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From Our Readers: Comments & Suggestions – 9/24/2014

  [ 3 votes ]   [ Discuss This Article ]
www.ProHealth.com • September 24, 2014


From Our Readers: Comments & Suggestions – 9/24/2014
Finding the Root Causes of Fibromyalgia Pain

Re: Why Pain, Fatigue, FibroFog and Sleep Are Results Symptoms

My fibromyalgia has improved tremendously over the years. While I cannot say so definitively, I suspect that overuse of prescription drugs was a big factor in my onset of fibromyalgia. I was a good patient and and such good insurance that I didn't even have to pay a deductable. I also had some heath issues. A doctor would prescribe several pills to take care of my needs and maybe send me to a specialist who would add his own prescription to what I was already taking. Hardly ever would any doctor try to help me reduce my medications.

To top that off, as a teacher, it seemed like I was catching every germ that came to school. I had sinus infections and ocassional pneumonia, and for all of that, I was prescribed antibiotics.

When I was diagnosed with fibromyalgia, I was precribed pills for gastro-intestinal problems, pain, sleep, alertness during the day, anti-depressants and so forth. The one pill that really made a difference was Lyrica.

So I stayed on the Lyrica but determined to get off of every pill I could. It took years and having to justify it to my doctor, but with every prescription I shed, I felt better. I even cut down on the amount of Lyrica I had been taking, though I'm still on it.

It seems to me that the multiple prescriptions might have been the cause and the perpetuation of my fibromyalgia. I read somewhere that we don't even know all the side effects of one drug. When we take two, the side effects are more than the total of what is listed for each. Further, when we take three or more drugs in combination, there is no doctor who can say exactly how their side effects interact.

Of course, I have worked to get my sleep issues taken care of naturally, have worked on my nutrition and exercise (my biggest nemesis), and have worked on pacing. These have undoubtedly helped, as well. – pearls

–– and ––

Four years, hundreds of dollars and thousands of hours reading medical books and no help from doctors I figured out what was wrong with me. Two more years of fighting doctors to get a diagnosis put me into bed and took away my ability to walk or get dressed and when severe depression threatened my life I had to resort back to reading, skip the medical appointments andtry everything I could think of.

Yes, just like this article suggests I broke it down to three areas to focus on...1 nutrition, a high protein smoothie every morning in addition to whatever my family was eating for breakfast... 2 get moving, I forced myself to go 1km a day sometimes it took all day sometimes it totally wiped me out but I did it and eventually could get dressed before I walked too :-)... 3 get rid of people and projects which depleted me. GUESS WHAT! I am 75 percent back to my prefibromyalgia health. Thank you for your article. Its good to be on the right track. – msalol

_________________________

Too Tired to Cook!

Re: Does Fibromyalgia Diet = Deprivation?

All the information in the article is useful and helpful. However, it doesn't mention the biggest factor for many fibro people - fatigue. I know what I should eat, and when I'm on the upswing, I don't have a problem with preparing foods that are healthy. The hardest part is the inability to have consistency due to fatigue and pain. If you are unable to do your own grocery shopping, as I am, you are also unlikely to be able to prepare your own food on a daily basis. I would love to see that added to the mix on how to approach healthy eating. – lallerb

Editor's comment: We heard you! Check out these two new articles that address the fatigue problems in fibromyalgia. “The Fibromyalgia Energy Crisis: A Balancing Act” gives you tips on how to avoid things that drain your energy as well as on what you can do to boost your energy levels. “Energy-Boosting Fibromyalgia Superfoods” tells you about four healthy superfoods that help build energy and require little to no preparation.

_________________________

In Need of Understanding – and a Hug

Re: Hypersensitivity to Non-Painful Events May be Part of Pathology of Fibromyalgia

I have been dealing with fibromyalgia for many many many years and I still dont understand it or how it affects me sometimes or if in fact it is because of the fibromyalgia that I react like I do. I use to feel like superwoman, I could multi-task and carry on with a smile not only on my face but in my heart as well.

Today I am not only unable to multi-task, but I feel broken. My heart, my soul, and my body. And then I have a turn and I accomplish all my backlog and I feel like getting out there. But without knowing why or what something will knock me down and it is tremendously hard to deal with it. Its hard to deal with not feeling well without puking or physical symptoms that represent illness.

I suffer in silence, and my soul is screaming for someone, anyone, to reach out and give me a hug. It sucks to be alone when you are too grown up to cry. – vdavison

Editor's comment: I want to reassure you that you are not alone. Here at ProHealth we have a wonderful community of people with fibromyalgia who understand and are experiencing many of the same difficulties and frustrations as you. You might want to visit our forums and connect with some of them. Just click on the "Forums" link at the top of the page.

I understand only too well what you mean when you talk about trying to catch up when you have a good day, only to feel worse again. That's something most of us have a hard time with. After feeling bad for so long, it's hard not to overdo when we finally have a day where we feel better. But it really is important to try to learn to pace ourselves so we don't use up all of our energy in one burst of accomplishing things.

Dr. Bruce Campbell has written several excellent articles on pacing and learning to use our "energy envelope." You can read some of his articles here: http://www.prohealth.com/fibromyalgia/fibromyalgia-pacing.cfm

I hope that helps at least a little.


_________________________

Bless You, Clarissa!

Re: Accepting and Surviving Chronic Illness

While reading your important article, I was remembering back so many years ago when I was told that I could no longer work due to three Autoimmune Diseases. (ie: Autoimmune Arthritic Diseases) My work as a Minister & as a full service Hotel Manager/Management Trainer of over 30 yrs., had become one of my vital identities. I was a husband and a father too, yet my work took up so much of my time and creative energy. I loved all of my work and the thought of losing my work meant losing so much of myself. I couldn't even pray. All I could see was darkness. I fell into a clinical pit of depression.

That clinical depression lasted 2 long years. Mentally, I knew that the Light of Christ still existed within me, yet I could not see it or sense it. All I could do was remind myself that I KNEW it was still there and I had to work myself out of this deep, dark hole. Yet, I didn't really know how even with help from a Psychiatrist. I felt lost, lonely and oh, so alone as I was divorced having no one around me to help uplift me.

I kept praying even though I could not feel Christ close to me. Yet, I KNEW he was still there. Thank God or I would have taken my life. I thought about taking my life more than once, but I could never do that because I KNEW the Light of Christ would eventually return to my Spiritual senses. It was a living hell!

After 2 yrs or so, I did crawl out of that deep, black crevice of depression and the Light of Christ lit up my life, once more. In order to get there, I had to learn to adjust, adapt and then accept that I was now a disabled man with oh so many physical limitations.

I learned so much along the way...

I discovered another way to be of service to the Lord and in so doing, the Light illuminated my life once more.

Remember as Clarissa stated so well...

Adjust-Adapt-Accept!!! And then we continue to adjust, adapt and accept every day of our lives. Yet, if you are a Christian, please always KNOW that the Lord has another Life for you in service to others. Waiting on the Lord is the most difficult or certainly was for me. Yet when the timing was in perfect-order, my life became so much more than it had ever been before in so many ways. And so it continues forward today.

Am I still challenged daily? Absolutely! Do I remain lonely. Yes, I do, at times. Yet, my work of service has expanded beyond measure. This is so gratifying, stimulation and satisfying.

This is one man's TRUTH spoken! So, never-ever give up, my friends. Life & Light carry forward...

You are on the mount where Eagles learn to fly. Let Go & Let God! – Rev. Anthony

_________________________

Fibromyalgia Author Introduces New Facebook Page

Sandy Rozelman's journey began with the Chronic Pain of Fibromyalgia. It started her on a path to finding natural ways of dealing with pain, since drugs weren't working. Searching the Internet, Sandy found little positive support. She knew that she needed to keep looking for ways to heal herself and to reclaim her power over pain. This led her to where she is today: a Pain Management Coach, a facilitator of a Wellness Support Group, and an author.

Sandy's healing began with the realization that there was another way. She found it in humor and in laughter which led to the publication of 4 books of humorous stories and jokes. This led to her current book titled: Chronic Pain Doesn't Have To Hurt: Shift Your Perception of Pain, which is the story of her journey to wellness, and opening a page on Facebook to offer support to others dealing with chronic pain. Sandy's philosophy is: Chronic pain may not be able to be cured, but it most certainly can be managed by shifting your perception of pain so that your pain can heal itself.



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