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Cymbalta’s Withdrawal Symptoms Prompt Lawsuits

  [ 121 votes ]   [ 88 Comments ]
By Donna Gregory Burch • www.ProHealth.com • January 22, 2016


Cymbalta’s Withdrawal Symptoms Prompt Lawsuits
By Donna Gregory Burch

When Lori Peterson’s doctor decided to switch her fibromyalgia medication from Cymbalta to Savella, she trustingly followed his instructions – a move that would land her on the couch for a week as she experienced Cymbalta’s withdrawal symptoms. 

Diagnosed with fibromyalgia in 2007, Peterson had been using Cymbalta for three years and was taking 60 mg twice a day. While Cymbalta eased her symptoms for a while, it had stopped working, and Peterson was hoping Savella would finally bring some relief from the pain and fatigue of fibromyalgia.

“[My doctor] actually told me that I didn’t need to wean off of the Cymbalta as Savella was similar,” Peterson recalls. “I reduced the dosage of Cymbalta and then stopped. I then started the smallest dose of the Savella. After a couple of days, I could not sit up.”

For the next week, Peterson was so dizzy that she couldn’t go to work. She laid on her couch, unable to stand on her own.

“If I tried to sit up, my head was spinning so bad that I would just fall over,” she recalls. “I needed help getting to the bathroom and back.”

Peterson is just one of thousands of Cymbalta users affected by the drug’s high rate of withdrawal symptoms. A study by drug maker Eli Lilly and Company found 44 percent of patients experienced withdrawal symptoms, such as dizziness, nausea, headache, paresthesia, vomiting, irritability, nightmares and others, when they suddenly stopped taking Cymbalta. A larger, subsequent trial involving more than 1,200 patients found 50 percent of patients have withdrawal symptoms.

Since up to half of patients may experience these symptoms, physicians should know to wean patients off of Cymbalta slowly, but many, like Peterson’s doctor, aren’t aware of the drug’s risks.

And there’s a reason for that.

In Eli Lilly’s physicians’ prescribing guide for Cymbalta under the “discontinuation of treatment with Cymbalta section,” it reads, “Following abrupt or tapered discontinuation in adult placebo-controlled clinical trials, the following symptoms occurred at 1 percent or greater and at a significantly higher rate in Cymbalta-treated patients compared to those discontinuing from placebo: dizziness, headache, nausea, diarrhea, paresthesia, irritability, vomiting, insomnia, anxiety, hyperhidrosis and fatigue.”

Catch the discrepancy? Trials indicate 44-50 percent of patients have withdrawals. Eli Lilly’s prescribing guide says 1 percent or higher. Technically, it’s accurate, but it’s not the full story, and some doctors could infer from that 1 percent figure that withdrawal symptoms aren’t common.

This discrepancy between Eli Lilly’s prescribing literature and its actual research findings has prompted hundreds of former Cymbalta users to file suit against the drug maker, claiming the company didn’t fully disclose the severity or frequency of Cymbalta’s withdrawal symptoms. Thousands more cases are in the pipeline for filing, according to Baum, Hedlund, Aristei & Goldman, PC, one of the law firms involved in the legal action.

“The label gives the impression that withdrawal is a rare event (somewhere around 1 percent) when in fact it is common,” writes the law firm in a recent statement. “We think Lilly played with semantics and the system in choosing its wording; it chose wording to minimize the risk while at the same time using language such as ‘or greater’ as a CYA [cover your ass] measure. We believe the label is misleading, plain and simple. The testimony of the prescribing doctors in these cases proves it; they believed the risk was rare.”

It seems like a valid argument, but so far attorneys have been unsuccessful at convincing a judge or jury. The first three cases heard in federal court last year ended in verdicts for Eli Lilly.

Last August, plaintiff Claudia Herrera told California jurors that she felt “desperate” for months after she stopped taking Cymbalta. Her withdrawal symptoms included anxiety, dizziness, insomnia and brain zaps (which are described as feeling like a lightning bolt going off inside the head). 

Eli Lilly’s attorneys argued it’s common knowledge that antidepressants cause withdrawal symptoms when stopped suddenly, and it’s standard practice for doctors to wean patients off of them. The jury bought Lilly’s argument and ruled in the company’s favor.

Later in August, plaintiff Erin Hexum’s trial was cut short by a California federal judge who ruled in Eli Lilly’s favor after Hexum’s physician testified that he couldn’t remember if he had read the physicians’ prescribing guide. The judge reasoned that if the physician couldn’t recall the guide, then how could Hexum’s attorneys argue that misleading information contained within it was responsible for her symptoms.

Hexum said she experienced severe cramping, requiring an emergency room visit, after she stopped taking Cymbalta for fibromyalgia. She has since been diagnosed with a seizure disorder and has lost her driving privileges.

Both Herrera and Hexum are appealing their cases.

In early September, a Virginia jury ruled against plaintiffs Gilda Hagan-Brown and Janine Ali, who claimed Eli Lilly was negligent in not fully disclosing Cymbalta’s withdrawal symptoms. Both women said they experienced depression, migraines, pain, fatigue and brain zaps after stopping Cymbalta in 2012.

To date, more than 200 plaintiffs have filed lawsuits against Eli Lilly. Attorneys have been unsuccessful in their attempts to consolidate these cases into a class-action lawsuit. Understandably, Eli Lilly’s attorneys have fought class-action status because it increases the chances of the company eventually having to pay compensation to thousands of affected patients.

The next Cymbalta case isn’t expected to be heard until late this year.

Have you been affected by Cymbalta’s withdrawal symptoms? Share your experience in the comments section!

About the Author:  Donna Gregory Burch was diagnosed with fibromyalgia in 2014 after several years of unexplained symptoms. She’s written extensively about the Cymbalta withdrawal lawsuits on her fibromyalgia blog, including a helpful resources page at www.fedupwithfatigue.com/cymbalta-withdrawal-lawsuits. Donna is an award-winning journalist whose work has appeared online and in newspapers and magazines throughout Virginia, Delaware and Pennsylvania. She lives in Delaware with her husband and their many fur babies.



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Article Comments Post a Comment

Worst experience of my life
Posted by: TBay
Jan 23, 2016
I was out on cymbalta for facial pain following a screwed up jaw surgery. Cymbalta gave me no relief and was followed by an increase in pain (though the two may be unrelated). When I tried to stop taking it (dropping from 60mg to 50mg (20mg+30mg)) The discontinuation symptoms were so bad I had to give up. I was filled with anxiet and rage accompanied by a complete departure from rational thought. I couldn't leave my bed. The room was spinning and I felt sicker than I've ever felt. When the next dosage came around, I went back to 60mg. It still took me 3 days to become functional again.

I was eventually able to go off of it by adding in another antidepressant every time I lowered the Cymbalta dosage. This mitigated the side effects well. I feel much better and have much more energy without Cymbalte. I've done a fair bit of research since then and found studies indicating that Cymbalta has little to no effect for nerve pain over placebo. I believe they put you on this useless expensive drug knowing you can't stop taking it when you realize it doesn't work.

What Eli Lilly is doing isn't just wrong, it's criminal.
Reply Reply

Cymbalta
Posted by: Paints13
Jan 27, 2016
I tried to come off of Cymbalta to go on savella but the side effects were so horrible for me that I had to go back on Cymbalta. I don't think I will ever be able to be weaned off of Cymbalta. I didn't make it far into the weaning stage before I had to go back on Cymbalta. So I don't think it matters if people were weaned off of it or just stopped it. I think it's the medication itself. What a horrific experience it was. I'm still fighting a lot of pain and I take 60 mg twice a day along with other meds. But as I said, I don't think I could ever come off of it and if they ever make me I hope they put me in a comma because I don't want to feel it or go start to go through that again.
Reply Reply

Cymbalta withdrawl
Posted by: kittycat62
Jan 27, 2016
Withdrawal from this drug took nearly three weeks and I still would get the stabbing head pains. I had nightmares that terrified me and cannot remember at least a weeks worth of days. I slept in my living room when I could sleep because I was afraid. I have no idea where that fear came from except that many times I thought I was going to die. That drug is poison.
Reply Reply

Cymbalta Withdrawal
Posted by: tate_462002
Jan 27, 2016
I have fibromyalgia and depression and have been taking Cymbalta now for several years. I tried to take myself off of it a few years back as I had researched the side effects and was afraid to continue taking it. I had some of my doctors tell me I could just stop taking it so I tried. The second day I began getting sick and nauseated along with other symptoms. By the third day I thought I was dying and went to see my doctor who treats me for Sleep Apnea. I told him about it and he explained to me that he had other patients who had ended up in the hospital from coming off of cymbalta. I now have cirrhosis of the liver in which was the initial reason I tried getting off because I had heard ads on tv from attorneys that indicated cymbalta would cause harmful affects on the liver. I now still continue to take it as my primary doctor feels I should stay on it. My insurance is giving me issues regarding the price and I am stuck in between. I really am stressed about my situation and pray that I can get some help from someone regarding this killer prescription.
Reply Reply

It's the same problem with Pristiq!
Posted by: curecfs
Jan 27, 2016
Pristiq is an SNRI like Cymbalta and formulated in a time-released coating you are not supposed to cut. The normal dose is 50mg, and they just released a "step down" dose of 25mg. What a joke! You can't go from 50 to 25 to 0! You will go out of your mind! Even if you do attempt to cut them, there is no way to accurately do it because the pills are small and square and not scored. I have been contacting various lawyers about this with no luck. I guess I am stuck on this. My only option would be to switch to Effexor and try to taper that, although I'm sure that wouldn't be a cake walk either.
Reply Reply

 
Don't switch to Effexor
Posted by: MarcieRose
Jan 28, 2016
Effexor is an SNRI just like Cymbalta with the same debilitating side effects. It took me six months of brain zaps, dizziness and nausea to wean off of Effexor and that was with it coupled with Prozac to reduce the side effects. Even now if I lose more than 4 pounds in any one week, I get brain zaps. I don't know about Cymbalta but the active components of Efexor are lipophilic meaning the are stored in fat. If you are overweight and plan to lose, you could be experiencing a milder but still sometimes debilitating recurrence of withdrawal symptoms as you lose.

 


Cymbalta
Posted by: dawdaw
Jan 27, 2016
Hi I just wanted to say that
I have been on Cymbalta for only 1 month but the positive results I have experienced have been amazing. I was diagnosed with Fibromyalgia nearly 25 years ago and the pain sometimes puts me in bed for a week. But in the last month the pain is not only bearable it is hardly there... incredible although the fatigue hasn't reduced much. I haven't experienced any bad side effects so regardless of the withdrawal symptoms in this article if you are suffering the pain of fibro I would still try it. I'm only taking 30g a day in the morning.
Reply Reply

 
It works
Posted by: dopsal
Feb 25, 2016
I agree that it works. But if you ever need to stop taking it or forget it when you are on vacation it is very,very horrible if you have withdrawal symptoms. I hope you stash some away in your travel bag. It is great when you are on it. I have used it for over 10 years. But if I had the choice I don't know if I would go on it again. It is like a bad illegal drug to get off of. Good luck to you.

 

 
Just don't ever come off it, or forget it..
Posted by: Ashen
Nov 24, 2016
I just hope you never run out, you'll be a slave to cymbalta from now on, just as you were a slave to your fibro before that.. there are better ways.. cutting out as many toxins from your lifestyle as possible, reducing GMO consumption, going natural with cleaning products etc.. I used to think it was all hogwash, but it's really not, it's just common sense.

Back to the cymbalta, I think the issue is lack of information. If you have all this info and know what to expect when you go on the drug, then you've made an informative decision, you go in with your eyes wide open,. For most of us, we did not know what we were getting into. I was prescribed cymbalta for pain and depression and I've had a whack of symptoms as described by others, both on the drug and then those experienced by others coming off it.. for me, each time I tried to come off it, I made a serious suicide attempt, but I never really made the connection.. I thought it was because I needed the drug to help with my depression, but my depression had never caused me to make such serious attempts before.. I think the more likely explanation is, that the attempts were a symptom of withdrawal.. I tried to hang myself and my partner at the time had to cut me down.. 2 years later, when trying to come off to try to conceive, I ate several bottles of pills and cut my wrists and ended up in icu for several days with a 2 week psychiatric stay after that. The drug is poison imho, but I hope it continues to help you and that you don't ever need to come off it for some reason. Good luck to you.

 


Cymbalta
Posted by: dawdaw
Jan 27, 2016
Hi I just wanted to say that
I have been on Cymbalta for only 1 month but the positive results I have experienced have been amazing. I was diagnosed with Fibromyalgia nearly 25 years ago and the pain sometimes puts me in bed for a week. But in the last month the pain is not only bearable it is hardly there... incredible although the fatigue hasn't reduced much. I haven't experienced any bad side effects so regardless of the withdrawal symptoms in this article if you are suffering the pain of fibro I would still try it. I'm only taking 30g a day in the morning.
Reply Reply

Worst Kind of Hell
Posted by: stoneturner
Jan 27, 2016
I was Cymbalta for 4 months for Fibromyalgia. When I was laid off from my job and my insurance benefits ended 2 weeks later I was left to go cold turkey. A month supply of the Cymbalta I was on was $600 at the time. My unemployment didn't cover my rent, let alone, try to pay for a prescription. (I made $100 to much a month on unemployment to get medical assistance).

I had panic attacks, paranoia, hallucinations, brain zaps, excessive fatigue, muscle spasms/cramps, nausea, loss of appetite and difficulty sleeping due to sweating and manic dreaming.

I've told everyone about my experience with Cymbalta and highly recommended that they never accept it from their doctor.

I've never in my life had an experience like that. Cold Turkey even after 4 months of being on Cymbalta is dangerous. The withdrawals last approximately 6 weeks before those close to me thought I was back to normal in my behavior, moods, and sleeping patterns.
Reply Reply

My own experience
Posted by: spencer
Jan 27, 2016
I have been taking anti-depressants for many years. Back in 2006 I had been taking both Wellbutrin XL and Nefazadone, and my psychiatrist at the time knew I had fibromyalgia and suggested I switch to Cymbalta to help with both my fibromyalgia pain and depression.

Basically what I remember is that Cymbalta did nothing to help with either and my psychiatrist switched me back onto the Wellbutrin XL (I had never stopped taking Nefazadone at that time). I can't recall how long I was on the Cymbalta, but it was for a relatively short amount of time. He told me to get off the Cymbalta completely and resume taking Wellbutrin XL.

What had happened to me at that point was just awful. My depression went to an all-time low and my anxiety became out of control. In fact it was so bad, that I could no longer concentrate at work and suffered from agitation and worsening depression... eventually having to stop working.

Ten years ago, I just thought my depression and anxiety had worsened, but now I do wonder if, in fact, it was due to abruptly going off the Cymbalta!!

JS
Reply Reply

cymbalta withdrawal
Posted by: donnabo
Jan 27, 2016
Hi I'm Donna I was diagnosed with fibromyalgia in 2009 at some point I was given Cymbalta and I took it for a couple of years and gained 60 lbs. Along with my doctor we decided to wean me off Cymbalta and start taking Savella.. Cymbalta is an awful dangerous drug. As I was weaning off I had severe hallucinations and head zaps like someone had a taser in my head. These head zaps lasted a very long time and I still get them occasionally. During the withdrawal process I seriously considered suicide. I took off one day and wanted to drive into a tree. Thank God I stopped myself. When I was thinking logically( which at this time wasn't too often ) I knew in my heart it was the meds making me feel that way.I just couldn't control it. I even jumped on my husbands back and started to punch and slap him. This kind of behavior is not who I am. I have a very loving relationship with my husband and would NEVER in my right mind do such a thing. When I went to my primary physician at the time his response was. "You are broken, may I pray with you". That was it I needed help and I knew it.. I am happy to say Cymbalta and Savella are out of my life for good. I just learned other ways to cope with the pain. Its not easy at all,but nothing in this world will ever make me take Cymbalta again.. I am willing to share this with whoever will listen. I do not want anyone else to go thru what I went thru.. It's time to take this poison off the market.
Reply Reply

CYMBALTA WITHDRAWAL
Posted by: endfatigue
Jan 27, 2016
A larger issue is that the company does not make a low enough strength to allow withdrawal safely, and has big warnings against breaking the caps (as one normally would do to get a lower dose)--making coming off their medication impossible for many. A trick? If carefully opened, the caps will have small beads inside. By having my patients slowly lower the # of these beads, I have been able to withdraw people I treat from the medication
Reply Reply

Cymbalta
Posted by: Failidh
Jan 27, 2016
I have both Fibromyalgia and ME. My doctor prescribed Cymbalta but I used it for only a short period of time as I experienced most of the withdrawal symptoms that this article identifies while I was taking it -it made me feel quite insane, as well, and it gave me no pain relief at all. A horrible drug. Co-incidentally, the drug Lyrica had the same effect.
Reply Reply

Very Scary
Posted by: cjdevries
Jan 27, 2016
I took Cymbalta for CFS because I had been in severe pain and my doctor said Cymbalta could ease the pain. After taking one tablet, I woke up the next morning nearly unable to move my mouth, extremely dizzy and terrified. The drug seemed to stiffen my body but the worst thing was that I had a strong sense of dissociation, feeling that nothing was real- but not in a positive spiritual way of life as a play or illusion. It is hard to describe other than to say that it was not fun. I think it can be a dangerous drug to give to sick people because it can just make everything worse and I would guess there has to be a big potential suicide risk. Then again, I talked to a friend with bipolar disorder and she said it had been a really great drug. So I guess that shows the polarizing nature of antidepressants?

Reply Reply

First Time Withdrawal Severe
Posted by: GeekyGranny
Jan 27, 2016
The first time I went cold turkey on Cymbalta. I felt so much sicker and dizzy and just out of it. I went right back on it and the symptoms abated.

But then I told my doctor I wanted to quit Cymbalta, and she had me first cut down from 60mg twice a day to 30mg twice a day. Did this for about three weeks. Then she had me go to one 30mg a day. Did this for another three or more weeks. Finally, I was able to use it every other day for the final three+ weeks. So when I quit completely it took nearly three months to do it!!
Reply Reply

It takes a long time
Posted by: Leandak
Jan 27, 2016
I took Cymbalta for 3 years and had developed a very sensitive skin problem where I'd break out in hives and itches for no apparent reason. I had tried eliminating foods and other potential triggers but had not found what was triggering the response. Then I read the Cymbalta fine print again. Here's my Facebook post from that day in January 2015:
'Whilst researching withdrawal from Cymbalta, I came across the 'consult your doctor immediately if any of the following occur' side effects of skin rash, welts, hives. Why has my own doctor not considered Cymbalta as the cause of my skin problem?
I've developed a theory that because I've cleaned up my diet considerably over the past 12 months, my gut absorption has improved and sensitivity to toxins has increased. My skin is attempting to detox the Cymbalta.
I started the taper off from the Cymbalta yesterday. Went from 60 to 30mg without symptoms. Took 30mg again this morning, and am really short-fused and cranky today. Also feeling on the verge of tears.
I haven't noticed any change in my skin yet, but hoping that dropping my dose will improve it.'
I continued to post about my withdrawal experience from time to time. Here's more from the following day:
'Decided once the body tremors started to split open a 60mg capsule and divide it into thirds. That's 20mg and takes my dose to 50mg. What a pain-staking (and painful) job. There are around 550 tiny poppy-seed size balls in a 60mg capsule. I counted them. They move around much like beanbag beans - very hard to pin 'em down. Anyway, it was worth the effort. The top up dose has settled my symptoms down, and my family is safe from Mrs Crankypants for the moment.'
It took me over 6 months moving down by around 10mg each few weeks. The brain zaps were awful. I used these as my indication that I was weaning too fast.
Reply Reply

Cymbalta is good and bad
Posted by: Iamnatam136
Jan 27, 2016
I will have to agree with the person that said they need to make a dosage that is in smaller mgs. to help with the weaning process. I have been on Cymbalta for probably about six years now and it was prescribed originally for depression. Then they realized it was good for fibromyalgia so my doctors felt that made it even better for me to take. I started on 30 mg and then went to 60 then 90 and all the way to 120 and then I asked to drop back down to 60. The problem I have had is getting my behavioral health doctors to get my prescriptions refilled timely and I have had to do without Cymbalta for up to nine days. I start getting sick after I miss one day and by the time I am at three days I am very sick to my stomach, have a bad headache and severe pain everywhere. I can't think and start crying all the time and feel suicidal. The warnings Eli Lilly gives doesn't say that this is going to happen and yet it has since I started taking it. I now am going to ask my doctor to wean me off of it because I don't want to face these withdrawal symptoms anymore when my providers can't get my refills done in time. I can't say it helps my fibro at all but without it, I have some severe neuropathy and had to go to the hospital for pain medication injections.
Reply Reply

Cymbalta's Withdrawal
Posted by: zsazsa50
Jan 27, 2016
I was on Cymbalta for less than 9 mos. My doctor told me to stop taking the Cymbalta because it was causing me to gain weight (50 lbs.!!). I was never told to work my way off. And I had a lot of the systems listed. After reading this, I believe now that this is the reason I ended up in the ER, in July 2015. My whole body had been having severely body cramps, but that night in July (2015), it was so bad, that I was screaming and crying. Of course the ER could not find anything to cause my cramping. After getting 2 dosage of Morphine. I was released and told that I had an unknown verse. It's been 6 months and I'm just start to feel a bit better.
Reply Reply

Cymbalta Withdrawal
Posted by: Grannyberd
Jan 27, 2016
I was on Cymbalta for about 5 years for Fibromyalgia and it worked very well for my pain. I was asked to lower my dosage if I could by my GP because she believed I was taking the highest dose allowed leaving no room for adjustment if my depression worsened. I was given no instructions on how to reduce the dosage so I started a gradual decrease. I was reducing from 90mg daily to 60 mg daily. The gradual decrease started well but depression and extreme fatigue took over. I missed a dose here and there because I was sleeping into the afternoon so I stopped taking them altogether. I ended up in a clinic for severe depression. I would happily go onto Cymbalta again but I would recommend that if you are coming off it, it needs to be gradual and supervised, even if only by a friend or spouse. Personally, I would not be interested in participating in a civil lawsuit. The medication worked extremely well for me for some time. Most medication has some side effects and it depends on the individual as to what side effects if any are experienced. The severity of the symptoms also varies according to the individual. Cymbalta was a life saver for me whilst it worked.
Reply Reply

Cymbalta and Lyrica
Posted by: sarmacost
Jan 27, 2016
I have been taking both of these medicines for several years. I tried to go off Lyrica last year and I got hot flashes, chills headaches, chest pains. I have since been put back on Lyrica. I have several problems with my feet but one being neuropathy that has taken over my life and I need pain meds along with Lyrica to stop the pain. But lyrica caused me to gain 40 pounds and I do not need any extra weight. They have not taken me off Cymbalta yet but I do not now how long they can leave me on it. I believe these companies do not tell us how adictive these pills are and what we will have to go through to get off of them. They should have to pay us because we have paid a fortune to take these pills, they should for painand suffering to get off of them
Reply Reply

Cymbal the Torturous Waste
Posted by: BrianFuseSchell
Jan 28, 2016
I too was on Cymbalta for a good 5 or 6 months then had Lyrica added, neither of which did much for my fibromyalgia pain at all. After another 5 month of taking both, my doctor and I agreed that stopping the Cymbalta was a good idea, as taking less drugs (especially non effective ones) was a good idea. I had been reading about people having many different side effects from Cymbalta, including loss of sexual desire, which I had definitely been experiencing. Being I was in my early 30s I really didn't like that side effect and was experiencing some depression. I was told to quickly ween off Cymbalta as the Lyrica should make it a smooth transition. I had a horrible next two weeks, feeling all types of withdrawal symptoms. As many have said the brain zaps or "glitches" as I called them were one of the worst. My flares increased triple fold at least; had dizziness, nausea, diarrhea, cognitive problems, fatigue and many other w/d symptoms. The Lyrica did NOTHING to smooth the transition, and continued to give me NO relief at all for the next pointless year and a half I was taking it. For that year and a half I experiences worsening cognitive issues including a lot if short term memory loss/priblems. I then weeded myself of of the Lyrica. A few weeks of more "glitches" or zaps I finally felt more normal, since then I have noticed a huge recovery in memory. Both drugs were ridiculously expensive, luckily I was on an indigent care program and patient assistance. I strongly urge fibro patience to not take either especially Cymbalta, unless you like taking a drug that has no benefit and destroys your sex drive! Finally a few months ago I was offered Savella... if course I was sceptical but had heard of way more success stories. I am glad to say I have been feeling better than I have in years because of the Savella. I still suffer from tons if pain and flare ups but they are less common. My restless legs are much better, have improved my cold intolerance immensely, have been sleeping way better/mire and feel all around better. Still, the narcotic pain meds are by far the best for the day to day pain but u am very glad to have started the Savella... even though it's roughly $400 a month with no insurance (thank God for patient assistance). The SSNRI's make the most sense to me for relieving fibro, but Cymbalta definitely did not compare to Savella, which makes me wonder what is going on with it. Fibro patients beware, we ate basically just ginnea pigs so do your research and Def ween of slowly if taking Cymbalta and plan to stop.
Reply Reply

My symptoms
Posted by: MelindaS
Jan 28, 2016
I have been diagnosed with Fibromyalgia since 1989 and have been on many medications throughout the years to attempt to manage my pain. I have been on Cymbalta since 2010 and the medication has helped somewhat. I had just changed my insurance in 2014 and was in between doctors when I ran out of medication. It was 9 days of "hell" before I could refill my prescription. My most severe symptom was depression, which I have never experienced depression like this before.I felt extreme anxiety the first 2 days, then began having crying fits (for no good reason)then after about the fifth day I began having suicidal thoughts constantly (which I had never had before) I truly felt that I was losing my mind! If it were not the amazing support of my husband I would not be here today. All the other symptoms,headache,insomnia,nausea and cramps throughout my body ...seemed small compared to my depression.I did tell my new Doctor about my symptoms and she did not seem to be concerned about my continuing Cymbalta and my symptoms seemed to go away when I began taking it again. After reading this I really would like to get off of Cymbalta...but personally I'm afraid of the consequences. In my opinion,medication lapse should effect anyone so severely.

Melinda
Reply Reply

Cymbalta
Posted by: dlucilled
Jan 28, 2016
I have taken Cymbalta 60 mg daily for FM for several years. It has made life so much better for me in terms of decreased pain and fatigue. I tried the generic and after several months the severe fatigue and pain slowly came back. I have missed a day at times, and I do get severe dizziness. While I acknowledge debilitating side effects occur, I really hope to still be able to take this medication. I believe I am still able to work because of it.
Reply Reply

Cymbalta contributed to Fibromyalgia
Posted by: HeidiD
Jan 28, 2016
My husband had a complex case of Spinal Cord compression requiring surgery, and post-op was in severe chronic pain, which was very depressing, so his doctor put him on Cymbalta (instead of dealing with the underlying inflammation naturally). Over time, he developed overall body pain, later diagnosed as fibromyalgia. When we realized his medications caused his fibro, we began weaning him slowly. We had already weaned his Gabapentin, then his Cymbalta. Boy was it hard to get off Cymbalta! Thankfully there was a good support forum online, that advised slow weaning and what supplements to take - mainly amino acids and fish oils. I then counted out "beads" of Cymbalta, gradually weaning, until he was off them. He did get brain zaps twice, despite his very gradual weaning. He never wants antidepressants ever again. Getting adequate nutrition for brain health is far more effective to control depression than any medicine.
Reply Reply

Cymbalta withdrawls
Posted by: SamMoore
Jan 28, 2016
After being on Cymbalta for over a year my doctor switched my meds. I was in shock that I would experience trembling, fatigue, severe pain, and nausea. I went on the meds prescribed which I thought was the side affects which wasn't the case. I switched back to Cymbalta the following month, this time on Cymbalta I experience disturbing thoughts about hurting myself and others. I went off the meds again to experience all the same withdrawals again.
Reply Reply

Cymbalta
Posted by: NotaFan
Jan 28, 2016
I, too, suffer from Fibromyalgia, plus 24/7 headaches. My experience with Cymbalta continues to be awful as I struggle to taper off the damn stuff. Because being on it wasn't helping reduce my FM or headache symptoms, with the help of my doctor, I started tapering from 100 mg. very gradually, stepping down one month at a time, to where I'm at now, to 20 mg. Unfortunately, I've been at 20 mg. now for 3 months unable to get completely off. Every time I try to skip a day (one day off/two days on), the electrical jolts become so severe they result in a migraine that lasts for up to 5 days. By day 4 I'm a crying mess, unable to function, and my entire body and head hurt so bad I can't function. I've had to go into my neurologist office to have nerve block injections to halt the migraine because the other two migraine medications weren't working.

Any suggestions, please? I desperately want to get off this crap but am stuck at 20 mg.

HELP!
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To Notafan
Posted by: cme@
Jan 28, 2016
Please read my post-Getting off the Rollercoaster. I hope it helps!

 


Getting off the rollercoaster
Posted by: cme@
Jan 28, 2016
Slowly and carefully is the key. I tried just stopping but couldn't and my doctor gave me a lower dose Rx. I felt bad but I was taking half of my previous dose. I then tried taking it every other day but that didn't work. Luckily I found advice online from former users. I opened each capsule and removed 7 grains and each week removed 7 more. There were a few weeks where I couldn't step down because of the headaches and brain zaps. Someone figured out that 7 grains approximated a 10% decrease. It took almost 6 months but it was tolerable. I was surprised that the last 7 grains was even difficult to eliminate! The only other drug I've had problems stopping was Paxil. I think it's well known now but in 1997 my doctor was unaware. Drug companies are not motivated to inform the public or doctors. Profits over people! What a shame!
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To Notafan
Posted by: cme@
Jan 28, 2016
When I first began I simply removed the 7 grains and put the capsule back together. As I increased the amount of grains I was removing it became very tedious and required some finesse to keep them from rolling around while I was counting! I had a small tray, tiny matchboxes lined with kleenex and tweezers that I used. I got pretty good at estimating the # of grains to dump out and start counting. If you dump out too many, you have to put them back! I used an empty capsule to scoop them up. The last few weeks I just counted the # of grains to take, moistened my finger, picked them up and popped them in my mouth.

Good Luck!

 

 
Tapering off Cymbalta
Posted by: NotaFan
Jan 28, 2016
Thank you, Rollercoaster. This is very helpful. Question...how did you take the remaining pellets? Just toss them in your mouth and wash down with water?

Thanks again.

 

 
Cme thanks ..
Posted by: harboreen
Jan 28, 2016
I'm going to try your way...
Just fyi
I too was on Paxil with same withdrawl symptoms. I recall telling my-then- doctor of my symptoms.. his reply was.. Oh that can't happen! Ha!
My new Dr put me I Cymbalta.


Class action law suit for Paxil was a WIN

 

 
Worth a try
Posted by: dopsal
Feb 25, 2016
Thank you for this. Why don't doctors know and try to help with eliminating Cymbalta?

 


Can't get off Cymbalta
Posted by: harboreen
Jan 28, 2016
Horrific brain zaps!! This feels as though someone is flicking their fingers directly on my brain..this is the best I can describe this feeling.
There's more!
Dizzininess so badly I cannot move my head even a little! Along with that dizziness there's a sinking type feeling in my head, liking to falling in ones sleep.
This happens if I forget one dose! It is TOTALLY incapacitating.
I cannot get off this medication!

SOMEONE PLEASE HELP
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Thank you
Posted by: MarcieRose
Jan 28, 2016
Thank you for tracking this. My gut level response to the news was that some judge was in Lilly's pocket. Of course this should be a class-action but more than that it should be a media and social media action. Sometimes mass shame can work where the legal system has failed. Has anyone thought of trying congressional hearings?
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Cymbalta withdrawal, unsuccessful weaning and compounding
Posted by: Linz4562
Jan 28, 2016
I have been on cymbalta for years for fibro all-over body pain. I reached my highest dose at 90mgs and was eventually able to get down to a stable dose of 60mgs. Since starting Benlysta infusions for co-occuring lupus and hormone therapy for fibro, I have attempted to get off the drug completely. Due to the dosing available for this drug (20mgs, 40mgs), I used my compounding pharmacist to make small increment pills. This was due to the severe side effects experienced when attmpting a weaning from 60mgs to 40mgs. As stated by many others, I experienced dizzy/balance issues, brain zaps, eye discomfort, and irritability. I would be unable to work or drive as the symptoms came in strong waves. The only way to solve the issue was to return to the usual dose. Within an hour of taking the cymbalta, symptoms ceased. The problem with the compounding is two-fold....it is expensive. The pharmacist actually had to count each grain to make an alternate dose such as a "50mg". Then this process would have to be repeated in any even besides 20mg and 30mg which is what Eli Lily makes. The process is difficult for the user, the pharmacist, and is expensive. The issue could be addressed by admitting the severity of withdrawals in cymbalta users and provide varying increments of the pill. Still, it could be a possibility as many have noted, that when off the drug completely, there is a lasting imbalance that needs addressed. I have found that a compounding pharmacist and doctors informed by functional medicine have been the only people who help to support this need. The doctors who prescribe the pill have no clue what patients experience ans often do not beleive the severity of the withdrawal.
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Cymbalta withdrawals
Posted by: mhreyes
Jan 28, 2016
I too had a horrible expirence coming off this drug . I thought I was going to die . I did taper off it. Still was deathly sick . I am no longer on that drug . It did help in beginning but it was causing a lot of insomnia and constipation so I decided it was time to come off . I'm glad it's over and I mentioned that to my doctor but she said it wasn't that but I know it was . I am thankful for time it did helped because I was chronic at the time and did help me to get better but it does have its side effects after a time no longer works . Sorry to hear about all the effects it's causing to all of you. Thanks ????
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Cymbalta withdrawals
Posted by: mhreyes
Jan 28, 2016
I too had a horrible expirence coming off this drug . I thought I was going to die . I did taper off it. Still was deathly sick . I am no longer on that drug . It did help in beginning but it was causing a lot of insomnia and constipation so I decided it was time to come off . I'm glad it's over and I mentioned that to my doctor but she said it wasn't that but I know it was . I am thankful for time it did helped because I was chronic at the time and did help me to get better but it does have its side effects after a time no longer works . Sorry to hear about all the effects it's causing to all of you. Thanks ????
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Cymbalta/Effexor
Posted by: Rethahanda
Jan 28, 2016
I took Cymbalta for many years for depression, then switched to the generic for Effexor. Price was a factor, but Cymbalta just wasn't helping. No problems with the switch to Effexor, but the high dose was causing me to lose my temper, and I was having additional problems with anxiety and insomnia. I asked my doctor if I could go back to Nardil, and that required 3 weeks off Effexor. I developed horrible, horrible nausea, and fibromyalgia symptoms developed. I was diagnosed with fibro in 1988, but never took meds. Effexor and Cymbalta may have masked the fibro symptoms, but the development of fibro symptoms was rapid. Effexor was titered down, it wasn't rapidly removed. There wasn't a break between changing from Cymbalta and Effexor. It's been nearly a year since changing to Nardil. I have constant fibro symptoms, including bilateral pain in my legs. The fibro is treated with tinazidine and gabapentine, 3x a day. If I miss a dose, the pain is relentless, and takes several days of meds to decrease the pain. It's never absent. Fortunately, the nausea finally disappeared. If I knew then what I know now, I'd never take SRI's, SSRI's, or SNRI's. Chemically, we know what these drugs are expected to do, but there are many issues that require years before symptoms develop. Producers of pharmaceuticals do not and will not spend years conducting research. Those of us who develop side effects, some permanent, are just collateral damage.
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Withdrawal of Cymbalta
Posted by: marleen
Jan 29, 2016
I have been on Cymbalta for several years now, after taking Prozac for 9 yrs. it stopped working for me, at the time, I tried many other anti depressants, all with alot of side effects. however, when I started the cymbalta, it was alot better. I have had Fibro for over 20 yrs. So I know alot about the Chronic illness. AFter several years of taking cymbalta, I had some bad dreams, once in a while, but so far, thats the worst I have had, it has really helped me alot.

I know when you are taken off any drugs, especially cymbalta, that you have to start cutting dosages down a little at a time, not all at once, its to much at one time and your body doesn't accept it. I was on Xanax for over 10 yrs. and my doctor has taken me off of that drug too, which has side effects, as many drugs do with withdrawal, but we have done it over a 7 mths. period which has worked out wonderful for me so far. Any drug that I was taken off from I would ask the doctor, if he didn't advise me, that I want to do it a little at a time, it works best that way, and many people I spoke too, have done the same thing. LIke me, they have had no bad side effects, if they withdrew very slowly. I feel that the doctor should know the drug, and alert his patient , that the best way to come off of any drug is by doing it very very slowly.Its true that everyone bodies is different, so many people will have different problems.I also feel the drug company should make people aware of this in their packaging, and on the front of the package to alert the patient, that this may happen to them.
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Cymbalta
Posted by: Nanalmh59@gmail.com
Jan 30, 2016
I was weaned off Cymbalta as it was not helping me anymore I had to be taken to the emergency room after a couple days I was very edgy and constant crying
Reply Reply

Cymbalta
Posted by: Nanalmh59@gmail.com
Jan 30, 2016
I was weaned off Cymbalta as it was not helping me anymore I had to be taken to the emergency room after a couple days I was very edgy and constant crying I have fibro and DDS in neck and back and Ptsd
Reply Reply

Cymbalta
Posted by: Nanalmh59@gmail.com
Jan 30, 2016
I was weaned off Cymbalta as it was not helping me anymore I had to be taken to the emergency room after a couple days I was very edgy and constant crying I have fibro and DDS in neck and back and Ptsd
Reply Reply

Weaning off of Cymbalta
Posted by: Gayle
Jan 30, 2016
Since Cymbalta is first and foremost a psychiatric drug, I would find a Psychopharmacologist ( a specialty of Psychiatry)to do this. I would not trust a PCP to be able to do this. Also, it isn't impossible to come off of the drug if it is done in a controlled manner (in a hospital, if necessary). I don't know what kind of drug information you have at your disposal but the Pharmacist who filled the prescription should be able to answer you questions, but again, with such a severe reaction to coming off of this medicine I would recommend a Psychopharmacologist. For basic information (besides the patient information sheet that should have come with the drug from the pharmacy)I recommend www.medlinePlus.gov For Cymbalta: https://www.nlm.nih.gov/medlineplus/druginfo/meds/a604030.html
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Lyrica withdrawl
Posted by: Kiawah5
Feb 1, 2016
Look into Lyrica withdrawls , just as bad as Cymbalta. They are all poisons
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So sick!!!
Posted by: bmwhite77
Feb 1, 2016
I am not surprised to see a lawsuit against this pill. I have been taking Cymbalta for a couple of years now. In those 2 years my doctor has let me run out of refills twice and both times I thought I was going to die. I was so sick. What's scary is the brain zaps and when I tried telling my doctor about them she acted like she didn't believe me. The maker of this pill really needs to inform our doctors of the risk of running out or going off it completely.
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It's like making a deal with the Devil!!
Posted by: jschatt1
Feb 1, 2016
I've tried weaning and getting off Cymbalta since November of 2014! I've tapered down so slowly. Per Dr. recommendation I was on 120 mg. My fibromyalgia continued to get worse, my mental state was getting worse, so my psychiatrist recommended weaning (appalled that I was on such a high dose), I followed her exact directions and when it was time to be done, I immediately got so sick, light headed, dizzy, migraines, nauscous,etc. I was in bed or on the couch for 3 weeks and symptoms continued to get worse, not better. The migraines were so bad, I had to use those eye covers for sleeping for days..no light, no tv, computer, I just layed awake and saw black. Finally I couldn't take it anymore and she recommended I go back on it for relief. I've now tried tapering (opening the capsules and weaning by each 5mg bead inside) 4 times with the same withdrawal symptoms, and I have been unable to get off of it. My body goes crazy. I feel like I'll never get off of it, which is why I feel I made a deal with devil. No medication should have a hold on me like this. I hate the makers.
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Cymbalta's long term legacy
Posted by: Diona
Feb 1, 2016
I was treated with Cymbalta for neuropathy in my legs following a back injury. I took it for a year and a half. At first it worked and helped. Then it became non-effective, I suffered profuse perspiration, my hair started falling out, I gained 60+ pounds of water weight and felt like I was going to loose my mind with the feelings of increasing anxiety. I went to my doctor and she was extremely concerned and started me on a wean down. First I took a lesser dosage for a week, then stopped. That was Super Bowl Sunday 2012. And the withdrawal began. The head zaps finally stopped after 6 months, I could be around any sudden sounds (as benign as a television being on low volume) after 3 months. I began searching for some way to sue the manufacturer for this.

Legacy: I still have period of high anxiety, my head hair has filled back in to about 2/3rd of preCymbalta. I still am missing most of my eyelashes, eyebrows and other normal body hair. I came out of withdrawal with Fibromyalgia.. not just pain in my legs but throughout my entire body with all the other classic symptoms of
FMS that weren't there before taking Cymbalta. I was told that Cymbalta doesn't have lasting side effects, and I was assured that the onset of Fibromyalgia had nothing to do with it either, but here I am. And I'm not convinced there isn't a connection. I would like to be included in one of these class action suits, let me tell you.
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Cymbalta Withdrawal
Posted by: mrsrickm
Feb 1, 2016
I was initially put on Cymbalta several years ago (at least 8 years) for chronic depression. The doctors increased the dosage and kept me on it for my fibromyalgia pain. I was a walking zombie and feeling suicidal. I quit taking it by reducing the number of pills I took weekly until finally I was completely done. The suicidal urges subsided and my emotions have been going crazy since I quit. It's probably been about four months since I've taken it. The worst side effect of withdrawal that I had was these stabbing pains in my head. They would start from the back and shoot upward. They felt electrical. I don't get them as often now but once in a while when I'm just not feeling quite right or I have a splitting headache that Excedrin won't cure, I take a Cymbalta and the symptoms disappear. I hope this isn't life long. I've also started getting tremors, especially in my hands. I'm not sure if this is my Fibromyalgia, the Lyrica I take for neuropathy or a withdrawal symptom.
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My entire lifestate changed
Posted by: Phuntress
Feb 1, 2016
I believe Cymbalta changed my entire life. Before fibromygia, I excelled at my profession and family life. Once my doctor prescribed the Cymbalta, evert hinges chsnged. I had to use assistance to walk. It took six months before I was able to do my own shopping and I still have to use a motorized cart. Every symptom mentioned engulfed my life. My finances are drained. My outlook is very negative and has been since 2008 and I blame Cymbalta.
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cymbalta
Posted by: jillgamb
Feb 1, 2016
I was prescribed cymbalta in the early spring 2007 or 2008. I was upto 90 a day and felt no relief. In fact had such bad side effects I tried to get off of it by the end of that summer. It took me from September till January to Wednesday slowly off it. Trying any faster resulted in being bed ridden with severe dizziness and vision problems ...a debilitating brain zaps. it was absolute torture even slowly weening. It was prescribed for my fibromyalgia pain. It is 10 years later and I still will have mild brain zaps. That's just the side effect I can be sure is a lasting effect. WHAT did this drug do to my brain permanently that I'm still brain zapping???? I know refuse to try anything for my pain and fatigue other than vitamins and rest. Drug companies misrepresent their products to maje money and drs are doing the same. The amt of drs I have seen that push these pills is disgusting. Im not a guinea pig to "see what happens" ?? This is NOT all in my head. .. I was 29 when my first major flare happened. Im 39 now...and believe my illness to be Lyme disease. Which is a major epidemic and because the refusals to diagnose the pharmaceutical companies can spend years treating our symptoms individually wuth their pills... that will never help. Instead of a few rounds of antibiotics.
Im disgusted with our government for allowing money to rule them looking the other way while pharmaceutical companies make billions peddling poison.
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Terrible
Posted by: jamie54
Feb 1, 2016
My withdraws were so bad I was bedridden for 2 weeks. I had spinning vertigo and anger and severe depression. I almost was admitted to the hospital. Dear lord, I had to get back on it in order for the evil symptoms to go away.
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I had the same symptoms
Posted by: Amym82
Feb 1, 2016
I stopped taking Cymbalta because I couldn't get an appointment before my prescription ran out after I moved. I felt the same dizzy, nauseous, brain zaps,I was so irritable. Luckily it went away after about 4 to 5 weeks. My mood was worse and is just now leveling out. I don't recommend this to anyone and I've been on my fair share of medications. I'm proud to say that I've now gone the natural way and using my own treatment is working
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Horrible
Posted by: nbogart
Feb 1, 2016
I started weening off Cymbalta after I started getting "shock" like feelings all over my body. It was like you stuck your finger in a light socket. So, I tried weening off. It was horrible. Dizzy, forgetful, no concentration, electric shocks, sleeplessness or over sleeping. I was driving home from work and forgot where I was and where I was going. It happened many times. I had to pull over and think about it. The first time, I was a few blocks from home. I do not recommend this med at all.
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Cymbalta withdrawal
Posted by: BHoyle
Feb 1, 2016
I tried to go off this drug cold turkey. I ended up going back on it and am on it still. My symptoms were horrible dizziness, nausea and vomiting, hallucinations, brain zaps and intensified pain. I was put on Cymbalta for Fibromyalgia and Ankylosing Spondylitis. I am scared to try to get off of it.
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cymbalta
Posted by: prohealth11
Feb 1, 2016
I am wondering what others have taken to help with the withdrawal process? Are there supplements that you have taken to help ease the transition or prescription medications? What other prescription drugs have you taken for FB/CFS symptoms?
I am determined this time to finally get off of it.
Thank you,
J Warner

Reply Reply

Cymbalta & Effexor
Posted by: flowerchild1256
Feb 1, 2016
Back about 10 years ago I was taking Effexor for my chronic depression. I lost my job & with it my insurance so I could not afford it. I tried getting assistance from the drug company but my husband made too much. There was no generic for it then, not sure if there is now, so I had to just stop. My doctor gave me a few sample bottles of a lesser mg. to try to help. I didn't really have any side effects as I was coming off, except for the fact that my depression got worse again.
I was diagnosed with fibro in 2011 after I broke my arm...BADLY!! I had been complaining of the pain for several years & my doctor could not figure out what it could be. I think it had a lot to do with the fact that I didn't know how to describe it. My doctor put me on Cymbalta. At that time it only came in name brand so my doctor helped me out with sample bottles & I started getting generic from Canada I finally got approved from Eli Lilly for assistance. They would send it to my doctor's office & I would go pick it up. I started with 30mg for a month them went to 60mg. I am now at 90mg.I have been taking that for about a year. I don't know how you all are taking 20, 50, & 100mgs since it only comes in 30 & 60mgs. The doctor tried me at 120mg but that was too much for my brain. I was having side effects from that as if I wasn't taking anything for my depression. I was upset all the time, cried a lot, etc. so I went back to 90mg. I am in more pain again but it's better than being crazy I guess.
My point to all of this is that I didn't have a problem with or coming off of the Effexor & I had to stop taking the Cymbalta for about 3 months until my shipments from Canada got to me. I stopped cold turkey & had no side effects except for my pain & depression. I was glad to get it back. I am here to tell everyone that neither of these effects everyone in a bad way. Don't be afraid to take because you are scared of the side effects of coming off of it.
Reply Reply

Me too
Posted by: Destinrain
Feb 1, 2016
I have had a very hard time, cymbalta stopped working, left me unable to sleep, very anxious and in a lot of pain. Couple weeks of throwing up. I hate feeling this way. I pray for some relief.
Reply Reply

Me too
Posted by: Destinrain
Feb 1, 2016
I have had a very hard time, cymbalta stopped working, left me unable to sleep, very anxious and in a lot of pain. Couple weeks of throwing up. I hate feeling this way. I pray for some relief.
Reply Reply

Cymbalta withdrawl
Posted by: yupitisFM
Feb 2, 2016
I was DX with FM in 2007, Lyrica was tried with bad bad side effects, then quick off and onto Cymbalta. Sweats, nightmares and nausea faded off after a month. Started to notice back in 2013-14 it was no longer working at 60mg/day. Tried this last summer to get off. Told to reduce to 30 for a week then off. I was ok downsizing but with two day of no Cymbalta, I started in. Wired, insomnia, rages, sweating profusely, sick like flu feeling came back, freezing yet sweating, all joy gone, it was like I was on a major detox from her ion and was told by many it can be just actually like that. I finally couldn't take it two weeks in and got RX refill for 30mg extension refills and got back on. When my primary got back from her sabbatical she saw what I was trying to do by getting off and explained it is one of the hard ones and it can take months and months to be over off the withdrawl symptoms. So I have to ask myself if I should try again this coming summer or not. I cannot take savella due to my hypotension so there are no others to try. I also take gambapentin and trazadone at nighttime to help w insomnia.
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Cymbalta NEVER AGAIN!!!
Posted by: Rachaline
Feb 2, 2016
I ran out of my med before my doctor's office and pharmacy got their act together
And was stuck 4 days without my new prescription. By the second day I could tell that it had been doing nothing for my fibromyalgia pain so I decided to just stop taking it!! BIG MISTAKE!! By day for ( when my prescription was finally being refilled) I was dizzy, massive brain zaps, leg and thigh cramps I could only compare to massive labor pains. Moods swings that made me look like a psychopath!! Let's not forget the major cramps and diarrhea!! Needless to say I popped that pill in my mouth as fast as I could and decided right then and there that I was gonna slowly ween myself off and NEVER put that poison in my body again. I am almost off now and still getting some cramps and mild brain zaps but I can handle those until I'm finally off this discussing product!! Oh and by the way I was at the lowest dose also. 30 mgs is all I ever took! Thank God!! My advice, if your doctor suggest cymbalta... Run and don't look back !! This stuff is pure poison in my opinion!!
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I experienced horrible withdrawal
Posted by: jeannec2u
Feb 2, 2016
I experienced horrible withdrawals from cymbalta. I briefly less than a week tried savella and couldn't handle it looking back it could be due to the withdrawal effects I was experiencing from cymbalta. I was only told to wean off over a 2 week period of time..

I experienced the dizziness the brain zaps which was the worst as well as several others listed. I have not used anything like that since as they thought I would be sensitive to it. I now know it was improper weaning off as well as withdrawal effects...it was horrible.
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cymbalta's withdrawals
Posted by: dennis1966
Feb 2, 2016
I'm first got diagnosed with fibromyalgia in 2010. I was put on cymbalta, I took it for a few monthsto see.if it would help my pain. As I kept going up in dosages my pain was no better I had awful side effects I couldn't sleep or eat. I lost weight. I couldn't think straight or concentrate at work. So my doctor recommended me switching to savella. I had to be winged off of cymbalta. I was told if I stopped taking it the result would end in me having seizures because of the very bad withdrawals. I had a hard time there was days I couldn't get up for work or anything. My husband had to help me. I had bad migraines that lasted for days. It was the worst I ever felt. I never want to experience that again. I am currently on savella daily so far it's help with the pain.
Thank You. Manuella Francisco
Reply Reply

Cymbalta side effects
Posted by: Hayeskaty
Feb 3, 2016
I took cymbalta after having spinal cord surgery. It wasn't until I ended up at a hospital did anyone know the severity of what cymbalta does to your mental status. I wasn't aware of the events that occurred until I was in a mental facility until the medication was out of my system. I had attempted suicide after having some sort of psychological break. I was taken to the hospital by my parents and then 1013'd, held against my will because I was considered a harm to myself and others. This drug shouldn't be on the market and there are so many people whom I have come across that have had similar situations. I almost took my own life.
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Crazy withdrawals!
Posted by: eljulia
Feb 4, 2016
I tried to get off cymbalta once in the 10 years I've been taking it. The first week I thought "This isn't bad at all!" Then the brain zaps started. Then the off the hook anxiety kicked in.

I gave up and went back on it.

I've seen protocol online for weaning so slowly that it's actually bead by bead from the contents of the capsule. That seems to be what's necessary to survive the withdrawal.
Reply Reply

Mini Stroke on Cymbalta- withdrawal was terrifying!
Posted by: RondaDowd
Feb 5, 2016
I am 46 & I was diagnosed with Fibromyalgia in September 2014. My Doctor proscribed Cymbalta and began ramping me up slowly saying it would lessen the chronic pain & extreme fatigue and then I could be weaned off of the pain pills & muscle relaxants I had been on since on of my many flairs begin in June 2014. I started on Cymbalta in Sept 2014 and after a few weeks of ramping me up slowly I noticed little things like when I first woke up I would attemp to say "good morning" to my dog and the though would form but the words were delayed and slurred. This happened for weeks it would start in the morning & be fine by noon!? Also my right leg & right arm would go limp & I had to walk around the house saying in my mind "leg listen to my head, head listen to my leg" I don't know why but it was helpful. I also had terrible muscle twitches. I could never lay still without twitching. The BIG issue occurred late October 2014 where I was talking on my cell phone to my Mother. My left hand started shaking badly I couldn't hold the phone. I placed it down on speaker. Then my speech became VERY slurred and I was trying to tell her I needed to get up and walk. I was terrified and almost in tears because all I could get out was "wwwaaallllk" I stood up and my dog was right at my side noticing there was something wrong. I had to move my right arm with my left hand and after I stood up I was dragging my right leg. It was terrifying. My dog was right behind me pushing my right leg with his nose as I was trying to get my brain and body to connect. When I slowly shuffled back to the couch I realized to my embarrassment that before I got up I had lost my bladder and the couch was all wet. I hadn't even noticed. I was all alone and scared. I called my doctor they said to ask the neurologist that I had an appointment with the next week. I called and they couldn't see me but told me if it happened again to go to the ER. NO ONE told me to go to the ER immediatly because mini strokes need to be seen right away.
I felt helpless. I continued to have horrible slurred speech in the morning hours. I went back to my Doc and asked him if Cymbalta can cause mini strokes he said it could so we slowly started weaning me off Cymbalta in November, very slowly. When I got to Christmas I was on the lowest dose. He was putting me on Noratryptaline over the New Years evidentially I was started on too low of a dose and that's when the withdrawal nightmares began. I was terrified having loud horrible nightmares breaking out in a terrible sweat. This kept happening for a couple days I was sick to my stomach and had bizarre paranoia that I might do something to my sweet adorable dog that I love more then life itself. I went into the front room and paced and bawled my head off it was hell on earth. FINALLY after the holiday I was able to contact my Doctor and he ramped me up much faster on the Noratryptaline after a week or so I began to calm and not feel like I was coming out of my skin.
Since that episode I was tested my a neuro/psych and was told there was decline in my word recall. I can see it in my head but I can't match the name to what I am seeing and it causes me to stutter. I will NEVER take Cymbalta again. It is a horrible drug and I hope we all get compensated for the loss and terrifying experiences that occurred. It cost way too much and it caused me minor brain damage. I am even coming off of Noratryptaline and still taking Tramadol because nothing has helped my fibromyalgia it has made it all worse. I am happy to share my story if it helps other.
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Cymbalta & neurotransmitters
Posted by: Findingmeg
Feb 7, 2016
One thing I hope to help everyone with when they're thinking about taking another drug to help them withdraw from Cymbalta is: we have three different neurochemicals in our brain, rather than the one we commonly think of, which is serotonin. The other two are norepinephrine and dopamine. Cymbalta is an SNRI, The S stands for selective and the RI stands for reuptake inhibitor. The N in SNRI stands for norepinephrine. If a Dr. were to give the patient a drug that works on serotonin in the brain, that does not help with the withdrawal of norepinephrine, previously provided by Cymbalta. SSRIs are serotonin SNRIs are Norepinephrine and SNDRIs are typically a combination of norepinephrine and dopamine. Those are more rare, but an example I can think of would be Wellbutrin.

I once had to taper off of a SSRI and the doctor gave me an SNRI to do it. I became incredibly ill. On another occasion while discontinuing and SSRI the doctor gave me a different SSRII in a very low dose as I withdrew from the first SSR I and it went flawlessly. I withdrew within approximately one week. I don't know that it's an exact science, however I do think there is something to it when it comes to there being a difference between serotonin, norepinephrine, and dopamine, and ensuring that when we are tapering off of one we use a low dose of another which would be of the like kind to supplement. And, because we will have been on the second medication for a far shorter period of time, it is then very easy to taper off of.

Learned through abnormal psychology classes while obtaining psychology degree
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The worst feeling in the World.
Posted by: faherdt
Feb 7, 2016
I was diagnosed with fibromyalgia in 2010. I was prescribed lyrica at first but it was not working for the pain. So the Dr took me off of it and prescribe Cymbalta 160 mg to be taken before bed. Im also on a muscle relaxer to. But Im still in pain and walk up achey in the morning. My shoulders and neck are were the pain is the worst. But anyway I ran out of refills on my Cymbalta. So I call it in to the pharmacy and they send a fax to the Drs office and then they send back to refill my pills. Well it didnt happen. So I called the Drs office and told them and they said we will get on it. Well they never did. I called them almost everyday for 3 weeks. Until I finallu got them filled 3 and a half weeks later. It was the worst 3 and a half wks of my life. I was dizzy, everytime I turned my head it would spin. I had really bad headaches and I was on a migrane med and it didnt help. I could sleep. I was vomiting and nauseas. I was sweating really bad. It got to the point were I wanted to kill myself thats how bad it was. Anything to take away the misery and the horrible withdrawals I was going thru. Never again do I want to go thru that. I was never told anything about cymbalta. I got a new Dr in 2014 bcuz the Dr I had left. So I got a new Dr. I would like to get off cymbalta for good. But im so scared to.
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weaning off
Posted by: ckuz
Feb 16, 2016
I HAVE been on cymbalta 60mg for about 4 yrs now and just cut down to 30 mg 4 months ago...I wanna go off it altogether but i know hard and will be sick...I know what its like missing a day or 2....How can i wean off....? I just dont wanna rely on meds unless have to....
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Cymbalta's Withdrawal Symptoms
Posted by: Kmommy
Feb 20, 2016
I have been on Cymbalta for many years. I have gone through many of the exact issues being spoken of by just about everyone on this comment section. I'm so happy to finally have found a conversation related to the Cymbalta side affects. It has been many nights and days to where I would get the shooting head pains, dizziness, moody funny thoughts, nightmares, major headaches, can't get out of bed (would just lay there for days), very weak and my eyes tend to run a lot as well as I was this past year finally diagnosed with Non Physilogicall Epileptical Seizures by a Mayo Clinic Certified Epilepcy Specialist. That means as she described it to my family in front of me," my brain has received so many pain signals from all over my body to where it has developed a protection of its own to where my brain will shut off communication from my body this triggering my seizures. Crazy. Also there is no cure or way to treat it as its non-epileptic. It's dangerous as it comes on and people have no clue what to do but she says it is to be treated like a regular seizure as I can get seriously injured, so people have to constantly watch me. Mind you I have SLE Lupus so I have been going through it daily but it's seems since I have been taking the Cymbalta I have gotten way worse and I have tried to stop taking it but I can't as I really get all kinds of extra symptoms and so I have to keep taking it. I'm glad I finally have found a place to discuss my issues as its been quite embarrassing and people that don't take this Med have no clue what I be talking about so it makes me hold things inside.
Thanks
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My experience with Cymbalta - head sweating side effect and withdrawal
Posted by: babe001
Feb 21, 2016
I took Cymbalta for years for fibromyalgia pain and depression. I started at 60 mg./day but eventually reduced down to only 30 mg./day. I had suffered from profuse head sweating for years and thought it was hormone related (menopausal). I found information on the internet about other people taking Cymbalta had suffered the same side effect, so I decided to wean off Cymbalta. I started by cutting my dose in half, which was a big mistake! I suffered the brain zaps and felt like I was going crazy. After a few days of that, I got back on the internet and read about other people's experience trying to stop Cymbalta. I ramped the dosage back up and made a new plan, as I wanted the profuse sweating to stop. I reduced by dosage very gradually, like 7/8 of a 30 mg. dose and titrated down over about a month. I did nothing other than concentrate on reducing Cymbalta for at least six weeks. I was finally successful getting off Cymbalta, and voila!! the profuse sweating stopped. It was miserable getting off of the drug. My doctor seemed surprised that I had problems getting off of it. He was also incredulous about the sweating side effect. There is no doubt in my mind that Cymbalta caused the profuse head sweating. I have warned others who tell me they are going to start an anti-depressant about the difficulty I had getting off Cymbalta.
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Sweating of scalp and face....
Posted by: Onewhoknows
Feb 24, 2016
I had that profusely w/ Prozac!! I also had aphasia ( wirds nit coming out of my mouth..like normal) I went to s Neurologist to find out if I had experienced a mini-Stroke... As I walked from the parking structure to his office... My whole back and hair were soaked!! I ran/dripped down my Bach yo my butt cleavage and started a Candida infection there!! Went thru hell!! The MD asked why I was sweating so much!! I thought too... It was Menopause. Menopause my A$$!! It was reaction to the Prozac!! One Rx cause a multitude of side effects!! Then had to take harsh barrage of anti yeast Rxs!! Made my GI system SOOO messed up!!

Further along in my medical learning curve... I got SEVERE sciatica of my R/hip!! I went in to Orthopod and was quickly injected w/ STEROIDS!! Misery!! I reacted to it by having my perisistalic action ( wave like movement of food thru my GI tract) to stop!! Couldn't have a BM for 7+ days!! Oh... Was I sick!! Also... I was now Post menopausal, but landed having severe pubic cramping... That lead to a full menstrual period!! I had been confirmed in Menopause 4-5 yrs earlier by blood work!! Turns out my flow smelled foul and was bright RED!! (vs darker red) I asked the Dr what was IN the injection he gave me... B/C I am having a period when I hadn't for YEARS!! He said.."steroids & Kenalog" I freaked!! I had had the same reaction when an Allergist gave me a shot for my allergies and that I had experienced the VERY same reaction then TOO!! When I told him about the previous documented side effect/reaction... He said..." I've NEVER head of such a thing!! ". it's NOT POSSIBLE!! "

I was slsi seeing a spinal specialist for lower back pain and shared what happened to me and my experience. He said..." I think you had your pituitary gland stimulated... It DOES happen!! I then told his his colleague just told me I was a freak of nature!! That it has never happened or never heard of it happening!! He got quiet!! He knew the other MD lied!! Niw I list bit the Prozac AND the KENALOG as Rxs I'm allergic too!!

Consequently... I returned to the first Dr for recurring hip pain w/ Sciatica... And told him that the spinal MD kniws ALL about my reaction to Kenalog!! He should chat w/ him!! That hip Dr got REAL quiet!! Claims unless I accept steroid injections there was NOTHING he could do for me!! No pain Rxs either!! I explained what the first Dr said to my spinal Dr (Physiatrist) who seemed embarrassed for the first one and Rx'd me Lexapro (Anti depressant) Tramadol... Metaxalone (Muscle relaxer) w/ T#3 for emergencies in lieu of Tramadol if I got the severe back pain (found my L 4-5 was shifted... Pinching my spinal cord.. & Spinal Stenosis( Facet Syndrome) .. & Analkylizing Spondylitis (sp?). He knew WHY I was in such pain!! God Bless him!! He just left my state to return to where he Fellowed.. For a better paying position. Miss him!!! Had a steady hand when he had to do several Radio Ablations of my Lumbar Spine( needles in my facet points and electricity burns the nerves) for 13-18 mo( depending) Dine under anesthesia and in an X-ray table to guide him!! God Bless you fellow sufferers! Write EVERYTHING down! GET COPIES OF YOU PATIENT REPORTS!! Keep in binders w/ sections for @ MD... So you will have proof you're not crazy!!

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Cymbalta withdrawal symptoms
Posted by: katrink
Feb 25, 2016
After being on Cymbalta 90 mg /day for several years to treat Fibromyalgia, I neglected to set it up in my 14 day pill container with the other meds. Approximately the 6th day being without it, my husband was baffled why I was so irritable and I'd also been so tearful that even commercials were making me cry. So after my husband also wondered why I seemed to be crying so much over nothing at all, I suddenly had a wake-up call at about the 9th day of unknowingly being off Cymbalta. I checked my pill counter. (I'm able to swallow all my meds at once, so I simply toss them all in my mouth at once). When I discovered my error I realized why I'd been having daily headaches and had felt nauseated on top of my irritability and emotional instability.
I've become more vigilant about my pill set up routine since that incident.

Cymbalta has been an effective medication for keeping fibromyalgia flare ups at bay along with the anticonvulsant mediication and the only complaint I have re' Cymbalta is the hyperhirosis it causes and, of course the high cost of the drug.
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Horrible side effects- I never KNEW!
Posted by: dopsal
Feb 25, 2016
I was on 60 mg of cymbalta for many years. I was not informed that it had withdrawal side effects. I left the country and forgotten to bring my scrip. I thought "oh well, good time to get off of it anyways ". I never, ever, expected what then happened to me. I became dizzy, felt nauseated, my eyes were sore, I had headaches and felt like the room was spinning.
I looked up side effects and realized I had the worst of the worst. Fortunately I was able to get a refill to tide me over until I returned home.
On another weekend trip I once again forgot my Cymbalta. I thought I had the flu. I was dizzy, queasy, and could not function. I had muscle aches.
I wanted to wean off of them and tried to reduce the dose slowly. It was too difficult. I went back on the 60mg dose and plan to stay on it until a better way to reduce the side effects is found.
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Cymbalta after effects
Posted by: emilybooze
Mar 14, 2016
It's nice to know you are not alone. I have stopped taking Cymbalta about 2 months ago and still deal with brain zaps, insomnia and anxiety. It's so scary to have something going on in your brain you don't understand. I was once told I had vertigo. Um no!!! Yes it feels like that then you get a sensitivity to your ears when the brain zaps happen. I was even told it could take a year to completely go away. I hope so. This drug is scary. Like everyone else I trust doctors and thought it would help my fibromyalgia. I even weined myself off and still have the bad symptoms. Had I know this in the beginning I would have never taken it.
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Cymbalta and Addiction
Posted by: Annmarie62
Jul 24, 2016
Literally had horrible side effects, but didn't know one was addiction. I had at the time quit gambling Aug. 3rd 8 yrs and started up and I kept getting worse.I had a bad car accident and I finally confided in my best friend. I never watched TV at the time. I was a religious and this was REALLY bad mentally too as well as the fibromyalgia, now I had anxiety depression, fatigue. I told my neurologist, psychiatrist who took me off because I said, my friend told me the commercial mentioned if you were a shopaholic, gambler or sexaholic not to take Cymbalta and you never asked me and this was after a long long time. She put me on ambilify and say your gambling should stop and if it doesn't its not my fault. The habits gone on. Physical, Mental and Spiritual side effects from Cymbalta and one of my Carmelites was the one who saw the commercial. I can't believe I saw this.
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Cymbalta/Savella withdrawal
Posted by: rakiethebird
Aug 11, 2016
I have experienced withdrawal symptoms from both Cymbalta and Savella, they are breathtakingly bad! Has anyone checked the FDA pages on the "adverse effects" page to see if they have been reported? If there are no reports, you, as a patient who has experienced an adverse event, can post one.

I experienced a rough 5 days changing from C to S a few years back. I had to take time off work to cope. Also when my physician botched a renewal for Savella, I was forced into a withdrawal that was mind-bogglingly bad as well.

If you can steer clear of these drugs, I highly encourage you to do so. SSRIs seem to fine if you take your time backing out. The fact that both Cymbalta and Savella are NSRIs might be the reason they are so horrible.

Nonetheless, we should note that they work well while one is taking them -for most.
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Just don't ever come off it, or forget it..
Posted by: Ashen
Nov 24, 2016
I just hope you never run out, you'll be a slave to cymbalta from now on, just as you were a slave to your fibro before that.. there are better ways.. cutting out as many toxins from your lifestyle as possible, reducing GMO consumption, going natural with cleaning products etc.. I used to think it was all hogwash, but it's really not, it's just common sense.

Back to the cymbalta, I think the issue is lack of information. If you have all this info and know what to expect when you go on the drug, then you've made an informative decision, you go in with your eyes wide open,. For most of us, we did not know what we were getting into. I was prescribed cymbalta for pain and depression and I've had a whack of symptoms as described by others, both on the drug and then those experienced by others coming off it.. for me, each time I tried to come off it, I made a serious suicide attempt, but I never really made the connection.. I thought it was because I needed the drug to help with my depression, but my depression had never caused me to make such serious attempts before.. I think the more likely explanation is, that the attempts were a symptom of withdrawal.. I tried to hang myself and my partner at the time had to cut me down.. 2 years later, when trying to come off to try to conceive, I ate several bottles of pills and cut my wrists and ended up in icu for several days with a 2 week psychiatric stay after that. The drug is poison imho, but I hope it continues to help you and that you don't ever need to come off it for some reason. Good luck to you.
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Cymbalta withdrawal - The Real Problem--The Real Solution
Posted by: endfatigue
Jan 11, 2017
The issue is not simply that it causes withdrawal. Many meds do. The issue is that they made it with large warnings saying "DO NOT BREAK OR CRUSH" implying it can kill you. Then they failed to make a pill lower than the 20 mg dose--making it dangerous to stop the med as it could not be weaned. So they made an inherently unsafe product, when they could have made it much safer by maker lower dose "weaning "pills.
The solution, taught to me by a pharmacist? If one carefully peels of the pill coating, they will find small beads inside (of 1 or 5 mg, depending on the form). Each bead can be used like a lower dose pill to allow weaning. Just don't crush or break the beads
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Cymbalta withdrawals ARE horrible
Posted by: babylx50
Jan 11, 2017
I am currently taking the generic version of Cymbalta. I didn't think it was really working any longer for my pain so I abruptly stopped taking it. I got an intense headache that lasted days, I aswan super dizzy, began throwing up and would suddenly get feverish. It was awful!! I googled it after someone mentioned that you can't quit taking it suddenly and as soon as I took one I began feeling better within probably an hour. Honestly I think I'm sticking with it because the side effects of Lyrica and the sorts sounds scarier to me! Feeling stuck :(
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Cymbalta
Posted by: DrAnne
Jan 11, 2017
My husband takes care of sorting my meds once a week into containers telling what day and time to take what. He forgot to refill my generic cymbalta several weeks ago and I was in very severe pain and extremely depressed (I was originally put on it for depression). He finally realized what had happened and refilled the prescription three days ago. I'm feeling somewhat better, but I read the pharmacy's information sheet that always comes with any med including refills, and it specifically warns NOT to go off it suddenly. I should hope most pharmacies would include such sheets. Also, it is possible to look up your meds online and find out any warnings. I usually do that when I am prescribed a new med. So I'm afraid I don't think these people have much of a case. The information was available. Why didn't they avail themselves of it?
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Cymbalta Withdrawal
Posted by: Robertaglick
Jan 11, 2017
I am a member of the class action suit against Eli Lilly for failure to disclose the horrific side effects if SLOWLY weaning off Cymbalta. I am sorry to report the the courts are siding with Lilly who has agreed to minimum payouts for those who can, to their satisfaction, prove they suffered as a result. They require mountains of documentation that can cost each plaintiff hundreds of dollars to secure and then the payout is between $1,000-$2,500. This is hardly worth the time and expense given the circumstances.

After being on Cymbalta, 60 mg 2xdaily for several years as well as other drugs for chronic pain due to Fibromyalgia, Euler - Danlos, spinal stenosis, and multiple spinal surgeries, in Nov 2015I entered SierraTucsobn Treatment Center' s inpatient chronic pain program with the expressed purpose if detoxing from Fentanyl and supervised withdrawal from Cymbalta. At that time I was unaware that there was a class action lawsuit pending re Withdrawal from Cymbalta. I was warned that reactions could be " bothersome" and very uncomfortable and could include such things as hallucinations, vomiting, brain zaps, increased brain fog, etc. I first detoxed from Fentanyl. It took 7 days and was not fun, but then I didn't expect it to be. Once that was done, they started me on a slow withdrawal from Cymbalta. I remained in the hospital for 23 more days while doing this. It was horrible. I had ongoing hallucinations, vomiting, brain zaps, confusion, depression and so on. Since I was told all of this could happen, I " took it like a trooper". I didn't complain, I often didn't report what was happening. I participated fully in all the treatments to help me get through this. I was discharged on December 28, 2015, having spent 40 days as an inpatient. I was still having withdrawal symptoms including hallucinations, confusion, extreme constipation, brain fog, etc. these continued for roughly another 6-8 months.

When I learned there was a class action law suit, I joined it. My Dr. Supplied records, there was info re my 40 days at SierraTucson, but nothing was enough....especially since I was a " non- complainer" in the hospital. Therefore there wasn't a sufficient trail of evidence. I gave up. Continuing to fight was wearing on my very being. I couldn't undo having been a " good" patient. Lilly s settlement seemed to have quelled anything reasonable from moving forward. There is more, much more, but the pharmaceutical system and the judicial system were too powerful. As far as I now know, Eli Lilly, despite all evidence to the contrary, is virtually held harmless. In exchange for no real guilty verdict and token payouts, they are off the hook. Cymbalta is still on the market. And those of us who suffered bebause of this drug are plumb out of luck.

Cymbalta may have prompted lawsuits, but what good did they do???
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Cymbalta lawsuit
Posted by: Findrhonda
Jan 12, 2017
I was told by several Dr's that "Cymbalta doesn't have withdrawal symptoms". I went through the mental, physical and emotional trauma quite a long time ago but I remember the excruciating pain very well. I remember having several Dr's write me prescriptions to see a psychiatrist for the symptoms that were "all in my head". I actually started to believe them myself. I am grateful that this is becoming known so that others can get the help that is needed to get off of this horrible drug. Good luck and God bless.
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Cymbalta Withdrawal
Posted by: destineemeans
Jan 24, 2017
I took Cymbalta after taking Lyrica that almost caused my demise. Lyrica's side effects, after 6 months of use, were so serious and I was immediately taken off of those meds only to experience withdrawal symptoms so severe I landed in the emergency room. I then was given Cymbalta and it did not work after taking it for several more months, and then when I stopped the withdrwal symptoms began and were also as severe as those from Lyrica and I ended up back in the ER. I would rather deal with the pain of my Fibromyalgia and RA, than take meds that cause side effects and withdrawal symptoms so severe they cause me to have to seek additional medical help.
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Where do we go from here?
Posted by: sianlane
May 5, 2017
I was diagnosed with Fibro almost 20 years ago, and am currently being prescribed both Duloxetine and Savella. I have frequently noticed if I miss a dose for some reason, I am very lethargic, experiencing dizziness and mental shutdown.
What is the best course of action in these cases? Get off the Duloxetine? I've tried 4 types of antidepressants over the years, none of which really deal with 24/7 pain and depression that it can create. Now I see that my mini withdrawals might not be imagined...? What should I discuss with my Rheumatologist at my next visit?
Thank you for trying to shed light on just one of these 'blind' conditions.

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What am I suppose to do now?
Posted by: skills4you
Jun 14, 2017
OMG Where do I start??? I've been prescribed Cymbalta now for about 5 years and it's very expensive. I first was taking 30 mgs. a day and then over time I was told to take 60 mgs a day. At first my depression seemed to be better but I was not only taking this medication for depression but for chronic pain. I have CRPS now for almost 5 years. Central Regional Pain Syndrome. I got this from a major car accident back in March 2012. Over time I was told to by a Depression specialist that I needed to take 120 mgs of Cymbalta every day. I can't say I felt any better but in fact, I was getting bad depression thoughts on a daily basis. I was thinking how was I going to successfully kill myself. Every single time these thoughts came into my head I had to try and leave the situation I was in or the thoughts got more intense. I decided I needed to try and stop this medication slowly as I was told I might have some withdrawal but it's pretty easy to get off of. This was a complete lie!!! After 24 hours of only taking 90 mgs of Cymbalta instead of 120 mgs. i was getting cloudy feeling in my head and then the Brain Zaps!!! Oh my God!!! I never felt anything like it. It felt like I was getting electrocuted with every Zap. When they started, I was getting them 2 to 4 times an hour without any relief. The feeling was absolutely horrific. I really wanted to kill myself to stop the most uncomfortable feeling in my head. I really didn't know what was going on but it continually got worse. I would lay down on my bed in the fetal position, cry out loud and scream why me and what the hell was going on. After 1 month of this feeling at 90 mgs. per day, I tried to go lower to 60 mgs. This was a massive mistake. I started to get hardening of my chest, heart palpation's to add on top of the Depression feelings and extreme Brain Zaps!!! what am I going to do now? To top it off it was so bloody expensive to pay for this medication that felt like it was going to kill me before I get off this medication with the extreme withdrawal feelings that I was experiencing everyday, all day and night. I lasted about 16 days at 60 mgs a day then I told my Dr. that I can't this anymore and saw my Depression Specialist and she said "I need to be on 120 mgs of Cymbalta immediately." I asked when can I stop this medication? I was told you won't be able to stop or you will go through the same withdrawal that I was going through and it would only get worse if I tried. She contacted Lilly's head office i guess and I was now going to get this Cymbalta for free on 6 month increments. I've been on 120 mgs now for a very long time and so scared to take any less because there is no way I want to go through what I did 2 to 3 years ago when I tried to get off of Cymbalta slowly. I'm so worried about this. I want to sue them because I was told I wouldn't be going through all these problems if I got off this medication. It was a complete lie. I never want to feel like my brain is being electrocuted again. It's like a sick and demented way of torture. Anyone who experienced the Brain Zaps knows exactly what I'm talking about. So yes I want to sue Lilly's and if they stop prescribing Cymbalta to me, I heard that there is a generic now on the market although still expensive but I don't know what else to do. I'm damned if I take the medication and I'm damned if I don't take the medication.
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What am I suppose to do now?
Posted by: skills4you
Jun 14, 2017
OMG Where do I start??? I've been prescribed Cymbalta now for about 5 years and it's very expensive. I first was taking 30 mgs. a day and then over time I was told to take 60 mgs a day. At first my depression seemed to be better but I was not only taking this medication for depression but for chronic pain. I have CRPS now for almost 5 years. Central Regional Pain Syndrome. I got this from a major car accident back in March 2012. Over time I was told to by a Depression specialist that I needed to take 120 mgs of Cymbalta every day. I can't say I felt any better but in fact, I was getting bad depression thoughts on a daily basis. I was thinking how was I going to successfully kill myself. Every single time these thoughts came into my head I had to try and leave the situation I was in or the thoughts got more intense. I decided I needed to try and stop this medication slowly as I was told I might have some withdrawal but it's pretty easy to get off of. This was a complete lie!!! After 24 hours of only taking 90 mgs of Cymbalta instead of 120 mgs. i was getting cloudy feeling in my head and then the Brain Zaps!!! Oh my God!!! I never felt anything like it. It felt like I was getting electrocuted with every Zap. When they started, I was getting them 2 to 4 times an hour without any relief. The feeling was absolutely horrific. I really wanted to kill myself to stop the most uncomfortable feeling in my head. I really didn't know what was going on but it continually got worse. I would lay down on my bed in the fetal position, cry out loud and scream why me and what the hell was going on. After 1 month of this feeling at 90 mgs. per day, I tried to go lower to 60 mgs. This was a massive mistake. I started to get hardening of my chest, heart palpation's to add on top of the Depression feelings and extreme Brain Zaps!!! what am I going to do now? To top it off it was so bloody expensive to pay for this medication that felt like it was going to kill me before I get off this medication with the extreme withdrawal feelings that I was experiencing everyday, all day and night. I lasted about 16 days at 60 mgs a day then I told my Dr. that I can't this anymore and saw my Depression Specialist and she said "I need to be on 120 mgs of Cymbalta immediately." I asked when can I stop this medication? I was told you won't be able to stop or you will go through the same withdrawal that I was going through and it would only get worse if I tried. She contacted Lilly's head office i guess and I was now going to get this Cymbalta for free on 6 month increments. I've been on 120 mgs now for a very long time and so scared to take any less because there is no way I want to go through what I did 2 to 3 years ago when I tried to get off of Cymbalta slowly. I'm so worried about this. I want to sue them because I was told I wouldn't be going through all these problems if I got off this medication. It was a complete lie. I never want to feel like my brain is being electrocuted again. It's like a sick and demented way of torture. Anyone who experienced the Brain Zaps knows exactly what I'm talking about. So yes I want to sue Lilly's and if they stop prescribing Cymbalta to me, I heard that there is a generic now on the market although still expensive but I don't know what else to do. I'm damned if I take the medication and I'm damned if I don't take the medication.
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