ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

10 Fibro-Friendly Foods with a Bonus: Beautiful Skin

Fight Back! Win the War Being Waged Against Your Immune System

Studies Show that Magnesium L-threonate Improves Brain Plasticity, Leading to Direct and Significant...

The role of microbiota and intestinal permeability in the pathophysiology of autoimmune and neuroimm...

Clary Sage Oil May Be Pricey, but Its Benefits Are Priceless

Component of red wine, grapes can help to reduce inflammation, study finds

Poly MVA: A Novel Therapy for Increasing Energy, Repairing DNA, and Promoting Overall Health

Pumpkin Pie Turmeric Breakfast Smoothie - Vegan + Gluten-Free

Vitamin D supplementation extends life in mouse model of Huntington's disease

What’s Fenugreek Good For?

Print Page
Email Article

Letters From Our Readers – Patient Thinking & Rethinking 1-31-07

  [ 227 votes ]   [ Discuss This Article ] • January 31, 2007

CFS has Become a Joke - Literally

I just wanted to say thanks for your efforts in attempting to change the CFS name. I was awake at 3 a.m. the other night…and a second-rate comedian was on television. One of his ‘jokes’ was about how ludicrous CFS is, how it isn't a real disease, etc. I have always thought the name ‘CFS’ was demeaning and that it trivializes a very serious, debilitating illness, but this very unfunny comedian really brought home the point that CFS is perceived as laughable by many in the general public. When the name of a disease becomes fodder for a comic then it is time to change it, regardless of what kind of research has already been done under that name. If we ever want CFS to be taken seriously and get the funding for research that it so desperately needs, then it needs to have a serious name. - LL


What Does ME Mean?

The last newsletter contained a new abbreviation. Maybe for a while you should make note of what it means before its continued use in the rest of the news. What does ME refer to? Just about the time everyone knows what CFS is, you add another acronym – ME. I know everyone seems to be on the "change the name" bandwagon, but I am not one of them. The name does describe what we have. With the CDC finally getting serious, where does the big name change come in? Isn't there already enough confusion among the uneducated, without suddenly calling it something else? Whatever name they come up with had better be good, since what we have now describes it perfectly – Chronic Fatigue Syndrome. - Connie

Note: Thank you for pointing out that we neglected to spell out the meaning of the acronym ME. You’re correct – it should be spelled out the first time it is mentioned in any article. To answer your question, ME generally refers to myalgic encephalomyelitis – the name by which CFS is known in most of the world. ME is also used as an acronym for myalgic encephalopathy. The two MEs have similar meanings with one distinct difference. Myalgic encephalomyelitis means muscle pain accompanied by inflammation of the brain and spinal cord, while myalgic encephalopathy indicates pathology: muscle pain and damage to the brain and spinal cord of unknown origin.


You’ve Got WHAT?

In a recent newsletter there was the following suggestion: “…An alternative approach could be to name CFS ‘Sisyphus disease.’ Sisyphus was a king in Greek mythology who outwitted/duped death. As punishment, he had to work in the underworld for eternity, repeatedly rolling a rock up a mountain, from where it fell down again. From there, a "Sisyphean task" is one that lasts forever and never yields a result.”

I think the name Sisyphus says a lot. A perfect name, except – tell someone you have Sisyphus and many will hear "syphilis.” I would be uncomfortable with that one, and would never use it. I'd rather they just think I am lazy and whiney! - Susan


Research Before Name Change

…I must admit, with a background in marketing, I haven't been on the side of name change at this time. My reluctance is for the very reasons the panel discussed: funds and effort already invested in current name recognition and that we've already been through inappropriate and demeaning labels like ‘Yuppie Flu’. I'd rather see valuable time spent on research than on worrying about a label before that research is concluded…That no one yet knows the cause but is still only guessing lends credibility to the psychosomatic belief of most medical professionals. That image is slightly changing due to the campaign for name recognition and that name is, unfortunately or not, CFS!

I believe that a name is accepted due to comprehension of the condition, not the name itself. After all, ‘cancer’ says nothing by itself; it's the knowledge of possible suffering and the information distributed under that name that has created awareness. For many reasons, the most important of which is the well-being of every sick and discouraged CFS patient, we simply cannot afford to paste one more temporary, ill-conceived label on this condition. We must be able to say with confidence and fanfare: "The severe illness inappropriately called Chronic Fatigue Syndrome has been found to be caused by _______________; therefore the name has been changed to ________________.” - Marcia


It’s a Double Whammy!

I think we should call CFIDS Double Whammy Disease! It would certainly get people's attention and they would remember it. It was discovered this year that both genes that control the immune system and that control the stress response are affected - Double Whammy. All I know is that it has destroyed every part of my life except my sense of humor. - Kim


Conference Validated CFS

At the IACFS convention recently in Ft. Lauderdale, I saw Rich Carson. I did not introduce myself because I have always been skeptical of someone looking so young and healthy to be “legitimately” a CF/CFS victim. During the convention I learned that this baffling disease strikes down all ages – children to elderly.

I also realized that I was practicing the same prejudice against Mr. Carson that was always displayed to me by acquaintances and closest family members. I look good, so I can't be sick. Everyone thought there was an underlying agenda for my “hypochondriac-ness.” I thought Rich Carson had a money-making agenda for selling products. I'm sorry, Mr. Carson, for passing along the skepticism-abuse that had been given to me.

I thank God for the enlightening convention, which validated my experiences as a CFS patient (by the sheer numbers who attended and the expert speakers). I thank God for PANDORA for advocating the research necessary for a cure, and for people like Mr. Carson, who provide a healthy means to manage this disease. Next convention I will make it a point to thank you personally. I'm sorry I ever doubted your motivation. You are one of a growing number of beacons that we CFS patients can turn to. Here's to a cure. – Claire

Note: Apology accepted with pleasure.

Post a Comment

Featured Products From the ProHealth Store
Ultra EPA  - Fish Oil Mitochondria Ignite™ with NT Factor® FibroSleep™

Looking for Vitamins, Herbs and Supplements?
Search the ProHealth Store for Hundreds of Natural Health Products

Article Comments

Be the first to comment on this article!

Post a Comment

Natural Pain Relief Supplements

Featured Products

Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
Vitamin D3 Extreme™ Vitamin D3 Extreme™
50,000 IU Vitamin D3 - Prescription Strength
Optimized Curcumin Longvida® Optimized Curcumin Longvida®
Supports Cognition, Memory & Overall Health
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
FibroSleep™ FibroSleep™
The All-in-One Natural Sleep Aid

Natural Remedies

Block Acid Reflux to Prevent Esophageal Problems! Block Acid Reflux to Prevent Esophageal Problems!
Coconut Oil - Healthy Gifts from the 'Tree of Life' Coconut Oil - Healthy Gifts from the 'Tree of Life'
Looking for Energy? Turn to Plants. Looking for Energy? Turn to Plants.
Safely Burn Away Body Fat Safely Burn Away Body Fat
Herbal Rescue for High Blood Sugar Herbal Rescue for High Blood Sugar

ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
Credit Card Processing
Be the first to know about new products, special discounts and the latest health news. *New subscribers only

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2016 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map