ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

The Health Benefits of Manuka Honey

Increase Your Magnesium Intake

Vitamin D supplementation could ease IBS symptoms

Top Tips to Boost Your Immunity

11 Amazing Health Benefits of Using Baking Soda

Nicotinamide riboside shows promise for treatment of Alzheimer’s disease

Exercise, calcium, vitamin D, and other factors linked with fewer injurious falls

Vitamin D3 Is a Powerhouse for Your Heart

Curcumin Supplementation May Impart Long-Term Cognitive Benefits

Rhodiola — A Powerful Adaptogen That Boosts Vitality and Performance, Eases Depression and Combats B...

 
Print Page
Email Article

Professional Ethics and the Censoring of Debate

  [ 6 votes ]   [ Discuss This Article ]
By Claudia Gillberg • www.ProHealth.com • August 4, 2015


Professional Ethics and the Censoring of Debate
Reprinted with the kind permission of Claudia Gillberg and Utting-Wolff Spouts.

By Claudia Gillberg

There is an ongoing debate in the ME community regarding whether or not sufferers should be encouraged to keep quiet about their plight because certain medical professionals are ‘laughing at them’.
 
I am disturbed by attempts to silence various forms of expression concerning the suffering of ill people.
 
One tenet of every profession is to act and behave with integrity and to do no harm, that includes more professions than the medical, for instance social and natural scientists. There is a strong element of accountability that is taught on any decent PhD programme. Ill people do not need to follow the politics of appeasement merely because there is a powerful school of thought oppposing them. I have been informed that certain members of the Wessely School integrate blog posts by ME sufferers into their talks or lectures in order to ridicule them. The argument has been made that we should respond to such ridicule by ceasing writing blogs or indeed expressing any opinion that may provide such medical professionals with ‘ammunition’ to denigrate us. If it truly was/is the case that such ridicule occurs and that entire seminar rooms or lecture halls echo with the laughter of members of the medical profession, that is a problem for the medics concerned, not us.
 
Let us consider for a moment the possibility that some ME sufferers aren’t suffering from biomedical ME but instead have a mental illness (this is a hypothetical exercise based on the unsound diagnostic criteria Wessely et al use). Now ask yourselves how that would justify a group of psychiatrists denigrating their suffering and pain. If we are all mentally ill as these ‘professionals’ claim, how would that free them and their colleagues from an obligation to act with professional compassion and understanding? Integrating blog posts by ME sufferers into talks or lectures to ridicule them is a flagrant abuse of power and a serious breach of ethical conduct and should be reported and investigated by the institutions employing the people involved. As every PhD knows, or ought to know, we cannot say whatever we wish to say in our lectures as we are bound by a strict code of conduct. For some reason, when it comes to ME all bets are off and certain members of the medical profession feel free to ignore all ethical and moral considerations when it comes to dealing with a group of extremely ill patients.
 
If ME patients feel the need to express themselves, whether via Facebook, Twitter, a personal blog, or any other method of communication, they should be allowed to do so without worrying that their feelings will be ridiculed by people who should know better. They certainly shouldn’t be prevented from communicating their innermost thoughts due to fear or chastisement by fellow ME sufferers who believe the only response is to appease those powerful figures who have caused so much pain and misery in our patient community over the past several decades. Sufferers are effectively further victimised due to their (own) voices and concerns being invalidated; it is their only life and their pain and they are fully justified in making their voices heard in whichever way they can. They are not members of a profession, they are people left to rot.
 
We should stop blaming sufferers for the lack of funding and political will to do something about this wretched illness, an illness whose treatment, if you can call it that, has been occupied by a scientifically unsound clique whose entire careers are built on denying ME’s existence. The last thing we need is to appease that clique (no, I am not a militant and have never threatened anyone in my life). History has taught us that negotiating with the corrupt and bullying is futile, as reason and rationality do not work in deeply entrenched power hegemonies.


About the author: Claudia Gillberg holds a PhD in Education, and was a professor before falling ill with ME. After losing her tenured position, Claudia became a research associate with the Swedish Centre for Lifelong Learning in early 2014She is currently writing a chapter for a textbook, addressing chronic illness and exclusion from worklife while suggesting different approaches to employers. Dr. Gillberg is a strong advocate for biomedical research into ME. Claudia Gillberg also writes a blog with Geoff Jones, Utting-Wolff SpoutsShe resides in the UK.



Post a Comment

Featured Products From the ProHealth Store
Energy NADH™ 12.5mg Optimized Curcumin Longvida® FibroSleep™


Article Comments



Be the first to comment on this article!

Post a Comment


 
Optimized Curcumin Longvida with Omega-3

Featured Products

Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
Vitamin D3 Extreme™ Vitamin D3 Extreme™
50,000 IU Vitamin D3 - Prescription Strength
Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get Energized with Malic Acid & Magnesium
FibroSleep™ FibroSleep™
The All-in-One Natural Sleep Aid

Natural Remedies

Supercharge Your Brain with Two Powerful Nutrients Supercharge Your Brain with Two Powerful Nutrients
Magnesium + Malic Acid: One-Two Punch for Pain & Fatigue Magnesium + Malic Acid: One-Two Punch for Pain & Fatigue
A Hard-Working Molecule that May Help Ease Pain & Brighten Mood A Hard-Working Molecule that May Help Ease Pain & Brighten Mood
Can Pomegranates Slow Aging? Can Pomegranates Slow Aging?
Fatigue & Fibro Fog: Could You Have a B-12 Deficiency? Fatigue & Fibro Fog: Could You Have a B-12 Deficiency?

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE TO OUR NEWSLETTERS
Get the latest news about Fibromyalgia, M.E/Chronic Fatigue Syndrome, Lyme Disease and Natural Wellness

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2018 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map