ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

15 Health Benefits of Chia Seeds, According to Science

Tangerine Oil: A Citrusy Essential Oil With Well-Rounded Uses

Magnesium Deficiency Raises Your Risk of Many Chronic Ailments

CoQ10's Potential Capabilities for Your Health

Testosterone replacement therapy associated with improved urinary, sexual function

How Can Melatonin Benefit You?

Cloves: Boost Your Immune System the Sweet and Spicy Way

The Many Potential Health Benefits of Curcumin

8 Chia Seed Recipes

Cinnamon Health Benefits Proven

 
Print Page
Email Article

US Coalition to Change ME/CFS Public Policy Launched

  [ 16 votes ]   [ 1 Comment ]
www.ProHealth.com • March 14, 2011


A network of organizations advocating for people with NeuroEndocrineImmune disorders* has launched its first national project - the “Coalition 4 ME/CFS” (www.coalition4mecfs.org).

The project’s mission is to influence public policy regarding ME/CFS (chronic fatigue syndrome), by mounting a national strategy that “presents a unified voice, with common goals and objectives…. to improve the quality of life for ME/CFS patients and their families.”

Specifically, the national Coalition 4 ME/CFS intends to “engage and mobilize governmental health agencies, the private bio-medical industry, researchers, health care providers and the public toward finding a cure for ME/CFS and related NeuroEndocrineImmune diseases.” And, by working together in this professional collaboration of like-minded organizations, they hope to strengthen their member organizations, promote resource-sharing, encourage networking and provide leadership training.

"The time is now for a joint national strategy" and this project "is a first big step to changing the outcome for ME/CFS patients," says Mike Munoz, executive director of the Rocky Mountain CFS/ME & FM Association, a coalition member.

Charter Members
The Coalition 4 ME/CFS includes the following charter members, though other like-minded 501(c)(3) organizations are  encouraged to join:
• Chronic Fatigue Syndrome/ Fibromyalgia Organization of Georgia, Inc.,
• CFS Knowledge Center,
• CFS Solutions of West Michigan,
• PANDORA, Inc. (Patient Alliance for NeuroEndocrineImmune Disorders Organization for Research & Advocacy, Inc.),
• Phoenix Rising,
• Rocky Mountain CFS/ME & FM Association (RMCFA)
• Wisconsin ME/CFS Association, Inc,.
• Vermont CFIDS Association, Inc.
 
Background
Recently, ten organizations signed a joint letter inviting the CDC to an open dialogue on ME/CFS through regular meetings. The letter and a petition contained nine action points calling for change in the CDC's research into ME/CFS. Subsequent to that letter, CDC officials agreed to schedule a meeting with these patient organization representatives. This shows the success that results when organizations work together on common goals.

Coalition 4 ME/CFS Plans
The Coalition 4 ME/CFS is planning grassroots activities for the Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting in May and the ME/CFS & FM International Awareness Day. These activities will focus on ensuring that scientific discoveries translate into a change in public health policy that will improve quality of life and create a better future for patients with ME/CFS and other NEIDs.
___

* About NeuroEndocrineImmune Disorders (NEIDs): NeuroEndocrineImmune Disorders include myalgic encephalomyelitis (ME), chronic fatigue syndrome (CFS), fibromyalgia (FM), chronic Lyme disease (CLD), multiple chemical sensitivities (MCS), and Gulf War illnesses (GWI).

Sources: Coalition 4 ME/CFS and RMCFS news releases, Mar 14, 2011




Post a Comment

Featured Products From the ProHealth Store
Mitochondria Ignite™ with NT Factor® Energy NADH™ 12.5mg Ultra EPA  - Fish Oil


Article Comments Post a Comment

Recognition for ME/CFS victims
Posted by: monica4
Mar 15, 2011
What an encouragement! It is reassuring to witness the development of an organization like this. Up till now, there was no strong support for myself and others like me. ME/CFS victims were forced to suffer with a disease void of medical, societal or legal acknowledgement. No one believed us. The attention that comes from this coalition as it gains momentum provides a light at the end of the tunnel. I spent 12 years seeking medical treatment for my condition only to be told it was all in my head. I filed a disability claim because I am unable to work and was told by the administrative judge that he did not believe there is such a thing as CFS. I filed an appeal. The attorneys in 22 law offices refused my case stating CFS was difficult to prove and would not represent me. I need help and am not alone in my quest. This coalition offers hope to all CFS sufferers subjected to similar opposition. Finally, someone is taking action. Monica Welsh
Reply Reply
 
Optimized Curcumin Longvida with Omega-3

Featured Products

Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
Vitamin D3 Extreme™ Vitamin D3 Extreme™
50,000 IU Vitamin D3 - Prescription Strength
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
FibroSleep™ FibroSleep™
The All-in-One Natural Sleep Aid
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils

Natural Remedies

Pioneer Scientists Uncover a Revolutionary Neuroprotective Supplement for Nerve Health Pioneer Scientists Uncover a Revolutionary Neuroprotective Supplement for Nerve Health
Natural Relief for Soreness, Pain and Swelling - Putting Out the Fire Natural Relief for Soreness, Pain and Swelling - Putting Out the Fire
Could a B-12 Deficiency Be Causing Your Symptoms? Could a B-12 Deficiency Be Causing Your Symptoms?
Live Without Anxiety or Stress Live Without Anxiety or Stress
Bone Broth Benefits for Digestion, Arthritis and Cellulite Bone Broth Benefits for Digestion, Arthritis and Cellulite

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE TO OUR NEWSLETTERS
Get the latest news about Fibromyalgia, M.E/Chronic Fatigue Syndrome, Lyme Disease and Natural Wellness

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2017 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map