ProHealth health Vitamin and Natural Supplement Store and Health
Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help

|
|
|
|

Trending News

CDC Whistleblower Reveals Widespread Manipulation of Scientific Data and Top-Down Pressure on CDC Sc...

How Glutathione Can Save Your Life

Reversing Neurodegeneration with a New Magnesium Compound

Gut Bacteria, Artificial Sweeteners and Glucose Intolerance

Brain inflammation dramatically disrupts memory retrieval networks, UCI study finds

Scientists discover how to 'switch off' autoimmune diseases

Clinical trial demonstrates safety, effectiveness of immunotherapy for AdV, BKV, and herpesviruses i...

Surprising discovery: HIV hides in gut, evading eradication

New estrogen-based compound suppresses binge-like eating behavior in female mice

Long-term use of pills for anxiety and sleep problems may be linked to Alzheimer's

 
Print Page
Email Article

Fibromyalgia & Family Impact Survey: Received an overwhelming, in fact 'eye-opening' response

  [ 108 votes ]   [ Discuss This Article ]
www.ProHealth.com • June 20, 2012


Recently ProHealth helped feature the Fibromyalgia and Family Impact Survey, developed by Karen Lee Richards, a leading FM patient advocate, and U of Pittsburgh fibro/pain specialist Dawn Marcus, MD. They hoped to gather good data for an article to help doctors understand what patients really endure, but they were astonished by your response.

Here is Dr. Marcus’s personal note of thanks, to share with you:

June 20, 2012: This spring, we asked the fibromyalgia community to help us out by sharing their experiences about how fibromyalgia may have affected their relationships with family and friends.

We had hoped for a strong response of about one to two thousand individuals with fibromyalgia completing our survey. We have been positively blown away by the incredible response we received with over six thousand survey participants.

Our final count was 6,126 people with fibromyalgia completing the entire survey!

This overwhelming response will really help us feel like we've been able to tap into an important segment of the fibromyalgia community and we're getting the results together now.

At the end of the survey, people were given an option of telling us important information that we hadn't asked about in the survey questions. A total of 3,597 people shared their personal struggles and triumphs in this question.

These comments gave me a glimpse into the depths of the impact that fibromyalgia has on patients for which I'd previously been fairly unaware.

I know this information will be extremely informative to the medical community, many of whom, like myself, have probably neglected several very important aspects of fibromyalgia impact. As a doctor, this survey is incredibly eye opening. I thought I spent a lot of time talking with my patients and finding out what's impacting them and I was amazed by the depth of isolation and frustration described in these free responses. Thank you so much for sharing with us.

The survey was a fairly lengthy and delved into personal aspects of people's lives and we are truly indebted to all of you shared your stories and experiences with us. We wanted to be sure to thank each of you for participating in this survey. We are hoping to share these results with the healthcare community and I know the information will be as eye opening for them as it has been for me.

Dawn A. Marcus, MD



Please Discuss This Article:   Post a Comment 



[ Be the first to comment on this article ]




 
Free Chronic Fatigue Syndrome and Fibromyalgia Newsletters
Subscribe to
Our FREE
Newsletter
Subscribe Now!
Receive up-to-date ME/CFS & Fibromyalgia treatment and research news
 Privacy Guaranteed  |  View Archives

Free Shipping on Nutritional Supplement Orders

Featured Products

FibroSleep™ by ProHealth FibroSleep™ by ProHealth
The All-in-One Natural Sleep Aid
Optimized Curcumin Longvida® by ProHealth Optimized Curcumin Longvida® by ProHealth
Supports Cognition, Memory & Overall Health
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
Vitamin D3 Extreme™ by ProHealth Vitamin D3 Extreme™ by ProHealth
50,000 IU Vitamin D3 - Prescription Strength
Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium

Natural Remedies

How I Found My Long-Lost Energy How I Found My Long-Lost Energy
Could a B-12 Deficiency Be Causing Your Symptoms? Could a B-12 Deficiency Be Causing Your Symptoms?
A Breakthrough for Mitochondrial Dysfunction A Breakthrough for Mitochondrial Dysfunction
Front Line Defense Against Colds & Flu - Support for Healthy Immune System Balance Front Line Defense Against Colds & Flu - Support for Healthy Immune System Balance
Broad Spectrum Protection Against Brain Aging Broad Spectrum Protection Against Brain Aging

FIBROMYALGIA RESOURCES
What is Fibromyalgia?
Fibromyalgia 101
Fibromyalgia Symptoms
Fibromyalgia Treatments
| CFS RESOURCES
What is CFS?
ME/CFS 101
ME/CFS Symptoms
ME/CFS Treatments
| FORUMS
Fibromyalgia
ME/CFS
ADVANCED MEDICAL LABS
WHOLESALE  |  AFFILIATES
GUARANTEE
CONTACT US
PRIVACY
RSS
SITE MAP
ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus
Credit Card Processing