ME/CFS Alert Co-host Llewellyn King suggests we work to find one of the 535 members of Congress who will take on chronic fatigue syndrome as a cause. As a 40-year veteran of Washington he advises we “stop shaking the bars at CDC and NIH” and find an issue-hungry member of Congress who will speak to them for us. Here’s why it could work.
Well sir--The CFIDS Assoc of America has lobbied congress for the past ten years. I myself have been a rep to two former lobby days. i am an ME/disabled person who was employed by DOJ before I got ill. When you talk to congressman or senators these days they say that they dont want to pit one illness against another. The halls of congress are littered with lobbyists for various illnesses. Actually, the best place to get anything done is directly at the NIH---just ask Michael J. Fox or Mohommad Ali. All of the recent advances in parkinsons meds came from the two of them sitting on NIH's doorsteps. Just ask Congressman Lane Evans from Rockford, Illinois who used to be very interested in cfs. He has Parkinson,s--and can now walk--or could the last time I visited him a few years ago due to parkinsons drugs. Please contact me if you think I can help rattling cages. The white house wouldnt be a bad idea either. SDGATTY@aol.com