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Ten Ways to Keep Your Illness Support Group Helpful, Not Depressing

  [ 156 votes ]   [ Discuss This Article ]
By Lisa J Copen* • www.ProHealth.com • May 9, 2012


* Lisa Copen is founder and director of RestMinistries.com, a nonprofit dedicated to practical and spiritual encouragement of persons around the globe who are coping with chronic illness or pain. Lisa, who lives with rheumatoid arthritis and fibromyalgia, pursues this mission with the help of many dedicated volunteers. This article is reproduced with kind permission from RestMinistries.com.**

______________________

10 Tips to Avoid Your Illness Support Group Becoming Depressing

If you live with a chronic illness or chronic pain, the odds are that you have at least tried a support group once since your diagnosis. Did the situation go something like this?

You felt awful the entire day but you decided to get in the car and go to the support group anyway. You thought it would be good for you. It took forever to find the building at the hospital and then you ended up parking what seemed like a mile from the suite number. You found a chair that smelled like old sweat and smoke and hoped somehow you would find some encouragement.

But an hour later you’re ready to make dash for the door. Everyone seems to be so depressed! And too many people want to either sell you a juicer that is sure to cure your problems, or tell you about every surgery they’ve had since 1977.

Aren’t support groups supposed to be a valuable coping tool?

Yes, they are! Studies done on support groups by David Spiegel, MD, have found that support groups do improve the quality of life for their attendees. Recently studies have concluded, however, that the lifespan of a patient with cancer may not increase because of a support group environment (Cancer, Sept 2007).

However, we cannot deny the fact that the validation of one’s feelings about their illness definitely makes a difference in how they cope with chronic illness.

You may attend a support group, or perhaps even lead one, but regardless of how long you have (or have not) participated in one, it’s likely that you’ve seen the slippery slope of how quickly people can go from sharing honest, vulnerable feelings to a session of complaints and even quarreling.

Looking for fresh and fun icebreaker games for small groups to perk things up? Here are 10 ideas to help create some humor and joy in your support group.

• You can evade some of those bitter moments that can so easily come out in conversation about illness.

• Some simple planning can make you feel enthused about your next get together.

• These ideas will work for any group, from a Rhode Island support group for CFS to a diabetes support group for those in Marion County, Florida.

• And they are a great tool to have when you are creating a proposal for starting up a support group.

1. Before your meeting, cut out some smiley faces and sad faces and glue them on each side of a stick or a plastic knife.

When everyone goes around the room to share about their experiences or emotions of the week, ask people to make sure they are able to hold up both “faces.”

For example, Beth may say, “I’m not looking forward to my joint replacement surgery and all the rehab afterwards” while holding up the sad side of the stick. And then she flips it to think of something positive to say: “I feel blessed though, that the insurance is covering a lot of the expenses and my friends have volunteered to help take care of my children.”

2. Redefine your conception of what counts as indoor games for small groups.

For example, start a JOY box and ask everyone to bring an item for it that someone else can take home with them. Have each person choose an item at the end of the meeting. It could be a silly toy, a cartoon, a rubber fish, or great book, a poem, a note someone sent that encouraged you, or even a funny DVD.

Ask everyone to return them at the next meeting and exchange it for another item. Refresh the box up now and then.

3. Here’s a unique icebreaker for small groups.

Make a silly theme song that you use to start the meeting. You can pick a song and make up new lyrics too. Check out comedian Anita Renfroe for some good ideas about how to make a song your own at her web site.

4. Bring some corny things to use during your meetings.

Avoid making anyone feel pressured to use them. (If you force someone to wear a clown nose she may never come back.)

Have them available, however, and encourage goofiness before getting down to the real reasons you are there. Oriental Trading supply is the source of thousands of funny items guaranteed to spur a giggle.

5. Don’t allow the group to turn into a platform for any one member who talks incessantly about her illness, the treatment, the alternative treatments or even her complaints.

If you have someone dominating the conversation, tell the group you are implementing a timer and set your own guidelines.

(For example, can people vent for 60 seconds about anything they want? Can they share about an alternative treatment they want the group to try? Give them a time limit.)

6. Ask everyone to bring an encouraging item to include in a gift basket for someone in need who is either unable to attend the group or not even a member.

Put your heads together about what kinds of items to include. You can find over 500 simple ideas in the book Beyond Casseroles.

Remember personal notes mean a lot, even from people you don’t know, so ask people to write a sentence or two to include with the item.

7. Have a fun night out.

You can act your age and go to a nice sit-down restaurant or head over to Chuck E. Cheese for some pin ball.

It can definitely be a successful icebreaker for small groups because people who haven’t opened up much in the group may feel relieved to have this environment to get to know others.

8. Hand out articles and other resources that encourage people to thrive despite their illness.

You can find fun items through the National Invisible Chronic Illness Awareness Week website like “My illness is invisible but my hope shines through.”

9. Invite guest speakers who you trust will speak positively.

Inform your speakers that they can “tell it like it is” but that you always want people to leave the meeting feeling energized; not depressed.

Let them know they can use props, tell a joke, or do whatever it takes to keep people paying attention.

10. Focus on things that your group can actually do that will change things, since they may feel so unable to control their illness.

If you can’t physically participate in the local walk for charity, could you work at a table handing out snacks or doing registration? Find events your group can participate in to feel like they are doing more than just complaining about their predicament.

Take advantage of the energy that teens with chronic illness often have to motivate support groups to get involved in outside projects.

* * * *

Illness can be one of the most isolating experiences people have, and support groups provide a sense of belonging in the midst of this. The levels of relationship that form in the group, however, are significantly influenced by how uplifting the leader makes the group environment.

None of us wants to leave a meeting feeling worse than when we came, but rather refreshed and motivated to live the best life possible. With just a few changes, your support group can go from being a simple meeting, to becoming a lifeline for those involved.

Note: You can find more ideas for icebreakers for small groups with your free download of "200 Ways to Encourage a Chronically Ill Friend" from Beyond Casseroles, by Lisa Copen.

__

* Lisa Copen is the founder of Rest Ministries, which serves people who live with chronic illness or pain through daily devotionals, articles, and much more. Lisa lives in San Diego with her husband and son. She is gradually learning how to balance motherhood, family, illness, and ministry, but she still knows it will be a lifetime lesson. You can see the books she has written, including Why Can’t I Make People Understand? Discovering the Validation Those with Chronic Illness Seek and Why, at the Rest Ministries shop.

* *This article was first published Feb 3, 2012. It is reproduced here with kind permission of RestMinistries.com, ©Rest Ministries, Inc. 2012. All Rights Reserved.




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