgia?
Fibromyalgia 101
Fibromyalgia Symptoms
Fibromyalgia Treatments
| CFS RESOURCES
What is CFS?
ME/CFS 101
ME/CFS Symptoms
ME/CFS Treatments
| FORUMS
Fibromyalgia
ME/CFS
ADVANCED MEDICAL LABS
WHOLESALE  |  AFFILIATES
GUARANTEE
CONTACT US
PRIVACY
RSS
SITE MAP
ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus
Credit Card Processing