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VIDEO: Voices of Fibromyalgia – Raising Our Signs for Awareness

  [ 96 votes ]   [ 5 Comments ]
www.ProHealth.com • April 27, 2014


VIDEO: Voices of Fibromyalgia – Raising Our Signs for Awareness
Video Synopsis: See the fibromyalgia documentary film that's changing lives one VOICE at a time. With over 20,000 thousand views on YouTube and being shown on college campuses and social media to help educate about the effects of fibromyalgia, this is not just a mini-movie, it's a movement!

Fifty survivors of fibromyalgia participated in this caption-video documentary film to help raise awareness about fibromyalgia by raising their signs. Directed by and featuring Haullie Free-Volker, this mini-film takes you on a journey through 2 months inside the life of a fibromyalgia survivor and what it takes to struggle with this very real, very painful condition. With the use of positive and thought provoking artistic imagery and raw video footage of what like is like living with fibromyalgia on a daily basis, survivors and non-survivors alike are given a window into the symptoms, emotions and contrast that takes place in the life of all fibro survivors through the eyes of fibromyalgia survivor Haullie. You will get to see the many "faces" of fibro and how they change depending on the severity of the illness. You will feel the emotions and you will understand the reality behind what most people never show others and why this is called the invisible illness.

If you are a survivor of fibro or you know someone who wants to know about what fibro really is like, this is the perfect video to share with them to help them understand your condition and what you need for them to understand and support your journey day by day. Because we all matter no matter what. Every story is unique and every story deserves to be heard.This is not just Haullie's story, this is everyone's story. And this is only the tip of the iceberg when it comes to showing you what fibromyalgia is really like behind closed doors.



Personal Message from the Director: "I thought that I had created something visual for Fibromyalgia sufferers, they would finally have something they could not only relate to but take back to their friends and family to help them understand this condition. It's about support, awareness, ending stigmas and transforming your core beliefs about this very real condition." – Haullie Volker

Music Credit:

Florence and the machine - No Light No Light
Tori Amos - Little Earthquakes
Tori Amos - Spark
Florence and the machine - Shake it out
Tori Amos - 1000 Oceans
Amy Fix - You are my spoon

 




Please Discuss This Article:   Post a Comment 

Voices of fibromyalgia
Posted by: Sewsewmad
Apr 27, 2014
I cannot hear the soundtrack. When I open it in YouTube it says the content is blocked. What am I doing wrong?
Reply Reply

Voices of fibro
Posted by: Sewsewmad
Apr 27, 2014
I now have the soundtrack and it's excellent so far!
Reply Reply

Awesome !
Posted by: homewalker
Apr 29, 2014
This is great. It's a wonderful idea. I myself do not suffer from this, but I do have Chronic Fatigue Syndrome. It's a very hard thing to deal with when there is no tangible "sign" of illness. It's hard for people to understand something they can't "see". Currently I am going through treatment for Triple Negative IDC breast cancer and believe or not I find it EASIER to deal with than CFS. It's more "real" to people and something they can relate to in a weird sort of way. We need more of this type of awareness.
Reply Reply

Fibro Awareness
Posted by: harmant
Jun 15, 2014
I have fibromyalgia and this video is fantastic. Fibro is reel and so are the people who have it.
Reply Reply

Video Voices of Fibromyalgia.
Posted by: HarryVSS
Mar 14, 2015
Such a pity this wonderful movie had to be removed, on youtube I see it is private, I hope it can at least stay there that way. Too bad copy rights etc. have to put such a weight on making a non profit movie that for years has helped and inspired many who were/are at the end of their tether. It was a great way of telling friends: watch this and you'll understand how I live.
Thanks Haullie from the bottom of my heart. May there be a way to publish this wonderful movie and make it available to public.
Harry Versluijs
aka Harry V Singer Songwriter
Reply Reply


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