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Charitable Trust to Provide No-Cost ME/CFS & FM Services in New Zealand

  [ 3 votes ]   [ 5 Comments ]
By Chronic Pain and Fatigue Trust • • May 7, 2012

[Ed Note: In particular, this trust's intent to offer no-cost "fieldworkers to provide practical assistance for the severely unwell" should resonate with ME/CFS and FM advocates everywhere this Awareness Day. The Chronic Pain and Fatigue Trust Facebook page is HERE.]

May  7, 2012 NEW ZEALAND:
Fibromyalgia and Chronic Fatigue Syndrome sufferers around the world are looking forward to May 12th 2012 for their international awareness day. The exciting news is that a new charitable trust is launching here in New Zealand on May 10th to provide services for 120,000 - 220,000 people who suffer in this country.

Fibromyalgia (Fibro) and Chronic Fatigue Syndrome (CFS) are extremely debilitating disorders with symptoms such as extreme fatigue (unrelieved by rest), severe headaches, chronic sore throats, body wide muscle pains and spasms, insomnia, severe abdominal pain and nausea.

After 2 years of preparation and building relationships within the health sector, both medical and not for profits, the Chronic Pain and Fatigue Trust is now ready to start providing no cost services to sufferers throughout the country.

Services are aimed at achieving four main priorities;

• Raising awareness and understanding in the community

• Education of medical communities

• Education, self-management and treatment advice and support for those that suffer

• Fieldworkers to provide practical assistance for the severely unwell

The official launch is being held at Rannoch House in Epsom (Thursday 10th May) and is being celebrated by medical professionals, volunteers, other not for profit representatives and local sufferers.

All press are welcome to attend. Canapes and drinks from 6.30 onwards.

Contact Details:
Emma Nielsen
Founder & Chair
Phone 09 282 3865; Cell 021 607 661

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Article Comments Post a Comment

CFS,FM in Canada
Posted by: conniegambke
May 7, 2012
I think this is a great idea,however it is almost impossible to get decent care in Canada for this.Doctors here still think its all in your head,some like me just give up and suffer because we are tired of hearing just eat right and exercise!
Reply Reply

Will be a great help to many
Posted by: IanH
May 8, 2012
Actually only available in Auckland at the moment. However the aim seems to be to increase awareness Nationally. Why call it CFS though???
Reply Reply

A existing national ME/CFS group
Posted by: Paulusthebrit
May 8, 2012
The Association of New Zealand ME Society (ANZMES)a national-wide body has existed in New Zealand for over 32 years. It has and continues to support people effected by ME/CFS, it provides this through a well established network of support groups, information sheets, regular magazines and website. It has regularly brought international experts to NZ for both the NZ medical community and local researchers as well as those with the condition.
Reply Reply

Anzmes does a good job
Posted by: IanH
May 9, 2012
However none of the GPs at our local practice referred anyone to ANZMES because they didn't know they existed. I don't blame ANZMES though. It just tells me how much effort is needed to drive home the importance of support in ME.


Existing CFS National Body.
Posted by: ANZMES
May 10, 2012
AS the National organisation for ME in New Zealand ( ANZMES) we congratulate the CPFT on their launch. ANZMES is Associated New Zealand ME Societies has been the National body for ME/Chronic Fatigue syndrome in New Zealand. for over 32 years now and still continues to be the National Body. ANZMES was started in 1980 and we have medical Doctors as part of our organisation and representatives on our committee from the main support groups around New Zealand. ANZMES has over 32 information sheets written mainly be our medical adviser Dr Vallings that are available and we also produce an excellent magazine quarterly called Meeting Place. ANZMES recently helped Open Door produce a documentary on ME in New Zealand. ANZMES has also donated money and is working in with Prof Warren Tates group setting up a blood bank in New Zealand and looking at research in biomarkers. ANZMES have been inviting ME specialist such as Prof Nancy Klimas, Dr Charles Lapp to NZ over the last few years and they have been taking educational seminars throughout NZ for support groups and Medical professionals. ANZMES committee member Wendy Matthews along with support from ANZMES committee has been catalyst for the petition that has recently was taken to Parliament with concerns on ME/CFS. Lobbying has continued from ANZMES committee members on home help, WINZ and other areas of concern to the NZ ME community
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