ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help

|
|
|
|

Trending News

Mitochondria-Booster NIAGEN® Shows Promise in First Human Clinical Trial

Can Glycine + Amino Acids Be the Secret to Deep, Rejuvenating Sleep?

Exploring the association between Morgellons disease and Lyme disease: identification of Borrelia bu...

Lyme Disease Activists Take Fight to Washington D.C.

New Envita Study Shows Chronic Lyme Disease "Fools" Immune System, Resistant to Antibiotics

Safely Burn Away Body Fat

Omega-3 fatty acids boost B vitamin brain benefit

Substantial health threat: Never-before-seen tick-borne disease

Lyme Advocates Call on IDSA to Focus on Patient Care Instead of Attacking Those in Distress

Trigger identified that likely unleashes autoimmune disease

 
Print Page
Email Article

It's One Year Since the President Promised to Look Into More ME/CFS Research Funding

  [ 10 votes ]   [ 1 Comment ]
www.ProHealth.com • May 1, 2012


This article by HealthCentral ME/CFS Health Guide Karen Lee Richards is reproduced with kind permission from HealthCentral.com ©2012, all rights reserved. It was first published Mar 8, 2012.

_______________________

Woman Asked President Obama for More Chronic Syndrome Research (One Year Ago)

By Karen Lee Richards

It's been… a year since Courtney Miller, wife of ME/CFS patient Bob Miller, stood up at at Town Hall meeting in Reno, Nevada and asked President Obama to help her family by asking the National Institutes of Health (NIH) to increase funding for chronic fatigue syndrome (ME/CFS).

At the time, the president said, “...what I promise I will do when I get back is I will have the National Institute of Health explain to me what they’re currently doing and start seeing if they can do more on this particular ailment.”

According to Cort Johnson's post on Phoenix Rising, the Millers were able to talk with the president after the town hall meeting and he said he would be on top of the NIH for ME/CFS. That was in April 2011. I don't know whether President Obama has kept his promise or not. I sincerely hope he has, or is in the process of doing so. 

Here is a video of Courtney Miller's interaction with President Obama, recently posted on YouTube by Simmaron Research. (Dr. Daniel Peterson’s organization.)



Although there were no increases for ME/CFS research in the NIH's 2012 budget, I know budget increases take time and have to have Congressional approval, which is a long and time-consuming process.  So I'm still holding out hope that we'll see an increase in the 2013 budget for ME/CFS research. 

Here are a few facts* that will give you an idea of just how poorly ME/CFS is funded:

•  The estimated cost of ME/CFS to the U.S. from Medicare, disability, lost tax revenue, medical expenses and lost productivity ranges from $23 billion to $70 billion annually.  Yet the NIH has only allotted a paltry $6 million to ME/CFS research in 2012. 

•  To look at this from another perspective, although  multiple sclerosis is estimated to affect only 500,000 Americans, the NIH has devoted $135 million to MS research this year.  And Lyme disease, which affects just 150,000 Americans, has been allotted $25 million.  Yet ME/CFS, estimated by the CDC to affect between 1-4 million Americans, is getting only $6 million.  And ME/CFS can be every bit as debilitating as MS and Lyme disease, if not more so. 

•  NIH funding for ME/CFS has remained at roughly the same level for the past 10 years. 

•  On a per capita basis, the NIH spends between $1.50 and $6.00 per person with ME/CFS on research.

I don't begrudge other illnesses their research dollars.  I just want to know why ME/CFS doesn't deserve similar levels of funding.  There's just no excuse for an illness that affects so many people and is so debilitating to be treated so poorly when it comes to funding for research.  

- Karen
_______

* Source: ME/CFS Worldwide Patient Alliance. "Government Research Funding." Retrieved March 8, 2012.




Please Discuss This Article:   Post a Comment 

excellent
Posted by: roge
Mar 6, 2012
great news, sure wish though she would have stated me/cfs and not just cfs
Reply Reply
 
Free Chronic Fatigue Syndrome and Fibromyalgia Newsletters
Subscribe to
Our FREE
Newsletter
Subscribe Now!
Receive up-to-date ME/CFS & Fibromyalgia treatment and research news
 Privacy Guaranteed  |  View Archives

Save on Vitamins and Supplements

Featured Products

Vitamin D3 Extreme™ by ProHealth Vitamin D3 Extreme™ by ProHealth
50,000 IU Vitamin D3 - Prescription Strength
FibroSleep™ by ProHealth FibroSleep™ by ProHealth
The All-in-One Natural Sleep Aid
Optimized Curcumin Longvida® by ProHealth Optimized Curcumin Longvida® by ProHealth
Supports Cognition, Memory & Overall Health
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%

Natural Remedies

The Most Powerful Natural Antioxidant Discovered to Date - Hydroxytyrosol The Most Powerful Natural Antioxidant Discovered to Date - Hydroxytyrosol
Health Benefits Are Brewing in Green Tea Health Benefits Are Brewing in Green Tea
Green Coffee Extract: Unique Obesity Intervention Green Coffee Extract: Unique Obesity Intervention
Can Glycine + Amino Acids Be the Secret to Deep, Rejuvenating Sleep? Can Glycine + Amino Acids Be the Secret to Deep, Rejuvenating Sleep?
Fight Inflammation and Promote Cognitive Health with High-OPC Grape Seed Fight Inflammation and Promote Cognitive Health with High-OPC Grape Seed

FIBROMYALGIA RESOURCES
What is Fibromyalgia?
Fibromyalgia Diagnosis
Fibromyalgia Symptoms
Fibromyalgia Treatments
| CFS RESOURCES
What is CFS?
ME/CFS Diagnosis
ME/CFS Symptoms
ME/CFS Treatments
| FORUMS
Fibromyalgia
ME/CFS
ADVANCED MEDICAL LABS
WHOLESALE  |  AFFILIATES
GUARANTEE  |  PRIVACY
CONTACT US
LIBRARY
RSS
SITE MAP
ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus
Credit Card Processing