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Letters From Our Readers – Comments & Suggestions 4-11-07

  [ 782 votes ]   [ Discuss This Article ] • April 9, 2007

Association Between CFS and Cortisol Level

My sister sent me a recent article on CFS and elevated cortisol levels. How interesting. I have had CFS for years and was recently sent to see a specialist for an elevated cortisol level. The specialist did not associate the levels with my CFS. Thank you for writing this article and I look forward to reading more. - Michele

Note: The article Michele mentioned was featured in the last CFS Newsletter: “Kent Holtorf, MD, on Treating Chronic Fatigue Syndrome & Fibromyalgia - An Update.” Dr. Holtorf is an endocrinologist and CFS/FM specialist.


Thank You, Dr. Holtorf

I am overjoyed to see the article by Dr. Kent Holtorf. He is a fantastic doctor and is responsible for diagnosing many of my medical problems. Dr. Hotorf helped me to be on my way to recovery from Fibromyalgia, Chronic Fatigue Immune Dysfunction, endocrine dysfunction, coagulation defect, and chronic Lyme disease.

I spent five years bouncing around from doctor to doctor, who only treated my symptoms with pain medication, antidepressants, and sleep medication. Dr. Holtorf found the cause of my problems to be underlying chronic Lyme disease.

I am currently being treated with the help of a Lyme disease specialist. I see the pain and brain dysfunction disappearing. Thank you so much, Dr. Holtorf! - Michelle


Searching for the Ingredients in Supplements

Thank you for the award [Letter of the Week gift certificate], which I am very pleased to accept. I hope people will find the suggestions helpful. I will look at the supplements to find out which, if any, I can take, since I have multiple allergy syndrome. I've noticed before that not all the ingredients are listed, so I may need some help in choosing something. - Merida

Note: A complete list of ingredients is provided for all supplements. To find the detailed list you’ll need to click on the bottle or product name, then click on “Label Info.” And of course if you have any further questions our customer service team at is always pleased to help.


I Sent the Link to Others

Thank you so much for your well written, and informative newsletter. I'm so glad I found you! I've sent the link to a number of people and gotten excellent feedback from them as well. Keep up the good work. – MGG


Offended By Inspirational Quote

I am offended by the quote from Living With Chronic Pain One Day At A Time [in the March 28 newsletter: “Other Interests – Rejoining Life”] that says sufferers use pain as an excuse not to "move on." The last thing we need is judgment, particularly from people who are supposedly trying to be helpful. I am so sick of other people telling me how to manage my illness. That is up to me!...– Kim


Changed My Attitudes Toward the Illness

I have had Chronic Fatigue Syndrome, head injuries, Fibromyalgia, and arthritis for many years. I use alternative and western medicine. I have survived deep depression and many of the losses that go with the disease. I have made progress. For me the wonderful consequence of illness is that I have become more spiritual which, in turn, helped me become healthier. I changed my attitude about suffering. I changed my attitudes toward the illness. It is not a cross for me to bear. I became more responsible for my life. I expect to be fully well.

My next treatment plan, which I am implementing now, is a juicing diet, raw fresh vegetables and fish only. I eat 15 or more vegetables and fruits a day – juiced and raw. I eat fish at least 2 times a day. I supplement with raw honey containing royal jelly and with pharmaceutical grade salmon oil. This diet helps with the pain… It is not a cheap diet, but no more expensive that what most people are spending.

I eat a lot of salads using some organic and some non-organic products. (Some none organic stuff like apples can be used with a good vegetable soap and a scrubber brush.) I don't eat red meat because it takes too long to digest and most of us have digestion problems. Pork should not be eaten at all as it contains an enzyme that is not good for the body and it is very hard to digest. - Elizabeth


Evening Primrose Oil, New Diet Worked for Me

I [am in South Africa and] don't have your availability to certain drugs and supplements, but I have discovered that evening primrose oil has helped with both the depression and pain, especially around 'that time of the month'. I take it about a week before a full moon and for a few days afterwards. It's worked for me. On the advice of a dietitian, I changed to a high protein, low carbohydrate diet and this has given me a lot of increased energy as well as some weight loss. – Ros

Note: This information has not been evaluated by the FDA. It is not meant to prevent, diagnose, treat, or cure any condition, illness or disease. It is very important that you make no change in your personal healthcare plan or regimen without researching and discussing it in collaboration with your professional healthcare team.

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