ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

Inflammation Disrupts Memory - What Can You Do to Protect Your Brain?

All About Ginkgo Biloba: Benefits of This Timeless Herbal Supplement

Yarrow Oil: Here's Why It Deserves a Place in Your First-Aid Kit

Artificial sweeteners linked to risk of weight gain, heart disease and other health issues

Vitamin D supplement use associated with lower risk of breast cancer

Carnitine deficiency suggested as contributor to autism

Hop Oil: A Safe Sleep Aide

Lutein — An Important Nutrient for Eye and Brain Health

White Camphor Oil: The Purest Camphor Oil

Taurine: Facts About This Crucial Amino Acid

 
Print Page
Email Article

Opportunity Knocked on May 28, 2009 - Will the ME/CFS Community Respond?

  [ 3 votes ]   [ Discuss This Article ]
By Craig Maupin • www.ProHealth.com • June 8, 2009


Craig Maupin, editor of The CFS Report (www.cfidsreport.com), posted this challenge on June 6, with the note, “As always, feel free to copy anything to other sites and forums.” He includes a link to the CFSAC's recommendations for CDC research – directed to HHS Sec. Kathleen Sebelius - and a quick e-mail form you can use to add your support. Must be received by June 30.
____________________________

Recognizing Opportunity: Will the CFS Community and Sebelius Respond?

There is a popular saying, well-known around the world: “Opportunity knocks.” The saying is not descriptive of opportunity alone. Rather, the saying is describing the relationship between opportunity, and those who may, or may not, benefit from it.

In my 20 years of suffering from chronic fatigue syndrome, I have seen very few hopeful days. One such day was when former Assistant Secretary of Health and Human Services Donna Dean announced a chartered committee to give CFS a scientific, non-stigmatizing name. Dean believed that the name “chronic fatigue syndrome” was not only affecting public perceptions, but the perceptions of the scientific community as well. She was right.

Dean’s efforts hit resistance within the health department. Given the health department’s history, that resistance was expected. However, the CFS community’s response to Dean’s efforts at reform was, at times, mixed. Some CFS advocates recognized and responded to the opportunity for reform, a new direction. Others chose to observe. To this day, I believe Dean’s proposal, for whatever reason, became an opportunity lost.

On May 28, 2009, opportunity knocked once again.

The CFS Advisory Committee – largely composed of scientists and clinicians - requested that the Secretary of Health and Human Services install a new director of the CFS program at the Centers for Disease Control and Prevention (CDC). These recommendations stem from scientists and clinicians that know chronic fatigue syndrome.

For a community that has seen so few victories, May 28th, 2009 was a day to remember. But it was only a knock.

For the knock to lead to an open door, Kathleen Sebelius will have to make the right call, hear the knock, and answer. She will have to decide if CFS, a predominantly women’s illness, needs a more collaborative hand at the CDC.

Having watched this drama unfold, I believe that to find a collaborative hand for CFS at the CDC, Secretary Sebelius will have to rely on external advice and input, reaching outside the department.

The CFS community will also have to answer the knock, recognizing a rare opportunity before it passes.

The CFIDS Association has a form that makes sending input to Kathleen Sebelius a short, five minute exercise. Other groups have taken notice of the opportunity and risen to the challenge. Timing is often everything. If we truly care about how this illness that affects us, our children, or our families, the timing is right to invest a few, short minutes in advocacy.

For CFS to one day be quelled, the right doors will need to open. Doors do not open by themselves. Knocks have to be heard, noticed and answered. Let’s hope the knock of opportunity on May 28th will be heard and answered by the CFS community, and the doors of reform will be opened by Secretary Sebelius.

The CFSAC recommendations as forwarded to Secretary Sebelius. http://capwiz.com/cfids/attachments/1_Recommendations_052809.pdf

Easy Five Minute Form to write Secretary Sebelius: http://capwiz.com/cfids/issues/alert/?alertid=13463086&type=CU

Mailing Address for Secretary Sebelius:
The Honorable Kathleen Sebelius
Secretary of Health and Human Services
200 Independence Ave., S.W.
Rm. 615-F
Washington, DC 20201

Thank Dr. Wanda Jones for making CFSAC meetings accessible: http://capwiz.com/cfids/issues/alert/?alertid=13457976&type=CU




Post a Comment

Featured Products From the ProHealth Store
FibroSleep™ Ultra ATP+, Double Strength Ultra EPA  - Fish Oil


Article Comments



Be the first to comment on this article!

Post a Comment


 
NAD+ Ignite with Niagen

Featured Products

Optimized Curcumin Longvida® Optimized Curcumin Longvida®
Supports Cognition, Memory & Overall Health
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
Vitamin D3 Extreme™ Vitamin D3 Extreme™
50,000 IU Vitamin D3 - Prescription Strength
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils
Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium

Natural Remedies

The Big Blue Fish that Helps Chase the Blues Away The Big Blue Fish that Helps Chase the Blues Away
Magnesium + Malic Acid: One-Two Punch for Pain & Fatigue Magnesium + Malic Acid: One-Two Punch for Pain & Fatigue
Live Without Anxiety or Stress Live Without Anxiety or Stress
Clinically Studied Joint Relief Product for FM & ME/CFS Clinically Studied Joint Relief Product for FM & ME/CFS
The Surprising Benefits of Probiotics - What You Didn't Know The Surprising Benefits of Probiotics - What You Didn't Know

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE TO OUR NEWSLETTERS
Get the latest news about Fibromyalgia, M.E/Chronic Fatigue Syndrome, Lyme Disease and Natural Wellness

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2017 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map