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National ME/CFS Genetic Risk Factor Study Needs 400 Participants

  [ 90 votes ]   [ 2 Comments ] • July 11, 2008

Researchers at Tufts University, Boston, and the University of Illinois at Chicago are issuing a national call for ME/CFS (chronic fatigue syndrome) patients in the U.S. to participate at no cost to them in a study to identify genetic risk factors that may be associated with the illness.

The study is designed to allow remote, home-based patient participation, allowing the broadest sample possible – with a target of 400 individuals, ages 13 to 64, with a documented physician’s diagnosis of either ME/CFS (‘chronic fatigue syndrome’) or mononucleosis.

  • The first portion of the study includes a phone interview and home-based blood draw (at no cost to patient) – target participation 400 patients.
  • The second part of the study will follow 40 selected ME/CFS patients and 40 healthy control subject over a two-year time period. These subjects will be interviewed by phone and submit home-based blood draws on three occasions during that period.
  • Throughout, participants will be able to continue their current routines and therapies.

The study’s principal investigators are:

  • Dr. Brigitte Huber of Tufts University and
  • Dr. Renee Taylor of the University of Illinois at Chicago.

Both specialize in ME/CFS research and have been involved, for example, in studying the possibility that those who develop ME/CFS may be susceptible to activation of an ancient retrovirus in the human genome.

Contact Information
To learn more, contact Dr. Renee Taylor
Phone 847-207-7944 (office)

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Article Comments Post a Comment

Genetic Risk Factor Study Question
Posted by: JeNeSuisPersonne
Jul 13, 2008
Who would pay for the in-home blood drawss?
Reply Reply

ME/CFS Study
Posted by: LaQuiet
Jul 16, 2008
I would also like to know who would pay for the lab services before I commit myself t this study. I am currently on SSD and SSI and cannot afford to pay for these services.
Reply Reply
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