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Dr. Mikovits Presentation Jan 22 on XMRV at ProHealth.com

  [ 174 votes ]   [ 27 Comments ]
www.ProHealth.com • January 21, 2010


MERE WORDS COULD NOT EXPRESS OUR THANKS TO DR MIKOVITS FOR HER XMRV PRESENTATION ON JANUARY 22.

To view downloadable videos of the entire presentation and Q&A session, click here. The slides used will be posted soon as well.


__________________________

ProHealth and the HHV-6 Foundation are honored to be hosting this globally webcasted presentation & Q&A session by XMRV researcher Judy Mikovits, PhD.
This will be Dr. Mikovits' first presentation to patients since publication of the XMRV paper in October 2009.

Annette Whittemore, Founder and President of the Whittemore-Peterson Institute, will kick off the event.

TIME:
2 to 4 pm Pacific Time, Friday Jan 22 (seating begins at 1:30)
For the time of the event where you live, check the World Clock Time Converter - www.timeanddate.com/worldclock/converter.html - and convert from U.S.A. California to your time zone.

PHYSICAL LOCATION (note the move to a larger venue; ALL ARE WELCOME):
Hotel Mar Monte, at 1111 E Cabrillo Blvd - El Cabrillo Room
Across from East Beach, between Corona Del Mar and Ninos Drive.
Free Valet Parking! (In rear.)
See map - www.hotelmarmonte.com/map-directions/index.cfm

TO JOIN THE EVENT AS IT IS STREAMED ONLINE
A link to the Mikovits Presentation Page is featured on ProHealth.com. You can go there now to check whether you have the latest version of Flash Player, download it free if you don't, and take a virtual seat Friday when the event begins.

A VIDEO RECORD OF THE EVENT WILL BE POSTED LATER ON PROHEALTH.COM

DR. MIKOVITS WILL ANSWER QUESTIONS
Attendees at the event in Santa Barbara will be able to question Dr. Mikovits directly about XMRV research progress, findings, testing, and plans. Additionally she will answer selected questions submitted online in advance, and is incorporating answers to many of these in her presentation.

BRIEF BACKGROUND

Dr. Mikovits
As director of research at the Whittemore-Peterson Institute in Reno, Nevada, Judy Mikovits gained worldwide attention in October with publication of a paper in the journal Science, reporting “Detection of an Infectious Retrovirus, XMRV, in Blood Cells of Patients with Chronic Fatigue Syndrome.” To review the article and subsequent media coverage, see “In The News” at WPInstitute.org.

XMRV Research Continues, Worldwide
Dr. Mikovits' team at Whittemore-Peterson, and collaborating researchers around the globe, are working intensively on next steps in the research – which relates to ME/CFS, fibromyalgia and other neuroimmune disorders, certain cancers, and much more.

Regarding controversy over a recent UK-based research study claiming to find no XMRV in patient samples...
Dr. Mikovits states vigorously, "You can't claim to replicate a study if you don't do a single thing that we did in our study... Our goal has always been to translate our research into diagnostics and therapeutics for patients... We are still trying to develop drugs to treat Chronic Fatigue Syndrome. That was our goal, and nothing has changed."

* * * *

We hope that you will be able to participate in this historic event with Dr. Mikovits and WPI Founder Annette Whittemore, and look forward to joining you there on January 22.

Sincerely,

HHV6 Foundation (http://www.hhv-6foundation.org)

ProHealth, Inc. (http://www.prohealth.com)




Discuss This Article Post a Comment 


Link doesn't work
Posted by: katelar
Dec 16, 2009
The "In the News" link doesn't work.
Reply Reply

Thanks ProHealth
Posted by: beanier
Dec 23, 2009
Thanks for this ProHealth and HHV-6 Foundation.
Reply Reply

How do we submit a question
Posted by: IanH
Jan 16, 2010
I have a question regarding familial incidence of cfs and hence familial transfer of XMLRV. This in the case of a family where father, mother, daughter and grandson have cfs. Thanks Ian Hodgson
Reply Reply

 
re familial incidence:
Posted by: slammed
Jan 26, 2010
contagious

 


XMRV
Posted by: resigned
Jan 21, 2010
I have had ME for 18 years now. Over that time I have tried every conceivable 'remedy' and therapy. A year ago I started having "spiritual healing" from a Spirit doctor doing extraordinary things using the physical body of a Medium. When I asked whether the 'spirit doctors' knew what caused ME, he told me that 'yes indeed, they knew that it was caused by a virus and that the research community on earth had not yet discovered the virus, but eventually would do so"! I had already surmised that it had to be a virus, particularly as the illness appears to spread, as suggested by historic data on 'outbreaks', e.g. at The Royal Free Hospital in London. I knew it was a matter of time before the cause was found. Having put in a request to the Spirit doctors to please help the virus to be discovered soon, i am pleased that this has come to be. It is pathetic that the findings are being discredited. Dr Mikovits please do not pay them any heed. Do not give up looking for a cure. Blessings and thanks.
Reply Reply

Hope XMRV is the cause of this illness, but I doubt it.
Posted by: richard m
Jan 22, 2010
This all seems rather dubious: the UK research team has already spectacularly refuted the earlier XMRV findings. Research into the underlying biochemical causes of fatigue, sleep, and stress is the only way forward for CFS. After 20 years of looking for a serious viral/immune cause for the disease there is a spectacular lack of concrete data. People with the disease test negative for nearly every immunological test under the sun. It is patently obvious to all those in my ME/CFS support group in New Zealand that the disorder in neurological: the three main symptoms beside fatige being brain fog, sleep deprivation, and emotional sensitivity to stress. It's time to look at abnormalities in the nervous system and the brain. Hope you all get well soon. Richard M.
Reply Reply

spectacular??
Posted by: IanH
Jan 22, 2010
The research carried out by the British team is totally inadequate as a replication. Please review the biochemistry/virology involved in this research. This retrovirus requires viral-culture to detect it properly. A process the British team didn't want to spend the money on. It is basically a jack-up to protect the British system that has been set up by Prof. Simon Wessley throughout the country to save the Government money on research and treatment. CBT being the main treatment, supported by physiotherapy of sorts. In New Zealand a similar attitude to this chronic illness pervades among the medical profession. In the history of medicine - When in doubt call it psychological. Somatization is psychiatric bullshit. Calling the illness neurological is just one step removed and would delay progress on the illness. I doubt there is a neurologist in New Zealand who would know where to start. They would be overwhelmed by the miriad of symptoms and refer their patients to a psychiatrist. I don't hold much hope of New Zealand Medicine having a look in on the research into this disease
Reply Reply

I hope you're right, but I doubt it. CFS is a neurological problem!
Posted by: richard m
Jan 22, 2010
I hope to god that 67% have XMRV, but the UK teams results speak for themselves. No DNA found during PCR testing, yet people are doubting their testing methods! If it was there they would have found it. People with CFS/ME are dillusional in their belief that it's a viral problem. Only those whose illness is clearly brought on by viral infection can consider this to be the cause. It's a bit like the Emperors New Clothes this whole XMRV thing. Why are people with ME/CFS so defensive about accepting that the illness is neurological? People seem so frightened by the thought that they may have a biochemical imbalance in there CNS or their brain. It's a disease of the CNS or the brain, accept it, and stop pushing the viral envelope so we can get some real research done. Who cares weather some people will say it's a somatization disorder or a mental illness; we need thorough research done in this area. It would seem highly unlikely that it is an immunological disorder, given that many cases are brought on overnight after an extended period of stress. Cheers, Richard M
Reply Reply

 
Science In Short Supply
Posted by: GFK
Jan 22, 2010
What a lot of garbage is being spoken about the so-called UK "study". This rushed piece of attention-grabbing by Dr Wessley using his psychiatric patients is dubious in motive and execution. Ironic that a few "innocent" posters here should suggest that it means we should get on with "real" research. It is precisely because of the questionable behaviour of Wessley and his associates over many years that objective biological research has failed to take place to any great extent. And that's exactly how they like it. Competing interests any of you UK study "supporters"? Don't insult our intelligence. Oh wait, that's what you've been doing for years.....

 

 
CNS, virus, ... answer to Richard M.
Posted by: Elske
Jan 23, 2010
it doesn't matter to me that ME is a CNS disease, an immunological disease or a multisystemic disease caused by a virus (XMRV ...?). I just want an ANSWER to all those questions we have to deal with. Just "knowing" what went wrong would mean the world to most of us. So if you think most of us aren't open to the idea this might be a neurological disease, I think you're mistaken.

You say "Who cares weather some people will say it's a somatization disorder or a mental illness". Of course we care because this is exactly the reason why there is practically NO research funded by goverments, why insurance companies can exclude us, why we have to fight not only our disease but also our GP's, specialists, society ...

From the moment you mention you have ME/CFS doctor's and other people look at you differently. Haven't you noticed that? Especially with doctors this can have serious consequences. We can suffer from something not related to ME/CFS but we will have a much harder time being taken seriously.

I myself just want answers, for myself, for my family, for my partner, for my doctor. I want to STOP searching for answers. Don't you?

 


Science In Short Supply
Posted by: GFK
Jan 22, 2010
What a lot of garbage is being spoken about the so-called UK "study". This rushed piece of attention-grabbing by Dr Wessley using his psychiatric patients is dubious in motive and execution. Ironic that a few "innocent" posters here should suggest that it means we should get on with "real" research. It is precisely because of the questionable behaviour of Wessley and his associates over many years that objective biological research has failed to take place to any great extent. And that's exactly how they like it. Competing interests any of you UK study "supporters"? Don't insult our intelligence. Oh wait, that's what you've been doing for years.....
Reply Reply

Who ARE you People and Why do you even care?
Posted by: greybeh
Jan 23, 2010
Reading the comments on this site. Why are people SO vehemently opposed to evidence that CFS is more than psychological? Who ARE these people and why do they feel so strongly? Why do they even care if they're not sick? Just wondering why people like us who have an illness are being subjected to out-right attempts at oppression. Why favor the UK findings, a poorly-designed study that as I understand it was shipped off for publication quickly without review, to a study that was confirmed by such influential organizations as the National Cancer Institute and the Cleveland Clinic? What exactly is going on here??? More folks who are OPPOSED to the XMRV findings are posting on Prohealth than those in support of them. Why come out of the wood-works to respond so much more quickly than those of us who have more to gain or lose from the outcome of this research?!?! I, personally, am waiting to see how further studies pan out. I think there is a lot going for this study (from the WP Institute) which other people are blatantly ignoring. Why do you have your own agenda? I can understand folks who say "Wait and see. Further research needs to be done." But not people who jump all over this and say, "YOU'RE WRONG!!!" The UK study found NO occurrence of the virus, and that's highly unusual. One would expect that they would find SOME evidence. The study was obviously assembled very quickly while the WP Institute's study was a long-time in the making and was a collaboration between different entities. I just can't fathom why people are jumping all over this and screaming that it's WRONG. What do you have to gain from arguing about this so early on? It *IS* still early. Or, keep acting the way you are and raise more questions about your motivations. I don't really care. It's very telling.
Reply Reply

this is GREAT RESEARCH!
Posted by: sunnyslumber
Jan 23, 2010
The immune system is also affected by stress, various insults such as (infections etc.) and if altered may lead to many neurological type symptoms since these two systems interact a lot. To the person who said the research had been refuted? How can this be true? They used PCR with no + control? We don't know the DNA amount used in PCR and many other factors that could impact that (the UK) study's quality almost totally. Lest you think I am just another defensive patient, I have done plenty of PCRs and know how it works. I read the UK article also. Based on my own knowledge I am not at all convinced by the uk study.
Reply Reply

your diagnosis
Posted by: IanH
Jan 23, 2010
Richard M. Hi, Have you been diagnosed with Chronic fatigue syndrome (ME)? If so: How long have you had the illness? How was it diagnosed? What treatment program have you followed? What has been your response to the treatment? I once thought that this problem which I suffer is neurological. It is - in effect! As a Psychologist who has treated many people diagnosed with cfs, fms and mcs and depression and chronic anxiety disorders I have come to regard this illness, as you do, as a "symptom set" of more than one underlying illness. Although I don't regard the mystery virus onset as indicating that they are the people with a viral cause. It doesn't fit the data and it's too simplistic. If you look at the sensory, adrenergic and immune mRNA responses to intense exercise as in the study by Alan Light this strongly suggests something interfering at the genetic level. In a large multidimensional study organised by the CDC and published in the Journal Of Pharmacogenetics "suggest strongly that many causes of CFS have links to a handful of brain and immune system - related genes that either harbor small mutations or are working abnormally for some reason" This is classic retroviral interference rather than a group of people wired to handle stress abnormally. I am quite certain that a virus/s is the root cause of many cases of what is diagnosed as cfs and the WPI study is a THOROUGH and welcome start in this field. Hopefully to be replicated, positively or negatively but with the appropriate methodology. This illness is far too serious for the world to be treated lightly or politically as many of us believe the British study was.
Reply Reply

 
xmrv
Posted by: woozyman
Jan 23, 2010
I was excited when I first read about XMRV. However I have read a lot of what researchers have said over the years and I would like to discuss this: DR Hyde says that ME?CFS is similar to post polio syndrome and a microbiologist (DR Dowsett) has a large bank of data from ME patients. As far as I know, they believe that it is an enterovirus which is the cause and I think that they believe it has managed to enter the cns/brain, caused inflammation and the result is ME. Dr Chia has been doing work on enterovirus in ME. Thats all I want to say so any thoughts please get back.

 

 
Dr Wessley's study
Posted by: peterc
Jan 23, 2010
Another dodgy dossier perhaps?

 

 
xmrv team didn't find virus. Answer to rich's scepticism
Posted by: woozyman
Jan 24, 2010
Rich

I forgot, the reason why the UK team did not find the virus suggests Dr Mikovits, is because they "skewered...." their testing procedures so that they wouldn't find it.

Now why would they do this? The reason I am led to believe and also from reading about this guy Wessley over a number of years and also my intuition is that he has been (possibly) paid by (american?) insurance companies to keep ME/CFS in the psychological department. 2) I believe that this guy's salary in based on him working at Kings College's CFS unit in London 3) This is a biggie.......Gulf WAR SYndrome......the MOD (ministry of defence) and the UK government DON'T want GWS to be proven/linked to the numerous vaccines that were given to soldiers....and they know that ME/CFS is possible got by taking certain vaccinations (eg Hep B).... as a by-the-by, do these vaccines have XMRV in them I wonder?.........4) there are other conflicts of interest I have read about this Wessley guy but I can't remember them all. Basically he is one of the most hated medics in the UK as he has done nothing to research ME BIOLOGICALLY, used to even say that ME was somatization disorder blah blah blah....evenm I don't like this guy due to all the above..Doctors are supposed to seek out the truth and not cover it up by being given financial gain and this is the reason why he is not liked much.

This MAY therefore be the reason why they didn't find xmrv as Mikovits suggests..but only MAY be. it may also be that they really did do it properly and that WPI has made a mistake in the testing procedure. What strikes me as a bit strange is that originally this cohort (Incline Village outbreak) are supposed to have had HHV as the cause (Dr Peterson has said it was this virus)....agan Byron Hyde said the incubation period is too long. Everything is always too long for Hyde....but the point is why say it's HHV for ages and then all of a sudden it's xmrv?

 


Yes been in bed for 5 years now, had for 11 years.
Posted by: richard m
Jan 23, 2010
Hi Ian. Writing this in bed on my lap-top. I am just extremely skeptical of the results from the WP Institute. They were set up a few years ago with the soul focus of finding a cure for M.E. and strait off the bat they are claiming they have a vital piece of the puzzle. How many false alarms have we had over the years? I don't doubt that the UK study wasn't perfect, but these guys are virologists and know how to find a virus. I have read all the science and are aware of all the research, but the immunological complaints would seem to stem from an underlying CNS disturbance and not the other way round. How many people with M.E./CFS do you know who speak of being anxious and introverted as children, or having concurrent mental health diagnosis after or prior to the illness. I hope they can validate these results again because I to have many symptoms which would indicate that my immune system isn't quite right, but if they can't I hope they start looking really hard at what is happening in the brains of people with CFS: at the source of the problem. Hope I'm wrong, Richard M.
Reply Reply

 
Insulting Comments
Posted by: Concerned Dad
Jan 25, 2010
Richard M, your comments that people with CFS often have prior mental health problems and/or anxiety issues as children is downright insulting. Our daughter has had this illness since she was 18 (10 years now), and prior to being misdiagnosed with what doctors claimed was just Mono, had been a top athlete, student government leader, and nationally-ranked scholar. She was, and is, a perfectly well-adjusted individual who has been hit by what we have always believed was a stealth virus. Yet, people like you perpetuate the myth that somehow the illness is psychological, or that sufferers are just lazy or don't do things for their health they should do like exercise and eat better. Such irresponsible comments like that have driven CFS sufferers to depression and suicide. We're watching to see if the WP Institute findings can be duplicated by reputable peer studies. But please stop disseminating this crap about CFS being psychological. People once believed polio was a mental illness. Which side would you have been on in that debate?

 


xmrv
Posted by: woozyman
Jan 24, 2010
Richard Why do you talk about immunological problems? There have been NO major immunological problems associated with ME/CFS, indeed this is why it is a syndrome, because they can't pinpoint anything wrong. Moreover, people, at least in the UK anyway, do not get evaluated for complicated immune system abnormalities....the only thing they do is a complete blood count which always shows (at least mine has always) that there are enough white cells, red cells etc. But UK people do NOT get tested for complicated immune tests. I don't know whether this natural killer cell thing not working properly shows up in thde general blood screen or not, but if it does, they certainly don't mention it here in the UK! I am not sure about you or others but I don't catch anything nowadays and I have heard that some people with ME don't catch much and others catch a lot of things. SO, why don't they agree that there IS something wrong with the immune system then and try to put that right as a treatment??????????????????????????????? I just can't get my head around how stupid doctors are.
Reply Reply

 
xmrv team didn't find virus. Answer to rich's scepticism
Posted by: woozyman
Jan 24, 2010
Rich

I forgot, the reason why the UK team did not find the virus suggests Dr Mikovits, is because they "skewered...." their testing procedures so that they wouldn't find it.

Now why would they do this? The reason I am led to believe and also from reading about this guy Wessley over a number of years and also my intuition is that he has been (possibly) paid by (american?) insurance companies to keep ME/CFS in the psychological department. 2) I believe that this guy's salary in based on him working at Kings College's CFS unit in London 3) This is a biggie.......Gulf WAR SYndrome......the MOD (ministry of defence) and the UK government DON'T want GWS to be proven/linked to the numerous vaccines that were given to soldiers....and they know that ME/CFS is possible got by taking certain vaccinations (eg Hep B).... as a by-the-by, do these vaccines have XMRV in them I wonder?.........4) there are other conflicts of interest I have read about this Wessley guy but I can't remember them all. Basically he is one of the most hated medics in the UK as he has done nothing to research ME BIOLOGICALLY, used to even say that ME was somatization disorder blah blah blah....evenm I don't like this guy due to all the above..Doctors are supposed to seek out the truth and not cover it up by being given financial gain and this is the reason why he is not liked much.

 

 
xmrv team didn't find virus. Answer to rich's scepticism
Posted by: woozyman
Jan 24, 2010
Rich

I forgot, the reason why the UK team did not find the virus suggests Dr Mikovits, is because they "skewered...." their testing procedures so that they wouldn't find it.

Now why would they do this? The reason I am led to believe and also from reading about this guy Wessley over a number of years and also my intuition is that he has been (possibly) paid by (american?) insurance companies to keep ME/CFS in the psychological department. 2) I believe that this guy's salary in based on him working at Kings College's CFS unit in London 3) This is a biggie.......Gulf WAR SYndrome......the MOD (ministry of defence) and the UK government DON'T want GWS to be proven/linked to the numerous vaccines that were given to soldiers....and they know that ME/CFS is possible got by taking certain vaccinations (eg Hep B).... as a by-the-by, do these vaccines have XMRV in them I wonder?.........4) there are other conflicts of interest I have read about this Wessley guy but I can't remember them all. Basically he is one of the most hated medics in the UK as he has done nothing to research ME BIOLOGICALLY, used to even say that ME was somatization disorder blah blah blah....evenm I don't like this guy due to all the above..Doctors are supposed to seek out the truth and not cover it up by being given financial gain and this is the reason why he is not liked much.

This MAY therefore be the reason why they didn't find xmrv as Mikovits suggests..but only MAY be. it may also be that they really did do it properly and that WPI has made a mistake in the testing procedure. What strikes me as a bit strange is that originally this cohort (Incline Village outbreak) are supposed to have had HHV as the cause (Dr Peterson has said it was this virus)....agan Byron Hyde said the incubation period is too long. Everything is always too long for Hyde....but the point is why say it's HHV for ages and then all of a sudden it's xmrv?

 


CFS and Stress
Posted by: IanH
Jan 24, 2010
CFS symptoms are exaggerated by stressors both physical and psychological. Physical exercise, constant threatening situations and relationships, the weather, bacterial infections and common colds etc. Many illnesses are affected by stress. When the stress-coping systems, partly immunological, partly neurological, partly endochrine all working together are affected the reponse to these stressors will be impaired. When people don't sleep well there is further worsening of symptoms. when people avoid exercise there is worsening of symptoms, when some people eat badly (normal range for most of us) too much sugar or sulphites their gastro-intestinal symptoms are worse. So, after many years of this illness it is possible for someone to make their illness worse -much worse, possibly more than any other illness I know of. This is why CBT helps, especially if started early in the course of the illness. This is why graduated exercise helps. This is why dietary change helps. But these things say nothing of the cause of the illness.
Reply Reply

xmrv
Posted by: woozyman
Jan 24, 2010
CBT doesn't help everyone. Look at the politician who was told to exercise more and he came out of the gym, collapsed and died. He had ME
Reply Reply

no effective reatment for all
Posted by: IanH
Jan 25, 2010
Of course, some forms of assistance or change are not appropriate for some people. Going to a gym is far from what is meant by graduated exercise. What gym is properly equipped or staffed to cope with someone with cfs? I have never come across one. "Normal" people die as a consequence of going to a gym. That doesn't mean exercise is not an appropriate action to counter the progression of symptoms that can occur in CFS.
Reply Reply

Exercise and CFS, Viruses, Everyone's Opinions
Posted by: Cattttttt
Jan 28, 2010
I got ill in 1989,3 weeks after leaving a hospital job where I was a dietitian. I was also an aerobic instructor. I was under stress, but the disease was real.I remember the exact moment. In 1992, I got active CMV from a friend who caught it during an outbreak in Texas. We both progressed to full blown CFS, but his subsided a great deal after a couple of years.I spent years in bed, in unbelievable pain, cognitive disorders, progressing to immune disorders, and divorce. My little boy, who was into computers found a Prodigy message board for my illness, where I met a woman named Mary Schweitzer, and finally others with my illness.I participated in the rally in DC in the early 90s,helped organize some of it with her. Empowering. She was a professor in a wheelchair. It got me of my bed; going by train. I had zero white blood cells by then. Zero. I developed melanoma years later. I caught it early. I have a big scar on my arm. I got other viruses. As a healthcare professional, this all felt like a virus from day one. Viruses produce neuorological symptoms. I exercised however I could, when I could. It was a part of me. In the water, in the beginning. Then isometrics. I was part of a study from a cancer institute where I was made a vaccine from IL2, TNF, GMCSF and something from my blood. It gave me back more immune cells and made them competant. The MD died and his work died with him. A friend sent me to Dr Bihari, who no longer practices. He put me on Naltraxone, and other meds and supplements that really helped. A personal trainer taught me adaptive exercise. A physical therapist did as well. I went for 2 years. A psychologist told me to become a certified personal trainer, and I resumed my nutrition counseling as well. He helped me change my life in 6 weeks in 1995.He wouldn't take my copay.I work with special populations. I rehab myself, as I help others. I DO EXERCISE A LOT. I am amazed at what I can do. I know my own boundaries. It took many years to get to this place. Dr Teitlebaums energy drink prevents all exercise induced crashes for me, giving me the amino acids to make more l glutathione. I now also take an additional 400 mg of CoQ10 besides what is in my multi.That's the only doseage that I feel anything anymore. Entering menopause also decreased some of my symptoms. I stay on top of medical and alternative med. literature. I add and delete supplements, and meds as necessary according to symptoms. I've had a 64 slice CT of my heat. It is perfect. I'm concerned about what will happen to me when I can no longer keep up, when I am old. (I'm mid 50s).I now need Host Defense and Epicor for my immune system, as well. I have avoided both flus when exposed to them using Proboost, a miracle. I have no doubts that this is a virus, producing these symptoms. My great uncle, who looked a lot like me, had this condition starting in his mid thirties and was misunderstood from that point on, until I was diagnosed. Imagine, no one thinking you're really sick, until you are a very old man.. just being called lazy. His grandaughter, got it, as well. there seems to be a genetic predisposition. I do take Provigil in order to work. I take it once a day for many years now. It has had no adverse effect on my health. I do not take it on weekends. I could not work without it. This very real physical disease without a cure, has psychological barriers to every aspect of life. I reached a time in my life where I had no choice but to find the right people to help me, and find a path. The psychologist, with his medical backround, was invaluable to me in moving forward in life, because I feared failing. I felt defeated before I started. I took big steps 2x a week, every week for 6 weeks, in regard to treatment, education, exercise, and a career. I had put my life on hold long enough waiting for the elusive cure.I have been in business now for 15 years. No matter what the cause of our illness, I hope we can all carve out a life for ourselves while we are waiting. I am very grateful for Dr Mikovits work. I think they are on the right track. It gives me hope; but life goes on.
Reply Reply

ME/CFS and XMRV
Posted by: MDChick
Mar 2, 2010
Woozyman, I am sorry you have not have immunological testing, because that is where ME is quite apparent. My immune system is compromised, especially the CD8 count and the Natural Killer T-Cell function. The first ten years of the 25 I have been ill, I seldom contracted anything else, perhaps, as Dr. Cheney theorized, because the immune system was over reactive. Since then, I catch lots of things and have them far more severely and for longer periods than others. This happens to others who have been ill for many years. Dr. Cheney speculated that is because the immune system is exhausted from working so hard and ineffectively. The ordinary CBC's physicians do find our blood to be normal, which is far from the case. These doctors do not know the tests they need to run on us. Secondly, there are too few immunologists interested in us. Hopefully, XMRV and the Whittemore-Peterson Institute will change that for all of us. Hang in there.
Reply Reply


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