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New ME/CFS Study at Stanford: Dr. Montoya to test for scores of Infections

  [ 52 votes ]   [ 4 Comments ]
www.ProHealth.com • June 4, 2010


Initially posted on the ME/CFS Warrior Blog on June 2, 2010, within a few days the Stanford study announcement attached below attracted so many inquiries that the coordinators were overwhelmed, and stated it would take them quite some time to respond to calls. They added that the study would require participants to come to their Bay Area lab to give blood samples, and later patient reports indicated participation was ultimately limited to residents of California. Reflecting the continuing flow of patient inquiries, ProHealth deleted the contact phone number included in the original post.

[Ed Note: The following announcement of a trial by Stanford professor Jose Montoya takes on added significance in light of emerging XMRV research; the WPI’s diagnostic XMRV test due out July 1; and the recent paper by Michigan-based Dr. A Martin Lerner, et al., reporting great improvements (“returned to near-normal”), achieved with 6 months or more of anti-viral treatment, for a subset of ME/CFS patients with herpesvirus infections only - Epstein-Barr (EBV), HHV6, and/or cytomegalovirus (CMV).

Other patient subsets in the Lerner study whose blood tests had identified herpesvirus(es) plus “co-infection” with other viruses did not respond as positively. Those with EBV received Valtrex® (valacyclovir), and those with HHV6 or CMV took Valcyte® (valganciclovir). For details, see “Subset-directed antiviral treatment of 142 herpesvirus patients with chronic fatigue syndrome.”]

* * * *

Stanford Research Study on Chronic Fatigue [Syndrome] - Free Extensive Blood Tests! (Share)

Dr. Montoya at Stanford is doing the most extensive research project on Chronic Fatigue Syndrome that I believe has ever been done.

Anyone can volunteer for this study if they have chronic fatigue (more than 6 months) and have not taken antivirals or antibiotics within 1 month of blood test (and don't have chronic fatigue from cancer).

The best part is that everyone that volunteers gets free blood tests and results.

The testing is very extensive and includes some 60 different tests (viral, bacterial, etc.). They are still in the process of finalizing the list of tests but so far they have told me they're testing for:
XMRV
EBV
HHV6
HHV1
HHV2
CMV (HHV5)
several strains of Lyme Disease
Chlamydia Pneumoniae
Babesiosis (several strains)
Bartonella (several strains)
Ehrlichiosis
Rickettsia
Mycoplasma
Enovirus,
...and much more!!

I hope you can already see how extensive this testing is going to be. By the way, having Lyme Disease does not disqualify you!

This is a very large study and will be going on for at least four more months.

[The study coordinator] will go over all your questions and will ask you a few to make sure you're qualified for the study.

Although this study is being done in the California Bay Area, anyone qualified is welcome to participate in this groundbreaking study. [Again, participants are required to come to Stanford to provide the blood samples used in the study, and reportedly participation was ultimately limited to patients in California.]

It will take 6 to 12 months to get your test results, depending on how long they keep the study open.




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Article Comments Post a Comment

It's Chronic Fatigue SYNDROME
Posted by: oerganix
Jun 6, 2010
Please, ProHealth, don't call it chronic fatigue. It's bad enought we are saddled with this misnomer - Chronic Fatigue SYNDROME - without the added misconception that it is mainly about fatigue. It isn't. Thanks for posting this article and the many other useful ones here. But don't forget the SYNDROME part, please.
Reply Reply

 
A Complete List of Agents?
Posted by: skea
Jun 14, 2010
I wonder if we can get a complete list of the agents that this study is testing for? I sadly live across the country, and because I'm ill, I have no income or the health to travel that far. :-(

Also, I totally agree...it's Chronic Fatigue Syndrome. CFS is about adrenal fatigue, not what we have. Thank you for mentioning it!

 


Valcyte controls my CMV in Gulf War Illness
Posted by: BeckieC
Jun 10, 2010
Although I have thousands of viruses that are acquired through military vaccine cocktails, Valcyte was the only drug that controls CMV. CMV is a virus from Green African monkey kidney tissue used to culture vaccines since 1940s, possibly before. It thrives on vascular endothelium tissues and cells, which means the heart wall, and the lining of every aorta, vessel, vein. It is devastating because it shuts down the circulatory system. It literally drowns cells with overproduction of mucus. Probably contributes to Congestive Heart Failure, is extremely painful. Without killing off most of the vaccine viruses that attack the heart and lungs, breathing is difficult. Breathing may stop during sleep because the patient is literally drowning in fluid production and massive animal virus infection. No telling how many enteroviruses the Valcyte killed off. But I have found through insurance coverage and dropped insurance coverage that you CANNOT get off Valcyte once you've started and then settled on a maintenance level. Death will occur fairly quickly, and could lose fingers, toes, legs to amputation. Thanks
Reply Reply

I made the call
Posted by: Sandy10m
Jun 17, 2010
Folks, I called the number since I live in the Bay Area. It took them 8 days to respond. Since others might be interested, I thought I would post the info I gathered. The only requirement to participate in the study is the one trip to Palo Alto for the blood tests. That's it. To qualify for the program, you have to answer about 20 questions over the phone in the correct way to be allowed to participate. Copies of all your test results will be available to you after the study is complete, around 12 months later. They are studying co-infections and how prevalent the various viruses and bacteria (and others?) are in currently diagnosed chronic fatigue patients. Things that might knock you out of the program is if you have been on antivirals or antibiotics within the last 3 months. There is no cost to you (other than travelling to the lab), and there is no money offered to participants. I'll let you know how it goes, as my lab appointment is next week. Cheers!
Reply Reply


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