ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

Prevent Or Reverse Diabetes: An Amazing Herbal Intervention

Exercise and Vitamin D Better Together for Heart Health

VIDEO: Essential Oils for Weight Loss

Can Ginkgo Give Your Brain a Boost?

Can Valerian Root Help You Sleep Better?

Fighting Statin-Induced Diabetes with CoQ10

Eight servings of veggies a day is clearly best for the heart

The Many Wonders of Calming Sandalwood Oil

Curcumin — A Novel Treatment Alternative for Depression

How Glycation Accelerates Aging

 
Print Page
Email Article

Calling All CFS & FM Activists: Eunice Beck on Lending Your Voice to the Million Letter Campaign

  [ 286 votes ]   [ Discuss This Article ]
www.ProHealth.com • February 2, 2005


Dear Friends, I’m so glad to be back to chat with you again. The stressful situation in my life seems to be on a short hiatus, so thought I would use the opportunity to write to you about something I think is very important. You may have noticed references in your weekly email bulletins from ImmuneSupport.com about something called the Million Letter Campaign. For those of you who have not investigated I want to encourage you to become involved. The campaign is aimed at getting national publicity and awareness of Fibromyalgia and Chronic Fatigue Syndrome (or Myalgic Encephalomyelitis -- ME, as it is called in most of the world outside the United States). The date chosen for this campaign is Fibromyalgia Awareness Day/International ME/CFS Awareness Day, which is May 12, 2005. I wish I could say I had something to do with this great idea. However I first heard of it from Dominie Bush, a woman who provides a tremendous amount of information and support for those of us with FM/CFS. How she does it, considering she also has these challenges is hard to imagine. In any case, in the literature on the website (I will give you the url later) says that the idea was really presented by one of her readers named Pattie Caprio. She said “I am trying to get national recognition for the pain sufferers of FMS/CFIDS. We need patients who are willing to write about their experience with this disorder. We plan on having a Mass mailing go to the White House (First Lady), ABC News (20/20), Montel Williams (who has M.S.), 60 Minutes (Mike Wallace has had CFIDS) and Fox News on May 1, 2005.” Pattie says “We are hoping that a million letters will be sent.” Many of us know the difficulty of getting recognition of these diseases just to get appropriate medical care. It is much more difficult to win disability cases, whether private disability or Social Security. Very little government money is spent on research on these diseases, because there is little recognition. We need to get national attention. What Pattie and Dominie ask is that we each do the small task of writing a one page letter about ourselves and our disease. I know getting it down to one page will be difficult. But more than that probably won’t be read. Dominie says “If all victims of FMS/CFIDS/ME (and their family members and friends) will mail their letters on May 1, 2005, we will speak as one voice and hopefully capture national attention for this illness. This will be much more effective than anything else we can do as individuals!” On her website for the campaign, Dominie gives suggestions of what information to include and the names and addresses to which the letters should go. She also gives a few other suggestions of who to send letters to if you have additional time, energy and postage (the postage for the five letters is $1.85). “We don’t want to dilute the quantity of our letter to the MAIN recipients, so if you can only send 5 letters, please send them to the 5 main addresses only.” “We are asking FAMILY MEMBERS AND FRIENDS of those with FMS/CFIDS/ME to write letters telling how this illness has affected that person’s life—the difficulties this chronic invisible illness poses for normal living-how they have been treated by doctors, employers, media, insurance companies and disability attorneys—the misunderstanding of family, friends, etc. This will maximize the number of letters that go out on May 1, 2005. It is something that family and friends can do to HELP the person they care about.” Also from Dominie “We need to build enthusiasm and momentum in the Fibromyalgia community between now and May 1, 2005. Please tell Fibromyalgia support groups, friends with FMS/CFIDS, and even doctors who have experience with FMS/CFIDS patients and understand this condition. Forward this information to people in you email address book or post it on Fibromyalgia newsgroups. We need to get the word out!” “I don’t know of a better way to accomplish our goal of FMS/CFIDS Awareness! It will take just a little effort from each of us in telling our own unique FMS/CFIDS story in “one page” form and sending it to people who have power and influence in our society. Remember, we are doing this not just for ourselves, but for millions of sufferers worldwide.” Being proactive and making noise is the only way any group gets notice for any cause. The reason that AIDS got so much attention and research money was because those affected by it were very active and vocal. They organized to express their needs and call attention to their cause. We need to so the same. I would encourage all of my readers to become involved in the Million Letter Campaign. More information together with things to include in the letters, and addresses can be found at the campaign website: http://www.fms-help.com/letter.htm For those of you who are interested there are even MLC T-shirts and Sweatshirts on sale! Thank you Pattie, for the idea, and Dominie, for use of so much material from your website. Again, I would encourage my readers to get those letters in the mail on May 1, 2005. Mine will be. Take care and be well. Yours in health, Eunice -------------------------------------- I welcome your comments and questions at: copingcorner@prohealth.com. My articles and email responses are not being offered as those of a health care provider. The information and opinions included are intended to give you some information about your disease. It is very important that you empower yourself with knowledge and participate in your own search for care. Any advice given is not intended to take the place of advice of your physician or mental health care provider. Always follow your physician's advice, even if contradicted by something written here. You and your physician know your situation far better than I do. Thank you and be well. Eunice



Post a Comment

Featured Products From the ProHealth Store
Energy NADH™ 12.5mg Optimized Curcumin Longvida® FibroSleep™

Looking for Vitamins, Herbs and Supplements?
Search the ProHealth Store for Hundreds of Natural Health Products


Article Comments



Be the first to comment on this article!

Post a Comment


 
NAD+ Ignite with Niagen

Featured Products

FibroSleep™ FibroSleep™
The All-in-One Natural Sleep Aid
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils
Vitamin D3 Extreme™ Vitamin D3 Extreme™
50,000 IU Vitamin D3 - Prescription Strength
Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function

Natural Remedies

Everything You Always Wanted to Know About Sleep But Were Too Tired to Ask Everything You Always Wanted to Know About Sleep But Were Too Tired to Ask
Rejuvenating the Brain - How PQQ Helps Power Up Mental Processing Rejuvenating the Brain - How PQQ Helps Power Up Mental Processing
How I Found My Long-Lost Energy How I Found My Long-Lost Energy
Are You Obtaining the Proper Enzymes? Are You Obtaining the Proper Enzymes?
Thyroid Health and Fibromyalgia Thyroid Health and Fibromyalgia

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE TO OUR NEWSLETTERS
Get the latest news about Fibromyalgia, M.E/Chronic Fatigue Syndrome, Lyme Disease and Natural Wellness

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2017 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map