ProHealth health Vitamin and Natural Supplement Store and Health
Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help

|
|
|
|

Trending News

New Lyme guidelines promote options and informed choice

Phases of clinical depression could affect treatment

“Worm pill” could ease autoimmune disease symptoms

Eating Baked or Broiled Fish Weekly Boosts Brain Health, Pitt Study Says

Preserving Cognitive Function with Aging

Scientists Look for Biomarkers to Improve Treatment of Painful Bladder Condition

New culprit identified in metabolic syndrome

9 Health Benefits of Cucumbers

Low vitamin D levels linked to increased risks after noncardiac surgery

Irritable Bowel Syndrome: Unlocking the Secrets of Peppermint, Acacia and Fennel

 
Print Page
Email Article

Dr. Ken Friedman’s Courageous CFSAC Testimony on CFS Education

  [ 86 votes ]   [ 1 Comment ]
www.ProHealth.com • November 12, 2009


Following is a transcript of Dr. Kenneth Friedman’s testimony at the CFS Advisory Committee Meeting Friday, Oct 30. Dr. Friedman is an active supporter of increased medical education regarding ME/CFS. But, as he notes in this testimony, his very position as associate professor of Pharmacology & Physiology at University of Medicine and Dentistry of New Jersey is in jeopardy because of these activities.

___________________________

Chronic Fatigue Syndrome Education in the United States
Testimony for the Chronic Fatigue Syndrome Advisory Committee, Oct 30, 2009
by Kenneth J. Friedman, PhD

Treasurer of the International Association of CFS/ME
Director of Public Policy for P.A.N.D.O.R.A., Inc.
Scientific Adviser to Lifelyme, Inc.
Board Member & Chair, Medical Student Scholarship Committee, New Jersey
Chronic Fatigue Syndrome Association
Board Member, Vermont CFIDS Association

Good morning!

My name is Kenneth Friedman and I am a medical school professor. I have been asked by the IACFS/ME to comment upon the status of Chronic Fatigue Syndrome education in the United States.

Comments on the Academic, Medical School Environment

The Director of the Office of Ethics and Compliance of my employer has informed me that my off-campus activities related to CFS which include: testifying before this Committee, serving on this Committee, providing continuing medical education courses, establishing medical student scholarships and assisting with healthcare legislation are not part of my responsibilities as a University Professor.

I am told that I will be punished with a penalty as severe as termination of my employment for these activities. I am not a unique target.

• Colleague Ben Natelson has left the same school.

• A different medical school has refused to permit access to their medical students to discuss CFS or inform them of a medical student scholarship.

• A statewide health care provider, with no physician capable of managing CFS patients, refuses to permit a CFS training session for their physicians.

The failure of the CDC to convince the medical-academic establishment of the legitimacy of CFS, and the urgent need for its treatment, has created this environment.

Comments on Medical Student Education

High ranking officials of medical education have testified before this Committee that they are powerless to control the curriculum of medical schools, and cannot mandate the inclusion of Chronic Fatigue Syndrome in the medical school curriculum.

• Were the CDC to mandate the reporting of CFS to the Federal Government, as it does for other illnesses, the National Board of Medical Examiners would have no choice but to put CFS questions on the National Boards.

• If CFS questions were to appear on National Board licensure examinations, medical schools would have no choice but to include CFS in their curriculum.

I have appeared before this body on two separate occasions arguing for the use of existing student programs within both the NIH and the CDC to rotate medical students through NIH and CDC laboratories. I have pleaded for dialogue and feedback on any of my proposals. I have heard nothing.

The only mechanism for medical student education for CFS is the medical student scholarship programs run by patient advocate organizations. We now have programs running in three states. How many scholarship programs must be mounted by state patient advocate groups before the CDC mounts a single, national medical student program?

Comments on Continuing Medical Education for Physicians

To my knowledge, the CDC's on-line continuing medical education CFS course is the only involvement of the federal government in healthcare provider education. Does the CDC honestly believe that sitting in front of a computer screen for a few hours will make a physician capable of diagnosing and treating CFS?

From the CFS Community's perspective, what is the impact of the on-line course on diagnosis and treatment of CFS?

• From Vermont CFIDS Association: There is no increase in the number of physicians who diagnose or treat CFS in this state.

• From New Jersey Chronic Fatigue Syndrome Association: The number of requests for physician referrals to our helpline has not diminished.

Comments on Chronic Fatigue Syndrome Educational Materials

In my opinion, all federal and private sector literature concerning Chronic Fatigue Syndrome is out of date. There is no established mechanism for updating health care provider literature.

Of the available literature, the most authoritative and accepted source of information on Chronic Fatigue Syndrome is a physician's diagnosis and treatment manual not produced by the Centers for Disease Control, not produced by the National Institutes of Health, but produced by the New Jersey Chronic Fatigue Syndrome Association - The Consensus Manual for the Primary Care and Management of Chronic Fatigue Syndrome.

I ask that this Committee recommend to the U.S. Secretary of Health:

• That a national diagnosis and treatment manual for CFS be created,

• That a panel be formed to write this manual,

• That the Department of Health and Human Services underwrite the expense of producing and distributing this manual.

With regard to the recent Spark! Awareness Campaign and the accompanying Physicians Toolkit, not one patient in the State of Vermont ever saw the patient pamphlet. An incredible waste of money!

Conclusions

The only on-going educational programs for medical students and physicians that involve human contact come from patient advocate groups.

• Patient advocate groups are the current source of educational materials for CFS.

• They rely on the assistance of academicians.

• If academicians are threatened with termination of employment for participating in Chronic Fatigue Syndrome education, there will be no educational programs.

I beg you to consider the magnitude of this problem.

I beg you to undertake a course of remedial action.

Thank-you!
_________

To view the YouTube video of Dr. Friedman’s presentation, click here.

To read the message string “Please thank Dr. Friedman, a very brave man,” in the ProHealth.com ME/CFS Message Board, click here.



Please Discuss This Article:   Post a Comment 

UMDNJ
Posted by: Gerald Campbell PhD
Nov 19, 2009
Hi, I just wanted to add that the Chronic Fatigue Research Center at UMDNJ has been involved in research on CFS, GWS and FM for at least 15 years. That makes it one of the longest-running such establishments, and therefore one of the most valuable. I was a CFS research subject for them on several occasions during the years that I lived in Bucks County, PA. Their researchers are knowledgeable, professional and compassionate; their research has been published in many peer-reviewed journals; and they have not to date been scared off by the politics or terror tactics of the CDC. I hope that the latter will continue to be true. We need to help that remain the case, by bringing this article to the attention of every US Rep and Senator. Gerald Campbell, Ph.D.
Reply Reply
 
Free Chronic Fatigue Syndrome and Fibromyalgia Newsletters
Subscribe to
Our FREE
Newsletter
Subscribe Now!
Receive up-to-date ME/CFS & Fibromyalgia treatment and research news
 Privacy Guaranteed  |  View Archives

Save on Your Next Order

Featured Products

Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
FibroSleep™ by ProHealth FibroSleep™ by ProHealth
The All-in-One Natural Sleep Aid
Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
Vitamin D3 Extreme™ by ProHealth Vitamin D3 Extreme™ by ProHealth
50,000 IU Vitamin D3 - Prescription Strength
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function

Natural Remedies

The Remarkable Benefits of Reishi Medicinal Mushrooms The Remarkable Benefits of Reishi Medicinal Mushrooms
Live Longer: Groundbreaking Research on Omega-3s Live Longer: Groundbreaking Research on Omega-3s
Repair Damaged Mitochondria and Reduce Fatigue Up to 45% Repair Damaged Mitochondria and Reduce Fatigue Up to 45%
Reversing Neurodegeneration with a New Magnesium Compound Reversing Neurodegeneration with a New Magnesium Compound
Broad Spectrum Protection Against Brain Aging Broad Spectrum Protection Against Brain Aging

FIBROMYALGIA RESOURCES
What is Fibromyalgia?
Fibromyalgia 101
Fibromyalgia Symptoms
Fibromyalgia Treatments
| CFS RESOURCES
What is CFS?
ME/CFS 101
ME/CFS Symptoms
ME/CFS Treatments
| FORUMS
Fibromyalgia
ME/CFS
ADVANCED MEDICAL LABS
WHOLESALE  |  AFFILIATES
GUARANTEE
CONTACT US
PRIVACY
RSS
SITE MAP
ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus
Credit Card Processing