This interview on XMRV & CFS was televised May 18 on the "Nevada Newsmakers" program with host Sam Shad. Dr. Donnica Moore (celebrity spokesperson for the Whittemore-Peterson Institute) has a son, and Annette (a founder of the WPI) has a daughter with severe ME/CFS that came on like the flu and has not improved.
• They discuss the impact of CFS on a youngster, the welcome attention created by the XMRV & CFS research (23 new papers since the groundbreaking WPI article broke), and the need for serious government funding of research to find the cause of ME/CFS (not the “all in your head” dismissal). Donnica emphasizes, don’t call it just “Chronic Fatigue.”
• Shad asks: Why aren’t governments investing more in research to find the cause of this neuro-immune disease? Dr. Donnica suggests countries are afraid they’ll have to bear higher health system costs if XMRV or some other factor is found to be a cause of CFS. But in fact the cost of not knowing & not treating is huge.
• Annette noted that the National Institutes of Health has a “wait & see” attitude toward XMRV - but takes it as a positive sign that the NIH is sponsoring the “1st International XMRV Workshop,” on the NIH campus in Bethesda, Maryland (Washington, DC-area), Sep 7-8.
Part 1: www.youtube.com/watch?v=sfzCm1Q3ZUQ&sns=em
Part 2: http://www.youtube.com/watch?v=ptDkjCWykso&feature=related