[Note: IACFS/ME President Fred Friedberg, PhD, issued the following statement via the April IACFS/ME Newsletter regarding the CDC’s announcement of an April 27 Stakeholders’ Meeting for input on its strategic 5-year CFS research plan. The notice was published in the Federal Register April 15, and set a deadline for comments & registration of April 22. Subsequently an extended deadline of May 1 was announced for submission of comments to be considered by the CDC in developing a draft plan for presentation at the May 27-28 CFSAC meeting in Washington.]
• More notice, say 60 days, for this important public meeting would have been desirable. With sufficient time, a considered statement about research needs could have been developed.
• We would also have preferred to review in advance a draft version of the CDC 5-year plan. This would have been a reasonable basis for comment and feedback.
• We request a timeline for release and implementation of the CDC 5-year plan. Also, prior to implementation, we would like an opportunity to present formal feedback on the science and goals of the plan.
• To broaden possibilities for innovative research in the challenging and difficult area of CFS, we ask the CDC to consider opening up their funding opportunities to external investigators.
Fred Friedberg, PhD