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Eileen Holderman – ME/CFS Advocate

  [ 5 votes ]   [ Discuss This Article ] • July 20, 2009

Eileen HoldermanEileen Holderman is a Trustee of the New Jersey CFS Association (NJCFSA) and serves as its Publicity/Advocacy Chair.

As an advocate for the NJCFSA and ME/CFS, Eileen has written articles, participated in media interviews for local, state, and national broadcasts, and co-authored informational brochures with physicians.

As an event organizer, she has chaired events such as the the NJCFSA Fall Medical Conference, and has sponsored fundraising drives for that conference and other special events.

On a national level, Eileen has lobbied her members of Congress on Capitol Hill and testified numerous times before the federal CFS Advisory Committee in Washington, DC.

On an international level, she has attended numerous IACFS/ME medical conferences, and networks with advocates from around the world. Recently, she was appointed to the ME/CFS Fair Name Implementation Committee because of her efforts on behalf of the name change issue.

Eileen’s education and career have focused on journalism, radio and television. As a Manhattan resident after college, she was a broadcaster for both AM and FM radio stations, and worked for local and national television networks. Later, she worked for an art museum handling Visitor Services and Special Events.

Eileen’s interest in ME/CFS media coverage and public policy is coupled with her concern for the name change effort. She believes that a scientifically and medically accurate name for ME/CFS will prompt public and private institutions to back this disease financially.

For Eileen Holderman, being a part of the Fair Name Implementation Committee is an opportunity to move research and treatment forward.

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