ProHealth health Vitamin and Natural Supplement Store and Health
Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help

|
|
|
|

Trending News

Missing protein explains link between obesity, diabetes

Single tick bite can pack double pathogen punch

Fish oil use associated with brain volume preservation

The Brain Boosting and Fatigue Fighting B-12

Genetic basis for distinct type of autism uncovered

Higher vitamin D levels associated with better cancer prognosis

Genetic study suggests causal link between vitamin D deficiency and hypertension

Unsuspected aspect of immune regulation revealed: Role of B cells

Explaining 'Healthy' Obesity

IBS, Crohn’s Disease, Colitis, and Other Digestive Disorders

 
Print Page
Email Article

A Survey to Define the Toll Disbelief Takes on Fibro Patients - You Can Help

  [ 16 votes ]   [ 1 Comment ]
www.ProHealth.com • February 16, 2011


Here is an excellent way FM patients can contribute to much-needed research on the impact of “Living with Invalidation of Fibromyalgia.”

Have your fibromyalgia symptoms been invalidated by others, and if so have these attitudes affected your personal outcomes and acceptance of the illness? Caroline Kenny, a psychologist in clinical training at the National University of Ireland, Galway, has launched an international online survey to provide an educational profile of this issue. The goal is to create understanding and communicate more informed approaches for dealing with FM patients among medical professionals, social services, and family & co-workers. Following is her description of the research and a link that will take you to the survey site.

_____________________________

If you are 18 or older and have been experiencing FM pain, would you like to contribute to research on the impact of living with invalidation of Fibromyalgia?

Chronic pain associated with Fibromyalgia can be a challenging experience for those who live with it. Because of the “invisibility” of their symptoms and the lack of a medical diagnosis, people with Fibromyalgia may encounter a lack of understanding, disbelief, and invalidating attitudes regarding the reality of their experience. Unfortunately, this can present an additional challenge for many people with Fibromyalgia.

The purpose of this research is to understand more about the impact on people with Fibromyalgia of having their symptoms invalidated by others - including family, work colleagues, and medical professionals. It is hoped that research like this will help to raise awareness regarding the impact of a lack of understanding of Fibromyalgia.

If you choose to complete the online survey, your participation will be invaluable in contributing to a better understanding of the extent and impact of illness invalidation experiences on people living with Fibromyalgia.

This research has been granted ethical approval by the National University of Ireland Research Ethics Committee, and a report on the study results will be made available to you through ProHealth.com in September 2011.

The survey should take between 25 and 40 minutes to complete, depending on how fast you read! The link below will provide you with further information about the research. If clicking the link does not take you directly to the online survey, you can access it by copying and pasting the link into the address bar of your web browser.

SURVEY LINK: http://www.surveymonkey.com/s/53LSLWG

Thank You for your valuable contribution and for supporting the research!

With Kind Regards,
Caroline Kenny, DPsychSc
Psychologist in Clinical Training
National University of Ireland, Galway




Join the Discussion Post a Comment 


survey
Posted by: AuntTammie
Feb 16, 2011
I took the survey but there were some questions that should have had an NA answer and didn't, which forces people to answer questions that may not apply. Also, there were some that really require further clarification, and the last two sets of questions were difficult to do with brain fog.
Reply Reply
 
Free Chronic Fatigue Syndrome and Fibromyalgia Newsletters
Subscribe to
Our FREE
Newsletter
Subscribe Now!
Receive up-to-date ME/CFS & Fibromyalgia treatment and research news
 Privacy Guaranteed  |  View Archives

Save on Your Next Order

Featured Products

Optimized Curcumin Longvida® by ProHealth Optimized Curcumin Longvida® by ProHealth
Supports Cognition, Memory & Overall Health
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils
Vitamin D3 Extreme™ by ProHealth Vitamin D3 Extreme™ by ProHealth
50,000 IU Vitamin D3 - Prescription Strength
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
FibroSleep™ by ProHealth FibroSleep™ by ProHealth
The All-in-One Natural Sleep Aid

Natural Remedies

Sweet Tips for Fibromyalgia Success Sweet Tips for Fibromyalgia Success
The Curcumin Revolution: The Curcumin Revolution: "Golden" Ticket to Better Health
How I Found My Long-Lost Energy How I Found My Long-Lost Energy
Shoo Pain, Don't Bother Me - Top 10 Nutrients to Take Back Your Life Shoo Pain, Don't Bother Me - Top 10 Nutrients to Take Back Your Life
Reversing Neurodegeneration with a New Magnesium Compound Reversing Neurodegeneration with a New Magnesium Compound

FIBROMYALGIA RESOURCES
What is Fibromyalgia?
Fibromyalgia 101
Fibromyalgia Symptoms
Fibromyalgia Treatments
| CFS RESOURCES
What is CFS?
ME/CFS 101
ME/CFS Symptoms
ME/CFS Treatments
| FORUMS
Fibromyalgia
ME/CFS
ADVANCED MEDICAL LABS
WHOLESALE  |  AFFILIATES
GUARANTEE
CONTACT US
PRIVACY
RSS
SITE MAP
ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus
Credit Card Processing