A patient support, education and advocacy group in the Chicago area – the CFCCC - has created an online patient Resource Guide (http://www.cfccc.net/) that pulls together in one place the knowledge its members have gleaned through years of networking and assisting others in their community.
The nonprofit CFCCC (Chronic Fatigue Syndrome, Fibromyalgia, and Chemical Sensitivity Coalition of Chicago) put its Resource Guide online thanks to a partnership with DePaul University’s Chronic Illness Initiative (directed by CFS/FM/MCS researcher Leonard Jason, PhD) and a grant from AT&T.
Think of any way that a person may need help, ideas, or community, and you’ll find resources in this directory http://www.cfccc.net/resourceguide.htm – from crisis lines, dental care and doctors to financial services, food, frugal living, “home-delivered anything,” and housing, to legal services, medical supplies, social life, “troubleshooting,” and voting information.
Local and Universal Resources. Much of the information is particular to the large area called “Chicagoland,” drawn from hundreds of patient advocates’ e-rolodexes and address books. But many other links and ideas are universal and will be helpful for patients located in any area.
A Guide for Other Areas. Altogether, this humbly-presented but impressive resource guide can be an inspiration for other groups to build on and emulate in their own part of the world.
Contact Information is available at http://www.cfccc.net/contactus.htm for those who wish to join the CFCCC, learn more about its activities and extensive lending library, or subscribe to its newsletter – the Canary Times.