Activate Now
 
ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

Patient Insights into the Design of Technology to Support a Strengths-Based Approach to Health Care.

SURVEY: Weight Management & Chronic Illness

Japanese green tea consumers have reduced risk of dementia

Do Nothing, Accomplish Everything! The Connection Between Breathing and Healing

Meet the ProHealth Editors

Best Herbs to Help With Insomnia

Choline: Why You Should Eat Your Egg Yolks and Take Krill

Calcium, vitamin D supplementation associated improved stroke recovery

Acupressure reduced fatigue in breast cancer survivors

More positive evidence for melatonin in breast cancer battle

 
Print Page
Email Article

It's One Year Since the President Promised to Look Into More ME/CFS Research Funding

  [ 10 votes ]   [ 1 Comment ]
www.ProHealth.com • May 1, 2012


This article by HealthCentral ME/CFS Health Guide Karen Lee Richards is reproduced with kind permission from HealthCentral.com ©2012, all rights reserved. It was first published Mar 8, 2012.

_______________________

Woman Asked President Obama for More Chronic Syndrome Research (One Year Ago)

By Karen Lee Richards

It's been… a year since Courtney Miller, wife of ME/CFS patient Bob Miller, stood up at at Town Hall meeting in Reno, Nevada and asked President Obama to help her family by asking the National Institutes of Health (NIH) to increase funding for chronic fatigue syndrome (ME/CFS).

At the time, the president said, “...what I promise I will do when I get back is I will have the National Institute of Health explain to me what they’re currently doing and start seeing if they can do more on this particular ailment.”

According to Cort Johnson's post on Phoenix Rising, the Millers were able to talk with the president after the town hall meeting and he said he would be on top of the NIH for ME/CFS. That was in April 2011. I don't know whether President Obama has kept his promise or not. I sincerely hope he has, or is in the process of doing so. 

Here is a video of Courtney Miller's interaction with President Obama, recently posted on YouTube by Simmaron Research. (Dr. Daniel Peterson’s organization.)



Although there were no increases for ME/CFS research in the NIH's 2012 budget, I know budget increases take time and have to have Congressional approval, which is a long and time-consuming process.  So I'm still holding out hope that we'll see an increase in the 2013 budget for ME/CFS research. 

Here are a few facts* that will give you an idea of just how poorly ME/CFS is funded:

•  The estimated cost of ME/CFS to the U.S. from Medicare, disability, lost tax revenue, medical expenses and lost productivity ranges from $23 billion to $70 billion annually.  Yet the NIH has only allotted a paltry $6 million to ME/CFS research in 2012. 

•  To look at this from another perspective, although  multiple sclerosis is estimated to affect only 500,000 Americans, the NIH has devoted $135 million to MS research this year.  And Lyme disease, which affects just 150,000 Americans, has been allotted $25 million.  Yet ME/CFS, estimated by the CDC to affect between 1-4 million Americans, is getting only $6 million.  And ME/CFS can be every bit as debilitating as MS and Lyme disease, if not more so. 

•  NIH funding for ME/CFS has remained at roughly the same level for the past 10 years. 

•  On a per capita basis, the NIH spends between $1.50 and $6.00 per person with ME/CFS on research.

I don't begrudge other illnesses their research dollars.  I just want to know why ME/CFS doesn't deserve similar levels of funding.  There's just no excuse for an illness that affects so many people and is so debilitating to be treated so poorly when it comes to funding for research.  

- Karen
_______

* Source: ME/CFS Worldwide Patient Alliance. "Government Research Funding." Retrieved March 8, 2012.





Post a Comment

Featured Products From the ProHealth Store
FibroSleep™ Ultra ATP+, Double Strength Optimized Curcumin Longvida®

Looking for Vitamins, Herbs and Supplements?
Search the ProHealth Store for Hundreds of Natural Health Products


Article Comments Post a Comment

excellent
Posted by: roge
Mar 6, 2012
great news, sure wish though she would have stated me/cfs and not just cfs
Reply Reply
 
Natural Pain Relief Supplements

Featured Products

Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
Vitamin D3 Extreme™ Vitamin D3 Extreme™
50,000 IU Vitamin D3 - Prescription Strength
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%

Natural Remedies

More Weight Loss than Any Other Discovery in Supplement History More Weight Loss than Any Other Discovery in Supplement History
Coping When Colds or Flu Catch Up with You Coping When Colds or Flu Catch Up with You
The Big Blue Fish that Helps Chase the Blues Away The Big Blue Fish that Helps Chase the Blues Away
Curcumin - a Golden Gift of Nature with Benefits Still Untold Curcumin - a Golden Gift of Nature with Benefits Still Untold
Cocoa's Polyphenol Riches - All the Health Benefits without the Sugar, Calories or Guilt Cocoa's Polyphenol Riches - All the Health Benefits without the Sugar, Calories or Guilt

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE AND SAVE 15% NOW*
Be the first to know about new products, special discounts and the latest health news. *New subscribers only

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2016 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map