ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

Discover Why Ashwagandha Can Be Used for Stress and Anxiety

How Can You Benefit From Vitamin B12?

Calorie restriction promotes longevity through effects on mitochondrial network

Lower magnesium levels linked with increased mortality risk during up to 40 years of follow-up

Higher resveratrol dose linked to lower glucose levels in type 2 diabetics

What Is Bitter Orange?

Black Tea Is Great for Your Gut

Drug can dramatically reduce weight of people with obesity

Tryptophan's Possible Effects for Your Health

New Finding: Broccoli Helps Heal Leaky Gut

 
Print Page
Email Article

Letters From Readers About the Name Change 10-04-06

  [ 206 votes ]   [ Discuss This Article ]
www.ProHealth.com • October 4, 2006


We experience this disabling disease so differently

My initial thought was to ask what symptoms all of us with CFIDS experience, but with CFIDS being an actual syndrome with MANY symptoms, and different ones affecting different people, a disease based on the name of a symptom would be next to impossible.

…We can't name it Chronic Low Grade Fever, Weakness, Dizziness, POTS, or Night Sweating disease. So maybe we invent a word and call it that, or name it after a person. I would just hate to see us focus on putting a symptom in the name, since we really all experience this disabling illness so differently. No matter what, it should sound serious and provoke serious thought vs. ridicule. – Dawn

________________

How about the “father” of M.E.?

I've always felt that in order to "tone down" the controversial name, CFS, perhaps we SHOULD - as others have mentioned - name the illness after an individual. My vote is for Dr. Melvin Ramsay (Ramsay's Disease) as well, seeing as he's considered the "father" of M.E. He coined the name way back in the '50s. [The late Dr. Ramsay, a physician practicing in the UK, defined “a new disease” in 1956, which he called Benign Myalgic Encephalomyelitis.]

Just my thought, since it's going to take longer than we hope to find the cause (causes) of M.E./CFIDS. There is no proof yet that it's caused by “a” virus. Yes, we have immunological, neurological, and endocrinological malfunctions, but they could be caused by a toxin, a variety of toxins, a bacteria that is unknown yet, a virus, or even a combination - as we all know. Look at the ciguatera/ciguatoxin discovery a couple of years ago. – Leeza

Rich Carson replies: I was excited about ciguatoxin, and ProHealth reported on research regarding possible links between ciguatera fish poisoning and CFS several years ago (search on ciguatoxin in the ImmuneSupport.com archive). However, I have yet to see anything compelling come up in the past few years, so if you are aware of anything as it relates to CFS or FM, please let me know. By one definition, “Ciguatoxin is found in more than 400 species of reef fish, and has even been found in farm raised salmon. The symptoms can last from weeks to years, and in extreme cases as many as 20 years, again in a relapse/remit pattern based on exposures to triggering foods and activities. Ciguatoxin is excreted in breast milk and can be sexually transmitted.”

________________

“Establishment” would ultimately prefer TATT (tired all the time)

On this side of the pond [the UK] we’ve been following this with interest. We too have a struggle with the Establishment “preferring” to use CFS, which then of course becomes CF and ultimately, TATT (tired all the time). Of course they want the status quo to support their agenda of non-action.

Our view here at Invest In M.E.* is quite simple – we are campaigning for sufferers of M.E., not CFS. At the May 2006 conference all our speakers, including Byron Hyde and Bruce Carruthers, talked about Myalgic Encephalomyelitis and the biology surrounding it. It was so named over 50 years ago by Melvin Ramsay and for very sound, scientific reasons. The ongoing Parliamentary Inquiry here in the UK is being led by Dr. Gibson, MP, and is into M.E., not CFS or any other nonsense.

I hope that this encourages you to revert to the only name that makes scientific sense. – Good luck, Sue

* Note: Invest in ME is an independent charity in the UK campaigning for biomedical research into Myalgic Encephalomyelitis as defined by WHO-ICD-10-G93.3. (http://www.investinme.org/)




Post a Comment

Featured Products From the ProHealth Store
Vitamin D3 Extreme™ Energy NADH™ 12.5mg Ultra EPA  - Fish Oil


Article Comments



Be the first to comment on this article!

Post a Comment


 
Optimized Curcumin Longvida with Omega-3

Featured Products

Optimized Curcumin Longvida® Optimized Curcumin Longvida®
Supports Cognition, Memory & Overall Health
Vitamin D3 Extreme™ Vitamin D3 Extreme™
50,000 IU Vitamin D3 - Prescription Strength
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function

Natural Remedies

Rejuvenating the Brain - How PQQ Helps Power Up Mental Processing Rejuvenating the Brain - How PQQ Helps Power Up Mental Processing
Strengthen Cell Function with Energy-Boosting Niagen Strengthen Cell Function with Energy-Boosting Niagen
Fighting Fatigue with Ground-breaking French Oak Wood Extract Fighting Fatigue with Ground-breaking French Oak Wood Extract
The Genetic Mutation That May Compromise Your Health - And What to Do About It The Genetic Mutation That May Compromise Your Health - And What to Do About It
The Fast-Acting Solution for Healthy Digestive Function The Fast-Acting Solution for Healthy Digestive Function

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE TO OUR NEWSLETTERS
Get the latest news about Fibromyalgia, M.E/Chronic Fatigue Syndrome, Lyme Disease and Natural Wellness

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2017 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map