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  [ 214 votes ]   [ Discuss This Article ] • May 6, 2007

Join the CFIDS Association of America’s Virtual Lobby effort, to reinforce and expand the impact of messages delivered to members of Congress by the 80-plus volunteers who took part in the "Live" Lobby Day event in Washington, D.C. on May 15.

The goal is to "ensure that timely, orchestrated, powerful messages are sent to people who have the power and possibility to change policy and perceptions about CFS.”

How Can You Contribute?
n Go to the Grassroots Action Center at for a guide to ways you can contribute immediately via e-mail "to educate and engage Congress, policymakers and the media." The Action Center offers template letters that can be sent sent automatically, with "no need to look up addresses or track down persuasive facts and figures."

n And sign up with the Action Center listserv. You will then receive updates on opportunities for virtual grassroots advocacy as they arise.

Virtual Lobby Action Item #1
According to the following Action Request from the CFIDS Association dated May 17, a top priority is to maximize support for a Congressional letter to NIH Director Dr. Elias Zirhouni.

Take Action! Visit this page:

On May 15, participants in the CFIDS Association's Lobby Day helped circulate a letter sponsored by 3 members of Congress to Dr. Elias Zerhouni, Director of the NIH. The letter, viewable at requests that Dr. Zerhouni use his discretion under the 2006 NIH Reform Act to make CFS a higher research priority. Senate Majority Leader Harry Reid (D-NV) is leading the letter on the Senate side. Representative Janice Schakowsky (D-IL-9) and Representative Sue Myrick (R-NC-9) are leading the letter in the House of Representatives.

Please write to your members of Congress and ask them to sign on to the letter. The language of the letter is specifically written to avoid congressional reluctance to earmark funds for specific diseases, but appeals to new powers granted by Congress to the NIH director to make special funding provision for conditions like CFS that cross traditional institutional boundaries at the NIH.

We are working hard to maximize support for this letter and need your help to secure the greatest number of signatures possible. Thank you for adding this Virtual Lobby Day your "to-do" list!

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