A "Heart Attack of the Central Nervous System"
Someone who really knows everything that there is to know about CFIDS told me that she feels like her central nervous system had a heart attack. I feel like mine did the same, but it feels like all the tires on this 18-wheeler blew out at the same time and there aren't any replacements. – dem2008
Let's Just Name it Quickly!
This has been going on for so long! M.E. [myalgic encephalomyelitis] …would work for me. Let's just change it ASAP!!!! It's really important, I think! - Helene
CFS Should be Considered a Symptom
From what I'm learning. CFS is a symptom. It isn't the problem. Doctors, biologists, and such should be encouraged to find the problem that caused the symptom…In Engineering we call it Root Cause Analysis. Takes lots of time and investigation. – allwxrider
Consistency is Important
It is very difficult to rename, and I don't know why the CDC is wasting all this valuable money in a PR campaign with an impending name change coming soon. Once again, mismanagement and lack of thought with money. However, the most logical name would be M.E. to keep it uniform with Canada, Australia, England, and WHO. Any time you brand a name, it is very important for consistency. Also, this way researchers and patients are all on the same page. – wrthster
M.E. in the U.K
…In regard to M.E as a suitable name – Yes, we have M.E here, which is widely used and widely ridiculed! M.E was called the "yuppie flu" in the 1980's as every burnt out city worker claimed they had it and I'm sure many did. I would never tell anyone that I had M.E because of this stigma attached to it. As everyone has said, CFS does get a "yes I'm tired too" response. Fibromyalgia gets a better response but no better understanding.
Sorry to…be negative but I needed to explain that M.E is considered a bit of a joke over here! – Diva55
Fatigue is More Than Being Tired
I agree we should have a better name for this because I am tired of people asking me what I have been doing and I would say “sleeping a lot” because the Fatigue hit me. And they say, “I know just what you mean. I get so fatigued too. I wish I were able to stay in bed most of the day.” They are confusing Fatigue with being tired. They really don't know what Fatigue is! We do. – Nancy