ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

10 Fibro-Friendly Foods with a Bonus: Beautiful Skin

Fight Back! Win the War Being Waged Against Your Immune System

The role of microbiota and intestinal permeability in the pathophysiology of autoimmune and neuroimm...

Studies Show that Magnesium L-threonate Improves Brain Plasticity, Leading to Direct and Significant...

Clary Sage Oil May Be Pricey, but Its Benefits Are Priceless

Component of red wine, grapes can help to reduce inflammation, study finds

Poly MVA: A Novel Therapy for Increasing Energy, Repairing DNA, and Promoting Overall Health

Acupressure reduced fatigue in breast cancer survivors

Omega-3 fatty acid stops known trigger of lupus

What’s Fenugreek Good For?

Print Page
Email Article

Patrick Kelly’s Reminder that ME/CFS People are Strong

  [ 26 votes ]   [ 2 Comments ]
By hubcap_halo • • April 29, 2012

The ME/CFS and Lyme world lost Patrick Kelly (hubcap_halo) last week. Here in this message board post dated Feb 15, 2008, Patrick clearly described how much strength it takes to “carry on as best we can.” Thank you again, Patrick.


ME/CFS People: We are Stronger than We Give Ourselves Credit For

I'm back on this board and that thought just struck me.

•  I hear about people letting themselves be bedridden for 6 months on Valcyte because they want their life back - they want to work again, to spend more time with family and friends and be more active.

• We change our diets.

•  We change jobs.

•  We downgrade our standard of living.

•  We move to new cities.

•  We give up apartments and even houses and spend time in the back room of relatives or friends apartments or houses (much gratitude to them).

•  We love coffee with cream and sugar but we cut it out, just on the suspicion that candida might be a problem even though there really isn't conclusive proof.

•  We give up a TON of fun vices and tasty foods just on the hope that eating nothing but fresh veggies, lean meats, fish, quinoa, some fruits will help cure us or at least get us back to working part time.

•  We endure breakups that occur because of a relapse on the illness onset.

•  We survive losing friends because of the illness or a relapse.

•  We try meditation, qi gong, yoga, light exercise, visualizations...

•  We spend tens of thousands of dollars and travel great distances to see specialists who have complex protocols.

•  We spend hours studying the illness ourselves.

•  We offer support to each other.

•  We try to keep a sense of humor even though we're often angry or sad beyond words.

•  We grow a thicker skin and learn that just because 3/4 of the planet thinks the illness is in our head - we blow it off when they say it. We often don't fight them verbally, just to save our strength.

•  OR we set them straight and cite sources, in the hopes that they won't rake the nerves of the next ME/CFS person that comes along. We fight to make them understand.

•  We've missed months, even years of our lives - and yet we carry on as best we can and with hope of better health in the future.

•  We'll try a treatment, and when the treatment makes us feel like sh*t we agree with our doctor, "That means it's working!" And when the treatment makes us feel better we say "That means it's working!" THAT, folks, is optimism.

•  When a friend complains about the horribly busy day they have we don't remind them they are darn lucky to be able to HAVE a busy day. But if they take it too far and say their vacation was ruined by one horrible day of being sick in bed, we stand up for ourselves and say, "Hey pal, try to keep your audience in mind a little."

•  I've logged 1,400 days in bed in the last 11 years. There are many who've logged more. That's a lot of time to be alone with your thoughts and a painful body or fevers.

•  Based on all the rest I need, a friend once said, "I want your job!" I assured her she doesn't. I like working. I like being busy. I like being healthy.

We are stronger than we give ourselves credit for.

-    Patrick Kelly (hubcap_halo), 2/15/08

Post a Comment

Featured Products From the ProHealth Store
Optimized Curcumin Longvida® Ultra ATP+, Double Strength Ultra EPA  - Fish Oil

Looking for Vitamins, Herbs and Supplements?
Search the ProHealth Store for Hundreds of Natural Health Products

Article Comments Post a Comment

Great thoughts
Posted by: deserella
Apr 30, 2012
Great thoughts. I think we all need to be reminded of the inner strength we are continually developing from having a chronic illness. I'm so sorry to here about Patrick. My condolences to his family and friends.
Reply Reply

Posted by: polot1
May 1, 2012
Could not have said it better!spot on!well done!xx
Reply Reply
Natural Pain Relief Supplements

Featured Products

Vitamin D3 Extreme™ Vitamin D3 Extreme™
50,000 IU Vitamin D3 - Prescription Strength
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
Optimized Curcumin Longvida® Optimized Curcumin Longvida®
Supports Cognition, Memory & Overall Health
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils

Natural Remedies

The Big Blue Fish that Helps Chase the Blues Away The Big Blue Fish that Helps Chase the Blues Away
The Surprising Benefits of Probiotics - What You Didn't Know The Surprising Benefits of Probiotics - What You Didn't Know
Guarding Against the Dangers of Vitamin D Deficiency Guarding Against the Dangers of Vitamin D Deficiency
Front Line Defense Against Colds & Flu - Support for Healthy Immune System Balance Front Line Defense Against Colds & Flu - Support for Healthy Immune System Balance
More Weight Loss than Any Other Discovery in Supplement History More Weight Loss than Any Other Discovery in Supplement History

ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
Credit Card Processing
Be the first to know about new products, special discounts and the latest health news. *New subscribers only

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2016 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map