Activate Now
 
ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

Big step towards cure for HIV and other lifelong viral infections

SURVEY RESULTS: Attitudes About Fatigue

Superfood Trio: Ginger, Turmeric, and Carrots?

Rejuvenate Your Skin Naturally With Sea Buckthorn Oil

A Smile

Can Drinking More Water Help You Lose Weight?

Resveratrol’s Link to Slowing Alzheimer’s

Tropical Turmeric Carrot Juice & Smoothie

Most Everyone Can Use More Vitamin D

Omega-3s May Improve Healing After a Heart Attack

 
Print Page
Email Article

Self-reported differences in empowerment between lurkers and posters in online patient support groups - Source: Journal of Medical Internet Research, Jun 30, 2008

  [ Not Yet Rated ]   [ Discuss This Article ]
By Cornelia F van Uden-Kraan, et al. • www.ProHealth.com • July 31, 2008


[Note: The full article is available free in PubMed Central.]

Background: Patients who visit online support groups benefit in various ways. Results of our earlier study indicated that participation in online support groups had a profound effect on the participants' feelings of "being empowered." However, most studies of online patient support groups have focused on the members of these groups who actively contribute by sending postings (posters). Thus far, little is known about the impact for "lurkers" (i.e., those who do not actively participate by sending postings).

Objective: In the present study, we explored if lurkers in online patient support groups profit to the same extent as posters do.

Methods: We searched the Internet with the search engine Google to identify all Dutch online support groups for patients with:

  • Breast cancer,
  • Fibromyalgia,
  • And arthritis.
  • Invitations to complete an online survey were sent out by the owners of 19 groups.

    In the online questionnaire, we asked questions about demographic and health characteristics, use of and satisfaction with the online support group, empowering processes, and empowering outcomes.

    The online questionnaire was completed by 528 individuals, of which 109 (21%) identified themselves as lurkers.

    Results:
    Lurkers (mean age 47 years):

  • Were slightly older than active participants (mean age 43 years, P = .002),
  • Had a shorter disease history (time since diagnosis 3.7 years vs. 5.4 years, P = .001),
  • And reported lower mental well-being (SF 12 subscore 37.7 vs 40.5, P = .004).
  • No significant differences were found in other demographic variables.

    Posters indicated visiting the online support groups significantly more often for social reasons, such as curiosity about how other members were doing, to enjoy themselves, as a part of their daily routine (all P < .001), and because other members expected them to be there (P = .003).

    Lurkers and posters did not differ in their information-related reasons for visiting the online support group.

    Lurkers were significantly less satisfied with the online support group compared to posters (P < .001). With regard to empowering processes such as "exchanging information" and "finding recognition," lurkers scored significantly lower than posters.

    However, lurkers did not differ significantly from posters with regard to most empowering outcomes, such as:

  • "Being better informed,"
  • "Feeling more confident in the relationship with their physician,"
  • "Improved acceptance of the disease,"
  • "Feeling more confident about the treatment,"
  • "Enhanced self-esteem," and
  • "Increased optimism and control."
  • The exception was "enhanced social well-being," which scored significantly lower for lurkers compared to posters (P < .001).

    Conclusion:
    Our study revealed that participation in an online support group had the same profound effect on lurkers' self-reported feelings of being empowered in several areas as it had on posters.

    Apparently, reading in itself is sufficient to profit from participation in an online patient support group.

    Source: Journal of Medical Internet Research, Jun 30, 2008;10(2):e18. PMID: 18653442, by van Uden-Kraan CF, Drossaert CH, Taal E, Seydel ER, van de Laar MA. Institute for Behavioural Research, University of Twente, Enschede, The Netherlands. [E-mail: c.f.vanuden-kraan@utwente.nl]





    Post a Comment

    Featured Products From the ProHealth Store
    Energy NADH™ 12.5mg Vitamin D3 Extreme™ FibroSleep™

    Looking for Vitamins, Herbs and Supplements?
    Search the ProHealth Store for Hundreds of Natural Health Products


    Article Comments



    Be the first to comment on this article!

    Post a Comment


     
    Natural Pain Relief Supplements

    Featured Products

    FibroSleep™ FibroSleep™
    The All-in-One Natural Sleep Aid
    Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
    Ultra concentrated source of essential fish oils
    Vitamin D3 Extreme™ Vitamin D3 Extreme™
    50,000 IU Vitamin D3 - Prescription Strength
    Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
    Reduce Fatigue up to 45%
    Energy NADH™ 12.5mg Energy NADH™ 12.5mg
    Improve Energy & Cognitive Function

    Natural Remedies

    Safely Burn Away Body Fat Safely Burn Away Body Fat
    Ubiquinol - A More Advanced Form of the Energy Producing Nutrient CoQ-10 Ubiquinol - A More Advanced Form of the Energy Producing Nutrient CoQ-10
    Help for Soreness and Swelling: What Do Silkworms Have to Do With It? Help for Soreness and Swelling: What Do Silkworms Have to Do With It?
    Complete and Natural Menopause Relief Complete and Natural Menopause Relief
    D-ficient? Health Risks You Need to Know About D-ficient? Health Risks You Need to Know About

    CONTACT US
    ProHealth, Inc.
    555 Maple Ave
    Carpinteria, CA 93013
    (800) 366-6056  |  Email

    · Become a Wholesaler
    · Vendor Inquiries
    · Affiliate Program
    SHOP WITH CONFIDENCE
    Credit Card Processing
    SUBSCRIBE AND SAVE 15% NOW*
    Be the first to know about new products, special discounts and the latest health news. *New subscribers only

    CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

    © 2016 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map