ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

Is a Good Night's Sleep at the Top of Your Wishlist?

Ashwagandha Helps Hormones - Aids Arthritis

Why You Should Be Eating More Porcini Mushrooms

A Breathalyzer for Disease?

How Bacopa Can Help Improve Your Cognitive Function

Magnesium Reduces Diabetes and Helps Keep You Young

Lavender Aromatherapy Can Ease Pre-Op Anxiety

Give Your Health a Much-Needed Boost With Geranium

The Role of Resveratrol in Achieving Optimal Health

Could Coconut Oil Help Reduce Antibiotics?

 
Print Page
Email Article

Interstitial Cystitis Study at Boston Children's Hospital Recruiting to Identify Genetic Markers

  [ 463 votes ]   [ Discuss This Article ]
By Editor • www.ProHealth.com • February 25, 2007


About every 15 seconds a person in the U.S. is diagnosed with interstitial cystitis (IC) - a painful pelvic/urinary tract condition that is also frequently associated with Fibromyalgia, ME/CFS, and IBS. “Studies have suggested that the condition may be genetic and passed down (or inherited) from one generation to the next,” researchers at Boston Children’s Hospital note.

And now they’re recruiting IC patients – with a special emphasis on including younger patients age 8 and up – to “compare different families’ samples and medical information and determine which genetic factors may play a role in interstitial cystitis.” One requirement for inclusion will be that the patient have a “first degree relative” (parent, brother/sister, or child) with IC symptoms.

What is Interstitial Cystitis and How Frequent is It in FM and ME/CFS?

Interstitial cystitis is a condition with no known cure. Symptoms tend to be as outlined in the “Inclusion Criteria” below. It is common in both men and women, and frequently goes undiagnosed, owing partly to a lack of medical training in IC-related diagnosis/treatment training, and to a lack of public awareness.

Additionally, interstitial cystitis goes by several other names:

  • Painful bladder syndrome,
  • Hypersensitive bladder syndrome,
  • Chronic pelvic pain syndrome.

According to recent journal articles, “24.6 percent of IC patients exhibit symptoms of Fibromyalgia, compared with 3.2% of the general population,” and there is a theory that “IC might be a disease within the spectrum of chronic fatigue and pain syndromes.”

The Boston Childrens’ Hospital project - “Genetic Studies in Interstitial Cystitis” – ClinicalTrials.gov number NCT00389142 – intends to “fully describe the phenotype of interstitial cystitis.” [A pheonotype is the pattern of genes that together manifest a trait that varies between individuals.] The study will recruit a group of patients in the United States and reportedly another in Bulgaria.

Criteria for Inclusion:

  • Males and females ages 8 and older
  • Urinary frequency – more than 1 time per hour, and/or
  • Dysuria (painful or difficult urination), and/or
  • Pelvic, suprapubic, or abdominal pain – for 3 months or longer
  • Previously normal voiding pattern (normal retrograde voiding cystourethrogram if done). A cystourethrogram is an examination of the bladder and lower urinary tract using a special form of X-ray called “fluoroscopy” and a contrast medium.
  • Nocturia (need to get up in the night to urinate)
  • Normal urinary stream (by history)
  • No evidence of active bacterial urinary tract infection (no pyuria, & negative urinary culture for last 3 months)
  • Must be first degree relative of someone with above symptoms.

Exclusion Criteria:

  • Major structural/anatomical urinary tract abnormalities by ultrasound
  • Underlying inborn conditions
  • Severe constipation.

Location and Contact Information:

Children’s Hospital, Boston, Massachusetts
Program in Genomics/Harvard Neuromuscular Disease Project
Jordan Dimitrakov, MD, PhD, Principal Investigator

Please refer to study by ClinicalTrials.gov number NCT00389142
Contact Elicia Estrella, MS, CGC. Phone 617-919-4552. E-mail <a data-cke-saved-href="mailto:elicia.estrella@childrens.harvard.edu

Health Authority: U.S. Institutional Review Board




Post a Comment

Featured Products From the ProHealth Store
Energy NADH™ 12.5mg FibroSleep™ Vitamin D3 Extreme™


Article Comments



Be the first to comment on this article!

Post a Comment


 
Optimized Curcumin Longvida with Omega-3

Featured Products

FibroSleep™ FibroSleep™
The All-in-One Natural Sleep Aid
Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils

Natural Remedies

Why Berries Offer a Rainbow of Health Benefits Why Berries Offer a Rainbow of Health Benefits
When a Negative is Positive - Goodnighties Recovery Sleepwear When a Negative is Positive - Goodnighties Recovery Sleepwear
Ubiquinol - A More Advanced Form of the Energy Producing Nutrient CoQ-10 Ubiquinol - A More Advanced Form of the Energy Producing Nutrient CoQ-10
A Hard-Working Molecule that May Help Ease Pain & Brighten Mood A Hard-Working Molecule that May Help Ease Pain & Brighten Mood
Fatigue & Fibro Fog: Could You Have a B-12 Deficiency? Fatigue & Fibro Fog: Could You Have a B-12 Deficiency?

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE TO OUR NEWSLETTERS
Get the latest news about Fibromyalgia, M.E/Chronic Fatigue Syndrome, Lyme Disease and Natural Wellness

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2017 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map