Activate Now
ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

Repair Damaged Mitochondria and Reduce Fatigue Up to 45%

How One LLND Treats Lyme disease and Co-infections Using Natural Medicine

Surprising Benefits of Cinnamon

New depression diagnosis and treatment

Specific vitamin D levels linked to heart problems

A Sleep Intervention For Children With Autism: A Pilot Study

Higher vitamin D levels may be protective against acute rhinosinusitis

Basic Vitamin A Primer

Saffron reduces oxidative stress in metabolic syndrome patients

Pilot Study: Measuring Relaxation Response to the iLs Dreampad

Print Page
Email Article

Alabama Legislators Support Creating a Clinical Center for Fibromyalgia, ME/Chronic Fatigue Syndrome and Lyme Disease Patients

  [ 4 votes ]   [ Discuss This Article ] • May 8, 2013

Press Release: May 5, 2013, PANDORA

Clay, AL, May 05, 2013 --( On April 30, the Alabama legislature passed a resolution saying the governor and all other interested parties should work toward creating a center and improving access to knowledgeable health care for patients with neuro-endocrine-immune diseases, including fibromyalgia, ME/CFS and Lyme disease. A 2012 PANDORA Org survey showed 61% of Alabama NEIDs patients — more than in neighboring states — are not satisfied with their medical care and do not believe their physician is adequately knowledgeable of their disease.

The survey results motivated St. Vincent’s Health System to sponsor a series of courses for their physicians and nurses to learn more about diagnosing and treating these debilitating and often misunderstood diseases. The first course will be on May 7 with Harvard Medical School professor Dr. Anthony Komaroff giving a one-hour course on ME/CFS, also known as chronic fatigue syndrome, at St. Vincent’s East. Lori Chapo-Kroger, president of the national advocacy organization PANDORA Org, is traveling from Michigan to be the patient example in the ME/CFS course. The other two illnesses included in the course series are tick-borne illnesses, such as Lyme disease, and fibromyalgia.

“The best way to correct this poor access to knowledgeable health care is through physician education and creating a center for these diseases as a group,” said Chapo-Kroger. “Because of the support of patients, hospital administrators and state legislators, Alabama seems to have fertile ground for creating an NEI Center, an important goal of our organization.”

According to national prevalence studies, approximately 20,000 Alabamians have ME/CFS (one in 240) and 144,000 have fibromyalgia (one in 40). Lyme disease is the fastest growing vector-borne disease in the nation, and people have come become infected with the Lyme bacteria from exposure in Alabama.

The PANDORA Org survey also showed that 61% of Alabama NEIDs patients searched for an accurate diagnosis for over two years before receiving one, and 59% of Alabama NEIDs patients see four or more physicians before receiving an accurate diagnosis. Some travel to other states to find a knowledgeable physician.

PANDORA Org worked with sponsors Sen. Slade Blackwell, Rep. Allen Treadaway and Policy Advisor to Senate Majority Leader Michael Ciamarra, all in Alabama, to have the resolution written and passed. Gov. Robert Bentley is expected to sign this resolution soon.

Chopo-Kroger will be speaking at the city of Clay council meeting on May 6 when they will consider passing a proclamation that recognizes May 12 as International NEIDs Awareness Day.

A local PANDORA Org representative has also been speaking to Alabama Rotary Clubs, informing them about NEIDs in a presentation titled “The Other Polio.” ME/CFS was referred to as “atypical polio” and “abortive polio” until the 1950s because the symptoms are similar to polio, and ME/CFS also occurs in outbreaks.

NEIDs are also referred to as “complex chronic diseases” or “chronic multi-system diseases” and include myalgic encephalomyelitis / chronic fatigue syndrome, fibromyalgia syndrome, chronic Lyme disease, Gulf War illness and multiple chemical sensitivities / environmental illness.

The Alabama NEIDs Solutions website has links to the resolution, the flier advertising the St. Vincent's May 7 course and to the PANDORA Org website,

About PANDORA Org: PANDORA Org is a 501(c)(3) nonprofit organization headquartered in Wyoming, Michigan. PANDORA Org improves NEIDs patients’ lives through assistance, advocacy, education and disease awareness.

Post a Comment

Featured Products From the ProHealth Store
Energy NADH™ 12.5mg Optimized Curcumin Longvida® Vitamin D3 Extreme™

Looking for Vitamins, Herbs and Supplements?
Search the ProHealth Store for Hundreds of Natural Health Products

Article Comments

Be the first to comment on this article!

Post a Comment

Free Chronic Fatigue Syndrome and Fibromyalgia Newsletters
Subscribe to
Subscribe Now!
Receive up-to-date ME/CFS, Fibromyalgia & Lyme Disease treatment and research news
 Privacy Guaranteed  |  View Archives

Repair Damaged Mitochondria and Reduce Fatigue Up to 45%

Featured Products

FibroSleep™ FibroSleep™
The All-in-One Natural Sleep Aid
Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
Optimized Curcumin Longvida® Optimized Curcumin Longvida®
Supports Cognition, Memory & Overall Health
Vitamin D3 Extreme™ Vitamin D3 Extreme™
50,000 IU Vitamin D3 - Prescription Strength
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function

Natural Remedies

Natural Support for Mood, Sleep and Mental Focus? L-theanine Natural Support for Mood, Sleep and Mental Focus? L-theanine
Live Without Anxiety or Stress
Can Glycine + Amino Acids Be the Secret to Deep, Rejuvenating Sleep? Can Glycine + Amino Acids Be the Secret to Deep, Rejuvenating Sleep?
The Most Powerful Natural Antioxidant Discovered to Date - Hydroxytyrosol The Most Powerful Natural Antioxidant Discovered to Date - Hydroxytyrosol
Optimize Your Immune System Naturally: Thymic Protein A Optimize Your Immune System Naturally: Thymic Protein A

What is Fibromyalgia?
Fibromyalgia Diagnosis
Fibromyalgia Symptoms
Fibromyalgia Causes
Fibromyalgia Treatments
Fibromyalgia Diet
Fibromyalgia Medications
M.E. & CFS
What is M.E./CFS?
M.E./CFS Diagnosis
M.E./CFS Symptoms
M.E./CFS Causes
M.E./CFS Treatments
M.E./CFS Diet
M.E./CFS Medications
What is Lyme Disease?
Lyme Disease Diagnosis
Lyme Disease Symptoms
Lyme Disease Causes
Lyme Disease Treatments
Lyme Disease Diet
Lyme Disease Medications
M.E. & CFS
Lyme Disease
General Health
ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus
Credit Card Processing