Activate Now
 
ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

Patient Insights into the Design of Technology to Support a Strengths-Based Approach to Health Care.

SURVEY: Weight Management & Chronic Illness

Japanese green tea consumers have reduced risk of dementia

Do Nothing, Accomplish Everything! The Connection Between Breathing and Healing

Meet the ProHealth Editors

Best Herbs to Help With Insomnia

Choline: Why You Should Eat Your Egg Yolks and Take Krill

Calcium, vitamin D supplementation associated improved stroke recovery

Acupressure reduced fatigue in breast cancer survivors

Don't Skimp on Your Skin — Try Rosehip Oil Now

 
Print Page
Email Article

John Herd - Long-Time ME/CFS Advocate

  [ 28 votes ]   [ Discuss This Article ]
www.ProHealth.com • August 16, 2009


John Herd grew up immersed in medicine and social awareness. With a physician father, he saw his first operation at age five, and medical issues consumed the conversation around the dinner table.

As a teen, he helped create a teen crisis center and hot line. As an adult, he did volunteer work on a board overseeing the rights of the learning disabled and participated in health care reform efforts.

Always active, John would go on to manage an academic department, build up a successful graphics and design company, hone his photography, illustration and computer graphics skills, and marry and raise a family. While working as a medical photographer at Brigham and Women’s Hospital in Boston – a Harvard teaching affiliate - John watched medical researchers struggle for success and prominence.

By 1987 he was working up to 100 hours a week – fatigued but loving it – until one day he got the flu.

Two weeks later his left side went numb and he couldn’t remember his wife’s name. Two days after that he was in the hospital for an 8-day stay being tested for everything under the sun including stroke, brain tumor and multiple sclerosis.

Just before he left the hospital, an internist told him he probably had something called ‘chronic fatigue syndrome’. That internist would go on to become one of our most prominent ME/CFS advocates; his name was Anthony Komaroff, MD.

John Herd was diagnosed incredibly rapidly for the period, but it made little difference. Before he knew it, almost everything he took for granted – his career, social life, even his home – disappeared. Demonstrating that arrogance doesn’t necessarily stop at the doctor’s office, his family were among the first to cast him adrift.

John started out his first Boston winter with ME/CFS in an unheated apartment without electricity, surviving on handouts from other ME/CFS patients. That help, which may have saved his life, left him ever mindful of the needs of other ME/CFS patients.

As his health improved, John’s natural instinct to contribute re-emerged. First he provided cartoons for the Massachusetts CFIDS Association’s newsletter, then it was articles, and it wasn’t long before he was editor, a support group facilitator and a board member. Eventually, as vice president of the organization, he became an articulate voice for the community on TV and in newspaper and magazine articles.

John broke with the organization in 1994, and since then has been an independent and at times fierce advocate for what he believes best serves the patient community. No stranger to the name change issue, in 2001 he was one of three patient representatives on a Name Change Work Group appointed by a committee of the Department of Health & Human Services.

In 2003, a decision not to proceed on the name change was a bitter disappointment.

But John continued to speak out strongly on a number of issues, including his belief that stronger national advocacy was needed. He has attended virtually all the IACFS/ME International Conferences over the past 15 years. And in 2007, he was awarded the PANDORA Organization’s Sand Castle Male Advocate of the Year Award at the International Patient Conference in Miami, Florida.

Today John Herd lives in Santa Barbara, California. His outreach on behalf of the ME/CFS community extends to journalists, physicians, legislators, medical organizations and support groups. Unable to work for the last 20 years, he remains deeply involved in ME/CFS advocacy issues.




Post a Comment

Featured Products From the ProHealth Store
Optimized Curcumin Longvida® Mitochondria Ignite™ with NT Factor® Ultra ATP+, Double Strength

Looking for Vitamins, Herbs and Supplements?
Search the ProHealth Store for Hundreds of Natural Health Products


Article Comments



Be the first to comment on this article!

Post a Comment


 
Natural Pain Relief Supplements

Featured Products

Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils
Optimized Curcumin Longvida® Optimized Curcumin Longvida®
Supports Cognition, Memory & Overall Health
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function

Natural Remedies

Pioneer Scientists Uncover a Revolutionary Neuroprotective Supplement for Nerve Health Pioneer Scientists Uncover a Revolutionary Neuroprotective Supplement for Nerve Health
Magnesium: An Essential Supplement for ME/CFS Magnesium: An Essential Supplement for ME/CFS
The Crucial Role CoQ10 Plays in Fibromyalgia and ME/CFS The Crucial Role CoQ10 Plays in Fibromyalgia and ME/CFS
The Big Blue Fish that Helps Chase the Blues Away The Big Blue Fish that Helps Chase the Blues Away
When a Good Night's Sleep Is Just a Daydream... When a Good Night's Sleep Is Just a Daydream...

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE AND SAVE 15% NOW*
Be the first to know about new products, special discounts and the latest health news. *New subscribers only

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2016 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map