ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help

|
|
|
|

Trending News

Mitochondria-Booster NIAGEN® Shows Promise in First Human Clinical Trial

Can Glycine + Amino Acids Be the Secret to Deep, Rejuvenating Sleep?

Exploring the association between Morgellons disease and Lyme disease: identification of Borrelia bu...

Lyme Disease Activists Take Fight to Washington D.C.

New Envita Study Shows Chronic Lyme Disease "Fools" Immune System, Resistant to Antibiotics

Safely Burn Away Body Fat

Omega-3 fatty acids boost B vitamin brain benefit

Substantial health threat: Never-before-seen tick-borne disease

Lyme Advocates Call on IDSA to Focus on Patient Care Instead of Attacking Those in Distress

Zinc deficiency linked to chronic inflammation

 
Print Page
Email Article

What Would You Do With A Million Dollars?

  [ 1 vote ]   [ Discuss This Article ]
www.ProHealth.com • August 19, 2013


"If there is any disease cohort that needs this kind of jumpstart funding, it is the ME/CFS community," Jennie Spotila.

Eleven ME/CFS organizations, including A Race to Solve CFS, CFIDS Self Help, CFIDS Association of America, CFS Knowledge Center, Fibromyalgia-ME/CFS Support Center, Inc., Health Rising, Massachusetts CFIDS/ME & FM Association, OFFER, PatientsLikeMe, Rocky Mountain CFS/ ME & FM Association and Speak Up About ME are competing for $12 million that will fund up to 18 Patient-Powered Research Networks. These 18 Patient-Powered Research Networks will serve as the basic building blocks for a National Patient-Centered Clinical Research Network. This is a tremendous opportunity for the ME/CFS and Fibromyalgia community! 

The National Patient-Centered Clinical Research Network will improve our nation’s capacity to conduct research effectively and efficiently. Having ME/CFS and Fibromyalgia in this National framework ‘mainstreams’ research on our disease and will attract the best and brightest investigators. This will give us ample opportunity to not only participate in ME/CFS and Fibromyalgia research but also to enter into the conversation about the types of research that should be done. 

Part of the application requires that we describe some basic aspects of our community. If you live in the U.S. and you are a CFS, ME, or Fibromyalgia patient, please take a moment to answer the 5 questions of this survey. We need this information by the end of August, so please take a moment to click through to this survey right now. Answering the 5 questions will take less than one minute. Every U.S. patient can participate in the Research Network; you do not have to be a member of any organization to participate. If you have already answered the survey, thank you. You do not need to do so again.

The survey closes on August 31, 2013, so act now!

Click HERE for the short survey.

A million dollars could go a very long way in our community! Let's all pull together to make this happen!

Thank you!



Please Discuss This Article:   Post a Comment 



[ Be the first to comment on this article ]




 
Free Chronic Fatigue Syndrome and Fibromyalgia Newsletters
Subscribe to
Our FREE
Newsletter
Subscribe Now!
Receive up-to-date ME/CFS & Fibromyalgia treatment and research news
 Privacy Guaranteed  |  View Archives

Save on Vitamins and Supplements

Featured Products

Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
FibroSleep™ by ProHealth FibroSleep™ by ProHealth
The All-in-One Natural Sleep Aid
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
Optimized Curcumin Longvida® by ProHealth Optimized Curcumin Longvida® by ProHealth
Supports Cognition, Memory & Overall Health
Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium

Natural Remedies

Cocoa's Polyphenol Riches – All the Health Benefits without the Sugar, Calories and Guilt Cocoa's Polyphenol Riches – All the Health Benefits without the Sugar, Calories and Guilt
Block food Cravings At Their Molecular Root Block food Cravings At Their Molecular Root
Mitochondria-Booster NIAGEN® Shows Promise in First Human Clinical Trial Mitochondria-Booster NIAGEN® Shows Promise in First Human Clinical Trial
Astaxanthin - A Little-Known but Power-Packed Nutrient Astaxanthin - A Little-Known but Power-Packed Nutrient
Optimize Your Immune System Naturally: Thymic Protein A Optimize Your Immune System Naturally: Thymic Protein A

FIBROMYALGIA RESOURCES
What is Fibromyalgia?
Fibromyalgia Diagnosis
Fibromyalgia Symptoms
Fibromyalgia Treatments
| CFS RESOURCES
What is CFS?
ME/CFS Diagnosis
ME/CFS Symptoms
ME/CFS Treatments
| FORUMS
Fibromyalgia
ME/CFS
ADVANCED MEDICAL LABS
WHOLESALE  |  AFFILIATES
GUARANTEE  |  PRIVACY
CONTACT US
LIBRARY
RSS
SITE MAP
ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus
Credit Card Processing